5,322 research outputs found
Ophthalmic complications of spina bifida and hydrocephalus
No full textThis thesis represents an attempt to further our knowledge of the ophthalmic complications of spina bifida and hydrocephalus by means of literature review and a long term clinical study, and to determine whether regular ophthalmic supervision can assist in the general management of affected children. The ophthalmic complications of spina bifida have often been reported in the literature and thought to merit regular supervision of affected children, yet few centres currently offer this service. In this study 322 children attending one regional centre were examined repeatedly over a six year period by one ophthalmologist. Ophthalmic complications were found to be very common. They frequently provided evidence of raised intracranial pressure due to shunt dysfunction even when other objective evidence was lacking. Every spina bifida and hydrocephalus clinic should have an ophthalmalogist in its medical team. Preservation of visual function and early diagnosis of raised intracranial pressure in these children should result from this arrangement
Transition into adult healthcare services in Scotland –findings from a study concerning service users at the Scottish Spina Bifida Association
No full textBackground and Aims Literature on interventions that enable young people with Spina Bifida and/or Hydrocephalus to have smooth transition, into adult healthcare services, stress the need for the process to start early and to include all family members. The study reported here was set to quantify and articulate the experiences of service users who are or due to be going through the transition process in Scotland today. Methods and ResultsFocus group sessions, in the North of Scotland and in the ‘Central Belt’, captured rich qualitative data. A survey, sent to eligible participants on the Spina Bifida National database, offered complimentary data source. Despite the fact that the number of returned questionnaires was low (n=20) data analysis identified a number of core recurring themes. These include issues concerning Communications, Respect, Choice and Control. Findings suggest that there is a significant chasm between the political rhetoric and the reality faced by young people with Spina Bifida moving to adult healthcare services.ConclusionA possible way to facilitate successful transition of young people is using personal healthcare information as the locus for needed change. More research is needed to ascertain whether a ‘Person Centred Record’, which is set to empower young people on their transition pathway, is an appropriate transition tool. <br/
L’eredità culturale di Spina tra archeologia e politica
No full textThe centenary of the discovery on the ground of material evidence of Spina’s existence, 2022
was the year of this famous Etruscan-Greek city. On such occasion, various public institutions
thus collaborated to hold exhibitions, lectures and conferences. The section of History and
Science of Antiquity of the University of Ferrara organized on June 10 and 11 the conference
“Spina 22. L’eredità del mondo classico,” with the aim of focusing on the cultural value of
the Spina site within a broader discourse on the political use of the classical past in Italy and
its role in the construction of local identities. In short, through the echoing of the Spina myth
and the archaeological discovery of 1922, via the 1935 opening of the Archaeological Muse-
um in Ferrara, a unique relationship was created over time between the ancient and contem-
porary city; a link that needed, however, especially in relation to the fascist propaganda, to
be better contextualized. This gave rise to an interdisciplinary reflection, necessary to foster,
with a view to the culturally sustainable development of the Ferrara and Delta territories, the
creation of a conscious relationship with the cultural heritage of the classical world
Continence advice by telehealth for young people
No full textChildren and young people operate in an advanced technological world where new, exciting opportunities exist for remote interactions. To engage with these service users, we set up a nurse-led telehealth facility that enabled young people with spina bifida to access specialist continence service from home. This article describes efforts to embed this innovation into practice and offer insight to some of the challenges we faced in the process. It offers practical guidance on setting up similar services.</p
Sexual function and qualify of life in women with spina bifida: Are the women with spina bifida satisfied with their sexual activity?
No full textAIMS: As the life expectancy of persons with spina bifida increases, sexual life in adulthood presents a considerable challenge for this population. The purpose of this study was to evaluate the sexual function of young women with spina bifida and its impact on their quality of life (QOL).
METHODS: To assess sexual function and QOL by using self-administered questionnaires (Female Sexual Function Index [FSFI] and 36-Item Short Form Health Survey) in young women with spina bifida, we collected data from 44 young women with spina bifida between June 2013 and October 2013 at the spina bifida clinic of our hospital.
RESULTS: Sexual dysfunction was noted in 55.5% of women with spina bifida who had sexual activity in the previous month. In sexually active women, the diagnosis, ventriculoperitoneal shunt in situ, mobility, and clean intermittent catheterization did not show a significant difference between each subdomain (desire, arousal, lubrication, orgasm, satisfaction, and pain) and the total FSFI score. However, women who did not have urinary incontinence experienced better sexual function in terms of lubrication and pain scores (P = 0.033 and P = 0.026, respectively). Both the physical and mental composites of QOL were positively weakly correlated with the arousal score of FSFI (r = 0.455, P = 0.044 and r = 0.507, P = 0.023, respectively).
CONCLUSIONS: More than half of sexually active women with spina bifida experience sexual dysfunction. Therefore, health-care providers should pay attention to the symptoms and their management.restrictio
P-A-T-T-E-R-N-S
No full textSyracuse University School of Architecture Fall 2014 Lecture Series: P-A-T-T-E-R-N-S by Marcelo Spina and Georgina Huljich on September 23, 2014 at Slocum Hall
La domanda di senso nella società contemporanea in La Spina, Argiroffi, Lo Verde (a cura di), Post-moderno e soggettività ..., pp. 15-27
No full textThe chapter briefly analyses the demand of meaning in contemporary societies, with regard to the process of sense-construction in pre-modern, modern and so-called post-modern societies. According to the author, the theorization of post-modernism is incomplete and exaggerates the distance from modernity
ARX Linear Model Set-Up for Fault Diagnosis of Gas Turbine Sensors
No full textThe diagnosis of gas turbine sensor faults requires models of the system to calculate estimates of the measured output system variables. The model set-up phase is of great importance since the reliability of the diagnostic tool depends on the model accuracy. In the paper two different methodologies of I/O linear model set-up are analyzed and compared to find the more simple and general one. The first methodology consists in obtaining the I/O linear models by directly linearizing the physical laws (system modeling). The second one uses statistical methods (system identification) to calculate model parameters from time series data measured on the machine. The models used are of the ARX (Auto Regressive with external input) type. The number of models and the measured variables correlated by each of them have been determined in order to obtain unambiguous fault signatures for each sensor. The system identification method proves to be more suitable to the system modeling because of its grea..
A Method for the Diagnosis of Gas Turbine Sensor Faults in Presence of Measurement Noise
No full textThis paper presents a method for the detection and isolation of single gas turbine sensor faults, in presence of model inaccuracy and measurement noise. The method uses a fault matrix with a column-canonical structure (i.e., each matrix column having the same number of zeroes, but in different positions), in order to obtain the unambiguous fault isolation. The fault matrix was obtained by using a number of ARX (Auto Regressive eXogenous) MISO (Multi-Input/Single-Output) models equal to the number of measured gas turbine outputs, each model calculating an estimate of one measurable output as a function of other inputs or outputs measured on the machine. Moreover, in order to reduce the threshold of fault detection and, therefore, the minimal detectable faults, digital filters were used, applied to the time series of data measured on the machine and computed by the models. Finally, tests were performed in order to find the minimal sensor faults that can be detected and isolated
Spina Bifida Cross-Sectional Study
No full textabstract: The number of individuals born with the neural tube defect, spina bifida, is still widespread here in the United States. To briefly explain, spina bifida is a birth defect where the baby's vertebrae does not fully enclose the spinal cord. There are specifically four types of spina bifida, with varying degrees of severity. This severity can range from no symptoms to complete paralysis below the cleft area. To put this issue into perspective, approximately 166,000 individuals in the United States, today, are affected by spina bifida (National Health Institute, 2017). The purpose of the study is to determine if there is a knowledge discrepancy of health care needs between individuals who have Spina Bifida and ASU students studying a health profession. This will determine if there is a need to improve health care education of students, professionals, and members of a spina bifida association in respect to spina bifida. Not only that, this study will also identify if there is a need to increase awareness and prevention of spina bifida in the community to improve health outcomes for those affected by spina bifida. A total of 136 participants were studied with the 32-question survey. It was found, through the survey, that there was a knowledge mismatch between spina bifida members and ASU students who were studying a health profession. This knowledge mismatch was also compared with how well they answered the various questions as a group
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