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Voices of Children with Cancer and Their Siblings in the Family Talk Intervention
Background: Children in pediatric oncology report unmet needs related to communication and information about the illness, care involvement, and psychosocial support. Supporting the whole family involves challenges, with a risk that children's voices are not heard above those of the adults. Article 12 of the UNCRC has been a catalyst in supporting children's voices and their right to participate in processes that affect them. The aim of this study was to explore how children with cancer and their siblings experienced participation in a family-centered psychosocial support intervention, the Family Talk Intervention (FTI). Methods: Interviews were held with 35 children (ill and siblings) from 26 families in pediatric oncology after having completed the FTI. A combined deductive and inductive qualitative content analysis was undertaken, guided by the Lundy model of child participation. Results: Children's experiences of being able to express their views, being listened to, and being involved during FTI were mainly positive. This was related to their participation in individual meetings where they could raise their concerns and views, undertake small activities while talking, and have their voices and needs mediated to relevant adults, such as parents and professionals. Conclusions: The findings of this study showed that the FTI for families in pediatric oncology created opportunities to promote child participation. These findings indicate that, by offering children an individual space where they can express themselves freely and supporting them in various ways to do so, the children's voices and involvement are strengthened
The Legend of 1900 : Law, Space, and Immigration
In the late 19th and early 20th centuries, more than 4 million Italians migrated to the United States of America (U.S.), which they regarded as a utopia. The flm The Legend of 1900, which was inspired by Alessandro Baricco’s monologue Nocecentoand directed by Giuseppe Tornatore, tells the story about the genius pianist 1900, an orphan, who is fostered by Danny, a black coalman in the boiler room of an ocean liner, and whose parents are presumably Italian immigrants. Due to immigration law, 1900, a man with neither identity, visa, nor legal papers, cannot legally set foot on American soil. As a genius pianist, his existence is nothing more than that of musician—an entertainer to passengers on the gigantic trans-Atlantic liner Virginian, the only place he is permitted to live. According to Michel Foucault’s notion of heterotopia, a ship is “a piece of foating space, a placeless place”—a vessel transporting people to the land of their dreams. However, 1900, who has no legal status, will never arrive in utopia aboard Virginian. He can only construct a heterotopia—a mirror of utopia—so that it to him is a utopia. In the eyes of the law, 1900 is a legally non-existent person on Virginian, a placeless place. However, it is this lawless heterotopia and isolation that create a genius. In this paper, I illustrate how Virginian, as a place outside the law of land, metaphorically gives birth to a pianist, 1900, and why 1900 at the end chooses not to leave the ship, while also discussing the meaning behind the flm and the relationship between law and space
The research circle: a possible utopia? Possibilities and constraints of knowledge development within a research-circle practice
This article highlights the methodology of the research circle (RC), a variation of participatory action research (PAR). The aim was to examine and discuss possibilities and constraints for knowledge development based on democratic ideals within the RC practice. An empirical example of a Swedish RC project, including fifteen teachers and two academic researchers, was analysed through the theory of practice architectures. Interconnections between the aspects of participants’ actions, conditions or practice architectures and surrounding practices emerged. How these were interlinked appears coherent but contradictory, and these interconnections seem to be both enabling and constraining for knowledge development based on democratic ideals. Space was created for experienced-based knowledge and scientific knowledge to interact. Equal relationships between the teachers and academic researchers and power asymmetries seem to have been created and re-created through different and sometimes conflicting traditions and idea(l) s of research and resources for participation. A question regarding the potential of the RC is whether it can be portrayed as a possible utopia? This article can contribute methodologically to the PAR field by visualising and discussing the prerequisites, power relations, possibilities and constraints of an RC projec
The anatomy of body shaming in sports coaching
Stories of body shaming in sports coaching are becoming widespread, and can intentionally, unintentionally, or inadvertently be used in different sports coaching practices. These practices do not necessarily intend to harm athletes. The aim of this paper is to explore body critical and body sensitive sport coaching practices that have the potential to be shaming, or as we call it in the title, the 'anatomy' of body shaming. The study used photo elicitation interviews including vignettes for data generation with 12 coaches from nine different sports. The results demonstrate that body criticality and body sensitivity function in different subtle ways and that coaches were well-aware of the potentially damaging influence that they can have on athletes. The article concludes with recommendations for further research exploring how athletes experience the most subtle and invisible ways of body critical and body sensitive practices, and how they internalize this well-intended but still potentially shaming advice
Gendered cooperation in a post-NPM era : a comparative study of the perceptions of municipal technostructure experts and middle-line managers
By exploring the perceptions of cooperation between technostructure experts and middle line managers of different departments in three Swedish municipalities in a qualitative study, this paper contributes to an understanding of how gendered norms inscribed in type of work influence expectations on cooperation. Theories of principal-agent, stewardship, and partnership, and a gender perspective are used. The comparative analysis shows that despite changes in work roles under the influence of NPM, traditional norms about gender appear to be reproduced in the expectations of cooperation. The results illustrate how cooperation is shaped in contexts associated with feminine respective masculine work. © 2024 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group
Does Reputation Matter? : Investigating candidate’s occupational reputation and electoral success.
Voting plays a key part of any democracy. Voters may vote for candidates, which best represent their interest of share their opinions. However, this assumption supposes that voters have the necessary knowledge to make an informed decision. Candidates in municipal elections, often cannot foster enough resources to sufficiently inform the electorate about their agenda. Thus,such elections, which may be classified as low information elections, see voters, unable to make an informed decision. In many cases, voters get to know the names of candidates, just at the ballot. In order to make an as good as possible choice, voters have to rely on certain cues, derived from the information on the ballot. This information may be age, gender, or political party. In many cases ballots also include occupational information. While certain scholar argue that occupational information does not play any significant role in voter decision-making. Others claim that this statement should be regarded as the most significant cue. In particular as occupations, who reflect a certain reputation may yield higher electoral success than others. This study thus tries to establish whether such a relationship exists. By analyzing a sample of 1420 candidates in German low-information elections, using a simple regression model, it can be seen that occupational information does not influence electoral success. Furthermore, that there is no clear relationship between the reputation of an occupation and electoral success. Party affiliation, however do display such a relationship
A 3-Minute Work Capacity Test Predicts Simulated Firefighting Performance
The study aimed to identify a small set of fitness tests that could effectively predict performance in simulated firefighting tasks. Thirty-six (25 male and 11 female) firefighters participated in the study. Strength was evaluated with grip strength, barbell bench rows, and elevated trap bar deadlifts. Work capacity was assessed using a 3-minute pyramid test, executed with and without firefighting equipment. Firefighting performance was evaluated using a simulated work task course comprising stair climbing, hose pull, victim rescue, and equipment carry. We used backward linear regressions to derive models incorporating fitness test results, demographic variables, and oxygen uptake measures as predictors. Statistical significance was set to p < 0.05. The pyramid test without equipment accounted for 59% of the variance in task performance. When body mass and height were included, the model's predictive power increased to 71%. A final model, integrating the pyramid test, body mass, and absolute maximal oxygen uptake capacity (V̇o2max), explained 81% of performance variation. Our findings indicate that V̇o2max is the key factor in firefighter task performance, explaining 69% of the variance. The pyramid test, which estimates V̇o2max and predicted 59% of performance, is simple, time efficient, and can be conducted at stations to assess physical ability and work capacity. Incorporating the pyramid test into regular assessments can help firefighters focus on improving their work capacity, which is essential for achieving better performance
Yngre barns behov av trygghetoch möjligheter till anknytning i förskolan : En enkätstudie om förskollärares uppfattningar om yngre barns behov och tillgodoseende av trygghet i förskolan
Det står skrivet i skollagen att barnet i förskolan ska ges en trygg omsorg, att barngruppernas storlek ska vara lämplig och miljön vara god (SFS 2010:800). Studiens syfte är att få en inblick i hur yngre barns behov av trygghet och anknytning tillgodoses i förskolan, utifrån förskollärares och barnskötares uppfattningar. Metoden som använts i datasamlingen är kvantitativ i form av enkät, som analyserats och diskuterats utifrån ett anknytningsteoretiskt perspektiv. Resultatet visar en hög andel pedagoger som upplever tillkortakommanden i förskolans miljö och struktur, i att leverera en barnomsorg där de yngre barnens behov utav trygghet tillgodoses i den mån den bör. Pedagogerna anser i hög grad att stora barngrupper och för låg personaltäthet är problemfaktorer som skapar utmaningar att ge de yngre barnen deras trygghetsbehov mötta. När pedagogerna anser att barngruppen är utav lämplig storlek, visar resultaten att mindre grupper om max 12 barn är det vanligaste. I denna svarsgrupp, återfinns också högre antal respondenter som anser att tillgodoseendet med trygghet för barnen är tillräckligt. När barn upplever trygghet, resulterar detta enligt anknytningsforskning, i att deras lärande och utveckling främjas. I enlighet med vad tidigare anknytningsforskningvisar, stöder resultatet i denna undersökning det faktum att mindre barngrupper i förskolan, är en förutsättning för att förskolan och pedagogerna ska kunna erbjuda trygghet åt de yngsta barnen
Högskolan Dalarna : Med förankring i lokala arkiv, kollegial organisering och samverkan
History of Education in the Nordic
Navigating Complexity : Lessons Learned from Co-Designing a Care Transition Intervention for People with Stroke
INTRODUCTION: Participatory, emergent, and reflective approaches are needed in research on person-centred integrated care. This paper describes and explores the process of developing a complex care transition intervention for stroke survivors, along with the lessons learned. DESCRIPTION: This study concerns the Missing Link project, which aimed to develop and evaluate a care transition intervention from hospital to home. The care transition was developed according to the Medical Research Council (MRC) Framework and included studies on context, co-design workshops, and prototype development. DISCUSSION: The development process faced challenges relating to understanding the emergence within the studied context and the complex adaptive systems. We failed to have a continuous and sustained involvement of healthcare professionals, patients, and significant others during the different phases of the project. Hence, a lack of shared understanding is conceivable as the emergence might have been interpreted and understood differently by the actors. CONCLUSION: Challenges in achieving shared understanding throughout the project underline the importance of investing in relationship building, meaningful interaction, and continuous feedback loops. While the MRC framework provides guidance for developing complex interventions, the phased approach may only partially capture the emergence and self-organisation within complex adaptive systems