Publikationer från Sophiahemmets Högskola
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Experiences of therapy dogs in patients with palliative care needs : A literature review
No full textBakgrund: Palliativ vård är ett aktivt och helhetsinriktat förhållningssätt med avsikt att förebygga och lindra lidande samt understödja bästa möjliga livskvalitet vid allvarliga och obotliga sjukdomstillstånd. Vårdinsatser ska, utöver att vara lindrande, skapa förutsättningar för komfort och tillgodose mångdimensionella behov genom hela sjukdomsförloppet. Vid komplext sjukdomsrelaterat lidande och försämrad livskvalitet blir det befogat att tillhandahålla hälsofrämjande insatser, med hänsyn till vad patienten tillskriver hälsa. Ickefarmakologiska interventioner såsom hundunderstödd terapi, har introducerats som en del av det helhetsinriktade omhändertagandet. Specialistsjuksköterskan i palliativ vård ska i ljuset av vårdformens filosofi och värdegrund, omsätta nya forskningsrön i klinisk praktik samt utöva sitt professionella ansvar sakkunnigt där tillvägagångssättet manar till att synliggöra patientens behov och hälsa. Syfte: Syftet var att beskriva erfarenheter av vårdhundar för patienter med palliativa vårdbehov. Metod: En allmän litteraturöversikt med induktiv ansats genomfördes, där både kvalitativa och kvantitativa studier inkluderades. Systematiska databassökningar utfördes i CINAHL, PubMed och PsycINFO utifrån PEO-modellen. Totalt tio artiklar analyserades genom kvalitativ innehållsanalys enligt Lundman och Hällgren Graneheim (2017). Som teoretisk referensram tillämpades Kolcabas Comfort Theory (1994). Resultat: Resultatet baserades på tio originalartiklar och sammanställdes i tre huvudkategorier: Fysiska respons och lindring, Psykiskt välbefinnande och närvaro samt Djurerfarenheter. Hos patienter med palliativa vårdbehov framkom symtomlindring, avslappning och ökad rörelseförmåga som betydelsefulla fysiologiska effekter. Psykiskt välbefinnande främjades genom upplevelser av inre lugn, närhet och distraktion, men även genom känslor av glädje, förväntan och uttryckt längtan. Därutöver var existentiell och social interaktion förekommande inslag där sjukdomens dödliga utgång vanligen berördes. Djurerfarenheter väckte minnen, igenkänning och ett känslomässigt band till tidigare husdjur. Vårdhundars närvaro förknippades med positiva förändringar i vårdmiljön, där lugn och hemkänsla lyftes fram. Slutsats: Hos patienter med palliativa vårdbehov har interventioner med vårdhundar uppvisat potential att främja hälsa och komfort utifrån ett mångfacetterat perspektiv. Föreliggande litteraturöversikt belyser ett hittills begränsat utforskat område och indikerar att vårdhundar kan utgöra ett meningsfullt, icke farmakologiskt och hälsofrämjande komplement inom ramen för personcentrerad palliativ vård. Resultaten tyder på att hundunderstödda insatser kan bidra till att lindra ett komplext lidande samt reducera upplevelsen av total smärta.Background: Palliative care is an active and holistic approach aimed at preventing and alleviating suffering while supporting the best possible quality of life in cases of serious and incurable illness. Care interventions should, in addition to providing relief, create conditions for comfort and meet multidimensional needs throughout the course of the illness. In cases of complex illness-related suffering and reduced quality of life, it is justified to provide health-promoting interventions that consider the patient’s own understanding of health. Non-pharmacological interventions, such as dog-assisted therapy, have been introduced as part of the holistic care approach. The specialist nurse in palliative care shall — in light of the philosophy and core values of the care model —translate new research findings into clinical practice and exercise their professional responsibility with expertise, that foregrounds the patient’s individual needs and perceptions of health. Aim: The aim was to describe experiences of therapy dogs for patients with palliative care needs. Method: An integrative literature review with an inductive approach was conducted, including both qualitative and quantitative studies. Systematic database searches were performed in CINAHL, PubMed, and PsycINFO, guided by the PEO model. A total of ten articles were analyzed using qualitative content analysis according to Lundman and Hällgren Graneheim (2017). Kolcaba’s Comfort Theory (1994) was applied as the theoretical framework. Results: The results were based on ten original articles and were compiled into three main categories: Physical Responses and Relief, Psychological Well-being and Presence, and Animal-related Experiences. Among patients with palliative care needs, symptom relief, relaxation, and improved mobility emerged as significant physiological effects. Psychological well-being was promoted through experiences of inner calm, closeness, and distraction, as well as through feelings of joy, anticipation, and expressed longing. Furthermore, existential and social interaction were recurring elements, often touching upon the terminal nature of the illness. Animal-related experiences evoked memories, recognition, and emotional bonds with former pets. The presence of therapy dogs was associated with positive changes in the care environment, where calmness and a sense of home were emphasized. Conclusion: For patients with palliative care needs, interventions involving therapy dogs have demonstrated potential to promote health and comfort from a multifaceted perspective. This literature review highlights a relatively unexplored area and indicates that therapy dogs may serve as a meaningful, non-pharmacological, and health-promoting complement within the framework of person-centered palliative care. The findings suggest that dog-assisted interventions may contribute to alleviating complex suffering and reducing the experience of total pain
Between principles and pragmatism - primary healthcare and social services professionals' experiences and perceptions of self-care for older adults with home care : A qualitative study
No full textOBJECTIVE: To explore the experiences of healthcare and social services professionals and their perceptions of using Certificate for self-care with support (CSS) for preventive self-care for older adults with home care, including the CSS process and collaborations between primary healthcare and social services. DESIGN: An inductive qualitative study including seven focus group interviews analyzed with reflexive thematic analysis. SETTING AND SUBJECTS: The study was conducted in the Stockholm Region 2022/23. In total, 23 informants were recruited from four key partners involved in the CSS process: professionals from primary care rehabilitation and primary healthcare, social services officers, and home care staff. RESULT: The analyses resulted in five interconnected themes: 'Guidelines with scope for interpretation,' 'Support for self-care is needed, but complicated in practice,' 'To trust the other professions' competence,' 'There is a transfer of responsibility,' and 'Communication is key.' The overarching theme 'Principles or pragmatism for safe person-centered care,' anchoring the other themes, revealed a common goal of achieving safe and individualized care within available resources, but from two conflicting perspectives: the importance of following the process according to the guidelines or taking a more pragmatic approach. CONCLUSION: This study highlights the need to establish structures facilitating safe self-care among frail groups, such as older persons dependent on home care. Our findings emphasize that the demarcation between, and responsibilities of, organizations need to be discussed and clarified to offer person-centered support. Comprehensible guidelines and functioning communication channels must be established so that all important perspectives can be heard, not least the patient's
Improving apgar scores and reducing perineal injuries through midwife-led quality improvements : An observational study in Uganda
No full textBACKGROUND: Globally, the quality of maternal and newborn care remains inadequate, as seen through indicators like perineal injuries and low Apgar scores. While midwifery practices have the potential to improve care quality and health outcomes, there is a lack of evidence on how midwife-led initiatives, particularly those aimed at improving the use of dynamic birth positions, intrapartum support, and perineal protection, affect these outcomes. OBJECTIVE: To explore how the use of dynamic birth positions, intrapartum support, and perineal protection impact the incidence of perineal injuries and the 5-min Apgar score within the context of a midwife-led quality improvement intervention. METHODS: A cohort of 630 women with uncomplicated full-term pregnancies was recruited from a hospital in Uganda. Observations and questionnaires assessed birth positions, intrapartum support, perineal protection, health outcomes and maternal characteristics. Primary outcomes included perineal injuries and the 5-min Apgar scores. The primary outcomes were analysed using descriptive data, with trends visualised through a run chart to assess changes during the midwife-led Quality Improvement intervention. Secondary outcomes included postpartum haemorrhage, admission to neonatal intensive care, newborn resuscitation, skin-to-skin care, and breastfeeding initiation. RESULT: A statistically significant association was found between women having intact perineum (i.e., no perineal injuries) and giving birth in a dynamic birth position [AOR; 0.6 (95% CI 0.4 - 0.90)], receiving intrapartum support [AOR; 0.9 (95% CI 0.9 - 1.0)], and using perineal protection measures [AOR; 0.3 (95% CI 0.2 - 0.5)]. Newborns with an Apgar score below seven at five minutes were significantly associated with intrapartum support [AOR; 0.8 (95% CI 0.7 - 1.0)] and perineal protection [AOR; 0.3 (95% CI 0.1 - 0.8)]. However, after adjustment, no significant association was found between Apgar score and birth positions [AOR; 0.5 (95% CI 0.2 - 1.5)]. Perineal injuries and low Apgar scores significantly decreased (p < 0.001) during the Midwife-led Quality Improvement intervention period. CONCLUSION: This study demonstrates that low 5-min Apgar scores and perineal injuries decreased during a midwife-led Quality Improvement intervention focusing on dynamic birth positions, intrapartum support, and perineal protection strategies. CLINICAL TRIAL: This study is registered on ClinicalTrials.gov as of 14th February 2022, under registration number NCT05237375
'A question of time and work-situation' : A cluster analysis of Swedish midwives' levels of burnout and attitudes towards midwifery continuity of care
No full textBACKGROUND: Midwifery continuity of care (MCoC) has been associated with reduced burnout and increased work satisfaction among midwives. Despite these benefits, MCoC is not common in Sweden. AIM: This study aimed to explore midwives' profiles based on burnout levels and attitudes towards midwifery continuity of care, considering various background and work-related factors. METHODS: A national cross-sectional digital survey was conducted among midwives in Sweden. The questionnaire covered the Copenhagen Burnout Inventory (CBI), attitudes towards MCoC and background variables. Cluster analysis identified a set of profiles, which were then compared by calculating odds ratios and 95 % confidence intervals for various background and work-related factors. Logistic regression examined the factors most associated with each profile. FINDINGS: A three-cluster solution for the 1,983 midwives surveyed was suggested, labelled as Reserved, Visionary, and Sensitive. Midwives in the Reserved cluster exhibited negative attitudes towards MCoC, through negative scores on both components and negative scores on the CBI. Within the Visionary cluster, midwives showed positive scores on the Relational component of MCoC, but negative scores on the Practical and Organisational component and the CBI. In the Sensitive cluster, midwives exhibited the highest scores on the CBI and negative scores on the Practical and Organisational component of MCoC, with just slightly positive scores on the Relational component. Cluster membership was associated with length of work experience (p<0.001) and work domain (p<0.001). CONCLUSION: Based on the CBI and attitudes towards MCoC, three distinct clusters of midwives were identified, with different factors contributing to membership in each cluster. Understanding how midwives relate to MCoC can facilitate the implementation of the model, potentially improving midwives' work-related health
Patients experience of care with acute abdomen : A literature review
No full textBakgrund: Akutvårdskedjan för patienter med akut buksmärta omfattar ambulanssjukvården, akutmottagningen och kirurgiska vårdavdelningar där olika riktlinjer och praxis innebär olika risker. Tidigare forskning i ämnet beskriver brister i samordning mellan vårdenheter påverkar vårdkvalitet och patientsäkerhet. Brister i patientanpassad omvårdnad bidrar till ökad lidande och negativa vårdupplevelser. Ramverket Fundamentals of Care valdes ut som teoretisk utgångspunkt för denna litteraturöversikt eftersom det fokuserar på omvårdnad och patientens grundläggande vårdbehov som i synnerhet har en stor betydelse för specialistsjuksköterskans arbete och förhållningssätt. Syfte: Var att beskriva patienters upplevelse av omhändertagandet vid akut buksmärta i akutvårdkedjan. Metod: en icke-systematisk litteraturstudie med integrerad dataanalys genomfördes. totalt inkluderades 15 originalartiklar. Resultat: Vid dataanalysen identifierades två huvudkategorier och fem underkategorier. Ena huvudkategorin fokuserade på vårdrelationen mellan patient och vårdgivaren. Personcentrerad vård, god kommunikation och vårdmiljö ger förutsättningar för att upprätthålla en god vårdrelation, brister i dessa aspekter skapar å andra sidan klyftor i relationen mellan patient och vårdgivare. Andra huvudkategorin beskriver smärthantering, både farmakologiska interventioner samt icke-farmakologiska interventioner. Resultatet beskriver hur patienten kan uppleva akutvårdskedjan vid akut buksmärta. Slutsats: Vid en god vårdrelation där patienter känner sig sedd och delaktig, där sjuksköterskan anpassar sitt förjållningssätt till patientens behov skapas goda förutsättningar för positiva patientupplevelser. Positiva vårdupplevelser skapar i sin tur goda förutsättningar för patientens tillfrisknad och återhämtning. Forskning beskriver dock brister genom vårdkedjan där organisatoriska otillräckligheter, avsaknad av riktlinjer och en individualiserad vård skapar dåliga förutsättningar för att upprätthålla en god och patientsäker vårdnivå.Background: The emergency care chain for patients with acute abdomen covers the ambulance services, the emergency department and surgical units, where different policies and praxis entails different risks. Previous research on the subject shows lack of coordination between the different units which affects the quality of care and patient safety. Shortage in individualized care results in increased suffering and negative care experiences. The Fundamentals of Care framework was chosen as the theoretical foundation for this literature review as it is characterized by person-centered care and the patients basic needs, where specialist nurses play a particularly significant role. Aim: Was to describe the patients' experiences of care with acute abdomen throughout the emergency care chain. Methods: A non-systematic literature review with integrated data analysis was conducted. A total of 15 original articles were included. Result: During the data analysis, two main categories were identified, with five subcategories. One main category focused on the care relationship between patient and healthcare provider. Person-centered care, good communication, and the care environment provide the foundation for maintaining a good care-relationship, while shortcomings in these aspects create rifts in the relationship between the patient and the healthcare provider. The second main category describes pain management, including both pharmacological and nonpharmacological interventions. The result describes how patients may experience the acute care chain with acute abdomen. Conclusion: In a good care-relationship where the patient feels seen and included, and where the nurse adapts their approach to the patient's needs, favorable conditions are created for positive patient experiences. However, research describes shortcomings throughout the care chain, where organizational deficiencies, lack of guidelines, and lack of individualized care create poor conditions for maintaining a high level of patient safety and quality care.
Relatives experience of being present during cardiopulmonary resuscitation : A litterature review
No full textBakgrund: Varje år drabbas tusentals människor av hjärtstopp i Sverige av olika orsaker, vanligast är kranskärlssjukdom. För att rädda personerna utförs hjärt-lungräddning (HLR). Forskning visar att närstående önskar att få närvara under HLR, men att de inte alltid erbjuds att närvara eller känner sig omhändertagna av vårdpersonalen. Europeiska riktlinjer rekommenderar att närstående bör erbjudas att närvara under HLR om de så vill. Situationen kan upplevas traumatisk och påverka livet efter. En del vårdpersonal är positiva till att närstående närvarar vid HLR, medan andra uttrycker tveksamheter till följd av att närstående kan ta skada psykiskt. Familjecentrerad vård är den teoretiska utgångspunkten för arbetet vilket syftar till att göra närstående delaktiga. Syftet var att belysa närståendes upplevelse och behov av stöd under och efter bevittnad HLR av en vuxen person. Metod: En allmän litteraturöversikt med systematisk sökstrategi. Femton vetenskapliga originalartiklar inkluderades, åtta med kvalitativ och sju med kvantitativ design. Artiklarna kvalitetsgranskades med ett bedömningsunderlag och analyserades utifrån analysmetoden som ingår i Polit & Beck´s niostegsmodell. Resultatet visade att närstående upplevde både positiva och negativa känslor av att närvara vid HLR. Trots att upplevelsen kunde uppfattas som traumatisk så uttryckte flertalet önskan om att närvara eller att bli tillfrågade. Vidare framkom närståendes behov av information och stöd från vårdpersonalen både under och efter HLR-situationen. Närstående uttryckte upplevelser av en förändrad framtid med påverkan på deras mående och roll samt behovet av uppföljning. Fynden sammanfattades i tre huvudteman med sju subteman. Slutsats: Närstående upplever många olika känslor under och efter HLR-situationen. Det framkommer att de vill vara delaktiga och att kommunikationen mellan närstående och vårdpersonalen är viktig. Behovet av stöd är framträdande där en stödperson efterfrågas och har stor betydelse för upplevelsen. Närståendes livssituation förändras efter den akuta händelsen vilket påverkar deras mående. Vårdpersonalens agerande kan göra skillnad för närståendes upplevelse.Background: Every year, thousands of people in Sweden experience cardiac arrest, most commonly due to coronary artery disease. Cardiopulmonary resuscitation (CPR) is performed to save lives. Research shows that relatives wish to be present during CPR but are not always offered the opportunity or feel supported by healthcare professionals. European guidelines recommend offering relatives the option to be present during CPR. The experience can be traumatic and impact their lives afterward. While some healthcare professionals support the presence of relatives, others express concerns about potential psychological harm. Family-centered care is the theoretical framework, aiming to involve relatives in the care process. Aim: The aim was to explore relatives’ experiences and need of support during and after witnessing CPR of an adult. Method: A literature review with a systematic search strategy was conducted. Fifteen original articles were included, eight qualitative and seven quantitative. The articles were quality-assessed and analyzed using the analytical method included in Polit & Beck’s nine step model. Results: Relatives experienced both positive and negative emotions when present during CPR. Despite the traumatic nature, most expressed a desire to be present or be asked. Relatives also reported a need for information and support from healthcare professionals during and after CPR. They felt their future was impacted, affecting their well-being and roles, and expressed a need for follow-up. Findings were summarized in three main themes with seven subthemes. Conclusion: Relatives experience diverse emotions during and after CPR and wish to be involved. Communication with healthcare professionals is crucial, and the need for support is prominent. The presence of a support person significantly impacts their experience. The actions of healthcare professionals can make a difference in relatives' experiences
Treatment decision-making and treatment experiences in men with metastatic castration-resistant prostate cancer
No full textBACKGROUND AND PURPOSE: For the most advanced stage of metastatic castration-resistant prostate cancer (mCRPC), several life-prolonging treatments have become available over the past decade. Treatment decision-making (TDM) and experiences in this phase are yet to be studied. Hence, this study aimed to describe men's satisfaction with TDM and treatment experiences during the first 12 months of a life-prolonging treatment of mCRPC. PATIENTS AND METHODS: This prospective study included 104 men with mCRPC who started and remained on the same life-prolonging treatment for 12 months. They received a questionnaire on TDM, treatment experiences, and well-being every 3 months. Correlation analyses explored associations between satisfaction with TDM at baseline and treatment experiences and well-being over time. RESULTS AND INTERPRETATION: The participants (median age: 77 years) generally reported high satisfaction with physician- and nurse communication and confidence/trust at baseline (>55% reported the highest satisfaction in all questions), but lower satisfaction with communication regarding how the treatments could affect them - up to 40% reported not having talked about that at all. Treatment experiences and physical- and emotional well-being remained stable over time. Associations were found between satisfaction with TDM at baseline and how they rated the treatment as a whole at six months, and well-being at six and 12 months. In mCRPC, men's TDM preferences need to be explored, and shared decision-making needs to be facilitated when considering treatment. Furthermore, clinicians need to discuss how the treatment might affect patients' everyday lives when discussing life-prolonging treatments with them
Manual therapists in Sweden during the COVID-19 pandemic : They remained in business, but how was their work environment and practice impacted?
No full textBACKGROUND: The Swedish governmental strategy during the COVID-19-pandemic was to impose voluntary recommendations to limit viral spread, but to keep health care and important societal functions running. The objective of this study was to describe the work environment and practice of manual therapists, who were challenged by this strategy, in Sweden during a year of the pandemic. METHODS: The cohort study Corona And Manual Professions (CAMP) was studying chiropractors and naprapaths, registered in the public register of licensed manual therapists in Sweden, during the pandemic. Mixed methods were used to answer the research aims. Surveys were distributed in November 2020, during the second wave, and in February, May and November of 2021. The quantitative data were presented descriptively, with the development over time illustrated in graphs. The qualitative data from the free-text answers were analyzed using content analysis. RESULTS: In total, 816 manual therapists (47% of the invited sample) were included in the study, of which between 275 and 662 participants answered the free-text questions. At baseline, most (60-65%) rated their knowledge of viral infections and their spread, of vulnerable patient groups, and of protective gear as fairly good or good. Most (68-70%) were able to follow the official recommendations, but decreased numbers of patients and changes in clinic routines were reported. There was a positive trend in caring adequately for patients and having access to protective gear. Manual therapists reported that they were unable to care for vulnerable patient groups, had to adhere to routines perceived as onerous, and found care to be less personalized. CONCLUSION: At the time of the outbreak of the COVID-19 pandemic, manual therapists in Sweden encountered challenges regarding knowledge about pandemics and availability of protective equipment. Sweden's official recommendations were possible to implement by the manual therapists, but had adverse impacts on clinic activities and patient care. Despite this, over 50% were able to deliver adequate care for their patients
Nurses perspectives of caring for patients with multidimensional pain in palliative care : A literature review
No full textBakgrund: Den palliativa vårdens värdegrund kan sammanfattas i fyra ledord: närhet, helhet, kunskap och empati, och syftar till att förbättra livskvaliteten för patienter och dess närstående. Palliativ vård innebär även att lindra lidande och behandla smärta där vården utgår från ett holistiskt synsätt där människan ses som en helhet. Sjuksköterskor har en central roll och är ofta dem som är närmast patienten. Smärta har en stor del i den palliativa vården och anses vara mångdimensionell, där dimensionerna beskrivs som fysisk, psykisk, social och existentiell. Dimensionerna påverkar varandra och dessa bör ses som en helhet vid vård av patienter med smärta inom palliativ vård. Syfte: Att beskriva hur det kan vara att vårda patienter med mångdimensionell smärta, ur sjuksköterskors perspektiv. Metod: En litteraturöversikt med induktiv ansats. Litteratursökning har skett i databaserna PubMed, CINAHL och PsycINFO. 12 vetenskapliga artiklar ligger till grund för resultatet och dataanalys genomfördes med hjälp av Whittemore och Knafl (2005) analysprocess. Resultat: Resultatet av litteraturöversikten lyfte att det var utmanande att vårda patienter med mångdimensionell smärta. Tre huvudkategorier identifierades: Att vårda med olika smärtbehandlingar, Kommunikationens betydelse för vårdandet och Professionellt förhållningssätt i vårdandet. Resultatet speglar vikten att få tid tillsammans med patienten, att ett gott stöd fanns och att kunskap hos sjuksköterskorna fanns för att kunna bedöma smärtan. Slutsats: Kunskap och erfarenhet hos sjuksköterskorna beskrevs som viktigt för att kunna identifiera den mångdimensionella smärtan. Möjlighet att utveckla en relation ansågs betydande och skapade möjligheter till att identifiera de olika dimensionerna. Resultatet visar vikten av att vårda ur ett perspektiv av total pain där alla dimensioner uppmärksammas för att lindra patienternas smärta.Background: The core values of palliative care can be summarized in four key words: closeness, wholeness, knowledge and empathy, and aims to improve the quality of life for patients and their loved ones. Palliative care also involves alleviating suffering and treating pain, where care is based on a holistic approach where the person is seen as a whole. Nurses have a central role and are often those who are closest to the patient. Pain plays a large part in palliative care and is considered multidimensional, where the dimensions are described as physical, psychological, social and existential. The dimensions affect each other and these should be seen as a whole when caring for patients with pain in palliative care.Aim:To describe nurses’ perspectives on caring for patients with multidimensional pain, in palliative care. Method: A literature review with an inductive approach. Literature search was conducted in the databases PubMed, CINAHL and PsycINFO. 12 scientific articles form the base for the result and data analysis was carried out with Whittemore and Knafl (2005) analysis process. Results: The results of the literature review highlighted that it was challenging to care for patients with multidimensional pain. Three main categories were identified: Caring with different pain treatments, the importance of communication for caring and professional approach in caring. The results reflect the importance of getting time together with the patient, that there was good support and that the nurses had knowledge to be able to assess the pain. Conclusion: Knowledge and experience of the nurses were described as important in identifying the multidimensional pain. The opportunity to develop a relationship was considered significant and created opportunities to identify the different dimensions. The result shows the importance of caring from a perspective of total pain where all dimensions are paid attention to in order to relieve the patients' pain
Women's experiences of living with diagnosed endometriosis : A literature review
No full textBakgrund Endometrios är en kronisk sjukdom som drabbar en stor andel kvinnor i fertil ålder, och kan ha en betydande påverkan på kvinnors livskvalitet, psykiska hälsa och fertilitet. Trots sjukdomens stora utsträckning så finns det en tydlig kunskapsbrist kring sjukdomen, vilket leder till diagnosfördröjning och otillräcklig behandling. Kvinnor som är drabbade genomgår ofta en lång vårdprocess präglad av lidande där deras smärta och symtom normaliseras och ifrågasätts av vårdgivare. Syfte Syftet var att beskriva kvinnors upplevelser av att leva med diagnostiserad endometrios Metod En icke-systematisk litteraturöversikt genomfördes och inkluderade 11 vetenskapliga artiklar från PubMed och CINAHL. De vetenskapliga artiklar som inkluderades var publicerade mellan åren 2015–2025 och bestod av artiklar av både kvantitativ och kvalitativ ansats. Artiklarna kvalitetsgranskades systematisk med Sophiahemmets Högskolas bedömningsunderlag. Dataanalysen genomfördes genom en integrerad analysmodell. Resultat Resultatet presenterades i tre huvudkategorier och flertalet underkategorier, där upplevelsen av att leva med endometrios beskrevs utifrån olika perspektiv. De viktigaste fynden som beskrev kvinnors upplevelse att leva med endometrios var Smärtan som blöder in i livets alla vrår, Bemötandet i hälso- och sjukvård och Strategier vid hantering av endometrios Slutsats Endometrios påverkade kvinnors livskvalitet negativt i flera aspekter i deras liv, där smärta var det mest vanligt förekommande symtomet som skapade störst lidande. Kunskapsbrist hos vårdgivare i kombination med normaliserande av symtom upplevdes skapa diagnosfördröjning och i många fall vårdmöten präglat av misstroende. Ett personcentrerad och empatiskt bemötande från vårdgivare upplevdes göra stor skillnad för kvinnors upplevda livskvalitet.Background Endometriosis is a chronic disease that affects a large proportion of women of childbearing age, and can have a significant impact on women's quality of life, mental health and fertility. Despite its widespread prevalence, there is a clear lack of knowledge about the disease, leading to delayed diagnosis and inadequate treatment. Affected women often go through a long and distressing care process where their pain and symptoms are normalized and questioned by health care providers. Aim The aim of the study was to describe women's experiences of living with diagnosed endometriosis. Method A non-systematic literature review was conducted and included 11 scientific articles from PubMed and CINAHL. The scientific articles included were published between the years 2015-2025 and consisted of articles of both quantitative and qualitative approach. The articles were systematically quality reviewed using the Sophiahemmets Högskola's assessment tool. Data analysis was conducted using an integrated analysis model. Results The results were presented in three main categories and several subcategories, where the experience of living with endometriosis was described from different perspectives. The most important finds describing women's experience of living with endometriosis were The pain that bleeds into every aspect of life, The treatment in health care and Strategies for managing endometriosis. Conclusions Endometriosis negatively affected women's quality of life in several aspects of their lives, with pain being the most common symptom that caused the most suffering. Lack of knowledge among health care providers combined with normalization of symptoms was perceived to create diagnostic delays and, in many cases, care encounters characterized by mistrust. A person-centered and empathetic approach from health care providers was found to make a big difference to women's perceived quality of life