1,720,975 research outputs found
Providing Care From Afar: A Growing Yet Understudied Phenomenon in the Caregiving Field
Full text linkDistance Caregivers (DCGs) are a growing, yet understudied subpopulation of caregivers. Unlike local caregiving research, studies on distance caregiving and long-distance caregiving are scarce, with inconsistencies regarding what even constitutes “distance.” More empirical research is needed to shed light on the unique needs and experiences of this population, using a consistent definition to facilitate comparison across studies and provide evidence for tailored interventions. In addition, technologically advanced and online dyadic interventions should be adapted to the unique needs of DCGs in order to bridge the distance between them and their loved ones
Barriers, facilitators, and motives to provide distance care, and the consequences for distance caregivers: A mixed-methods systematic review
Full text linkRationale: Distance caregivers (DCGs) are a growing population with substantial contributions to informal care. While much is known about the provision of local informal care, evidence from the distance caregiving population is lacking. Objective: This mixed-method systematic review examines barriers and facilitators of distance caregiving, determinants of motivations and willingness to provide distance care, and the impact on caregiver outcomes. Methods: A comprehensive search strategy was conducted in four electronic databases and grey literature to minimise potential publication bias. Thirty-four studies, including 15 quantitative, 15 qualitative, and 4 mixedmethod studies were identified. Data synthesis involved a convergent integrated approach to integrate quantitative with qualitative findings, followed by thematic synthesis to identify key themes and subthemes. Results: Barriers and facilitators of providing distance care included contextual and socioeconomic aspects of geographic distance, communication and information resources, and local support networks that shaped the distance caregiver role and caregiver involvement. The main motives for caregiving given by DCGs were cultural values and beliefs, societal norms, and perceived expectations of caregiving encompassing the sociocultural context of the caregiving role. Interpersonal relationships and individual characteristics further shaped DCGs’ motivations and willingness to care from a geographic distance. DCGs experienced both positive and negative outcomes as a result of their distance caretaking responsibilities including feelings of satisfaction, personal growth, and enhanced relationship with the care recipient but also high levels of caregiver burden, social isolation, emotional distress, and anxiety. Conclusions: The reviewed evidence contributes toward novel understandings about the unique nature of distance care and have important implications for research, policy, healthcare, and social practice
Motivations and willingness to provide care from a geographical distance, and the impact of distance care on caregivers’ mental and physical health: a mixed-method systematic review protocol
Full text linkIntroduction Distance caregivers (DCGs) are a growingpopulation with substantial contribution to informal care.While a reasonable amount is known on the determinantsof motives and willingness to provide local informal care,and the local caregiver outcomes, reports for the distancecaregiving population are lacking. An evidence synthesisof what motivates and makes DCGs willing to care from adistance and the impact of that care on their mental andphysical health would highlight any gaps or consensus inknowledge. This would guide the research needed towardsthe development of tailored interventions, in order tosupport DCGs and promote the sustainability of distancecare.Methods and analysis This protocol adheres to PreferredItems for Reporting of Systematic Reviews and MetaAnalyses Protocols guidelines and the Joanna BriggsInstitute (JBI) Methodology for mixed-method reviews.A comprehensive search strategy will be conducted infour electronic databases (CINAHL, MEDLINE, PubMedand PsycINFO). Grey literature will also be assessed tominimise publication bias. Two independent reviewers willassess each study for inclusion and any discrepancieswill be resolved with the consultation of a third reviewer.Eligible studies for inclusion will be English languagestudies exploring the motives and willingness to carefor a care recipient with a chronic disease, disability orfrailty from a geographical distance; or studies focusingon the mental and physical health outcomes of DCGs.Qualitative and quantitative data will be integrated in asingle qualitative synthesis following the JBI convergentintegrated approach. Study quality will be assessed usingthe Mixed Methods Appraisal Tool version 2018.Ethics and dissemination Ethical approval is notrequired for this study as no primary data will be collected.Findings will be disseminated through peer-reviewedpublication and presentations at academic conferencesand lay summaries for various stakeholders.PROSPERO registration number CRD42020156350
Cross-country variations in the caregiver role: evidence from the ENTWINE-iCohort study
Full text linkBackground Globally, economically developed countries face similar ageing demographics and the challenge of a
‘care gap’, yet they vary due to different care and formal support systems, and different cultural and societal norms
around illness and care. The aim of this exploratory study was to examine cross-country variations in caregiver
motivations, willingness, values, meaning in life, illness beliefs, and experiences of wellbeing, gain, health-related
quality of life, burden and depression, across 6 European countries and Israel. Cross-country differences in the abovementioned informal caregiver experiences are rarely described.
Methods An online survey (ENTWINE-iCohort) was conducted using validated measures wherever possible. This
paper utilises data from 879 caregivers and seven countries (Greece, Italy, the Netherlands, Poland, Sweden, the UK,
and Israel).
Results No consistent finding supporting the concurrent relationship between caregiver support policies/
country culture and caregiver motivations/willingness was found. Caregivers in countries typically characterised
by individualist cultures reported lower familism, higher self-enhancement values, and greater perceived illness
threat compared to more collectivist countries. Search for meaning was higher in poorer countries than in wealthier
countries. Higher negative caregiver experiences (e.g., burden) and lower positive experiences (e.g., wellbeing)
were generally observed in countries with underdeveloped caregiver support as compared to countries with more
developed formal support systems.
Conclusions Cross-country variations can be explained to varying degrees by national policies around care (or
their absence) and country cultural contexts. The results emphasise the importance of formal support services for
achieving positive caregiver experiences, and help inform the development of policies and measures to support
caregivers in Europe and Israel
Extremely Distant and Incredibly Close: Physical Proximity, Emotional Attachment and Caregiver Burden
Full text linkInformal caregivers are at risk of caregiver burden, and physical proximity to the care recipient may add to this negative outcome. Yet, individual differences in emotional proximity to the care recipient such as attachment orientations may contribute to caregivers’ comfort towards different degrees of physical proximity, leading to varying levels of burden. The current study is the first to explore the role of physical proximity on caregiver burden as moderated by attachment orientations. A sample of 162 Israeli caregivers who are active users of the Camoni website completed our online survey. Sociodemographic characteristics, including a self-reported questionnaire on the physical proximity to the care recipient, were collected. Caregivers’ attachment orientations were assessed with the Experiences in Close Relationships–Relationship Structures questionnaire. Caregiver burden was assessed using the Caregiver Burden Inventory. Multiple regression and simple slope analyses were conducted. Attachment anxiety and avoidance were positively associated with burden, whereas physical proximity was not. Attachment avoidance, but not attachment anxiety, moderated the association between physical proximity and caregiver burden, with caregivers who live closer to their care recipient experiencing greater burden when high levels of avoidance were present. Our findings reveal the complex dynamics between attachment orientations and physical proximity in the context of informal care, highlighting the need for better integration of these two interlinked constructs in both care research and practice
Editorial: Mind the Heart – Psychosocial Risk Factors and Cognitive Functioning in Cardiovascular Disease
Full text linkCardiovascular diseases (CVDs) are the leading cause of disability and premature death worldwide, and they contribute substantially to rising health care costs. Ameliorating cardiac risk factors is the most effective way of minimizing CVDs’ negative physical and psychological ramifications World Health Organization (WHO, 2021). By targeting those people who are most predisposed to develop cardiac illness or whose risk factors prevent them from managing their illness as recommended, we
might be able to minimize the vast global burden of this illness. The current topic for Frontiers in Psychology presents an effort to gain an integrated view of the role played by psychosocial and cognitive factors in the context of CVD
Interpersonal relationships and health
Full text linkIn this chapter, we stress the importance of relationships in dealing with illness and present a number of theories and approaches that have guided research in this area. We introduce the chapters in this section that focus on different relationships, including the relationships between patients and their partners, caregivers and their care recipients, and health-care professionals and their patients. It is important to understand how these relationships may facilitate or hinder a person’s coping efforts and their health outcomes in order to develop and provide interventions to optimise the benefits of these relationships
Going Beyond Counting First Authors in Author Co-citation Analysis
Full text linkThe present study examines one of the fundamental aspects of author co-citation analysis (ACA) - the way co-citation
counts are defined. Co-citation counting provides the data on which all subsequent statistical analyses and mappings
are based, and we compare ACA results based on two different types of co-citation counting - the traditional type that
only counts the first one among a cited work's authors on the one hand and a non-traditional type that takes into
account the first 5 authors of a cited work on the other hand. Results indicate that the picture produced through this non-traditional author co-citation counting contains more coherent author groups and is therefore considerably clearer. However, this picture represents fewer specialties in the research field being studied than that produced through the traditional first-author co-citation counting when the same number of top-ranked authors is selected and analyzed. Reasons for these effects are discussed
Attitudes Toward Israel's Equal Rights for People With Disabilities Law: A Multiperspective Approach
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