1,720,975 research outputs found
Acceptability and Usability of an Evidence-Based Program to Coach Newly Diagnosed Patients
Full text linkIntroduction & Background
1.8 million Americans are diagnosed with cancer every year. Telling loved ones, especially children, about a cancer diagnosis can be very difficult. However, disclosure to children is important to cope with changes and hardships that can follow the diagnosis. Healthcare providers play a large role in coaching cancer patients; however, many may feel unqualified to teach parents about disclosure of the cancer diagnosis to children. Thus, an evidence-based workshop entitled "How Should We Tell the Kids?" was developed and implemented to train healthcare staff on cancer disclosure coaching to help parents and grandparents. Participants completed a workshop evaluation and self-assessment (current practices along with pre- and post-workshop confidence in coaching parents in the cancer disclosure conversation). Five, two-hour workshops were delivered to 78 healthcare staff members by interactive lecture and role-playing. The purpose of this study is to understand the acceptability and usability of the workshop.
Methods
Based on findings from the previous evaluations, a semi-structured follow-up interview protocol was developed to understand the relevance and format of the topics covered in the workshop, how the attendee implemented what they learned into their practice, their experiences with holding disclosure conversations, the usefulness of the resources provided and what could be improved about the program. The interviews were transcribed verbatim and thematically analyzed using NVivo 12 software by two independent coders. Quantitative data was analyzed using the descriptive statistics in SPSS version 24.
Results
Healthcare staff (n = 7) were interviewed (mean years in job title = 3.6 years, mean years in profession = 10.8). All seven participants reported that the program was relevant. Among the staff, the following themes emerged: acceptability, impact of the program, and practice. Analysis of the interview data showed that participants held value in the comprehensiveness of the program, especially in regards to the resources – which included books, videos, and websites – provided. Healthcare staff felt more confident holding disclosure conversations and were discussing disclosure with patients much more frequently in comparison to before the program. Facilitators to holding these conversations included altruism, knowledge, resources, and continuity. Barriers included time, the difficulty of the conversations, anxiety, and COVID-19. Despite the acceptability of the program, participants suggested a variety of changes to improve both the content and delivery of the program.
Conclusions
The "How Should We Tell the Kids" program was the first program developed to educate healthcare professionals about cancer diagnosis disclosure coaching for patients who are parents. The information, and in particular, the resources, included in this program are acceptable among a wide range of oncology healthcare staff. Future iterations will include suggestions for patient needs and outcomes related to this coaching and other objective metrics of quality improvement.A one-year embargo was granted for this item.Academic Major: Nursin
Partnering in Negating Statistics (P.I.N.S.) for Black Women: A Women's Community Wellness Initiative
Full text linkBlack Americans have the highest rate of mortality from chronic diseases (e.g., cardiovascular disease, cancer, and diabetes) among all non-indigenous races and ethnicities. Higher attainment of ideal cardiovascular health (CVH), as indicated by AHA's Life's Simple 7 (LS7; glucose, cholesterol, blood pressure, body mass index, diet, physical activity, smoking), and Life's Essential 8 metrics (LE8: LS7 + sleep duration) is associated with a lower risk of mortality from chronic disease among all races and ethnicities. About 70% of health outcomes are influenced by social determinants of health (SDoH) and lifestyle behaviors. Unfortunately, Black American women are more likely to be negatively impacted by SDoH and less likely to engage in healthy lifestyle behaviors than their White counterparts. The Partnering in Negating Statistics (P.I.N.S.) for Black Women Initiative began in 2021 to educate, provide access to resources, and partner in science toward promoting health and wellness among Black women. Herein describes this as the commencement of the P.I.N.S. Initiative through community-based wellness events and community-dwelling Black women's attainment of LS7 and LE8.
The Partnering in Negating Statistics (P.I.N.S.) for Black Women Initiative was formed utilizing academic-community-government partnerships. Partners were engaged throughout the planning and implementation phases. The resulting initiative aimed to uplift Black women to achieve wellness through provision of education, access to resources (e.g., mammograms, pap smears, LS7 screening), and research. On August 12th, 2021, and August 6th, 2022, the wellness event occurred, during which feasibility (defined by Bowen et al.'s demand and acceptability) was assessed with a program evaluation. Descriptive statistics and thematic content analysis were performed on quantitative and qualitative data.
Community-based wellness events boasted high feasibility in the areas of demand and acceptability. Five hundred Black women attended the events, completing a total of 30 mammograms, 24 pap smears, and 418 biometric screenings. From evaluations (N = 111), attendees (20-74 years old) were well educated (66% with a college degree) and mostly un-partnered (57%). Largely, women heard about our event through family, friends, and community partners. Women were very to extremely satisfied with wellness content (82%) and the program overall (85%). Respondents found value in community engagement and reported the need for an annual event. Of those with complete LS7 (N = 123) and LE8 (N= 63) data, the median [interquartile range] LS7 and LE8 scores were 8 [7-10] on a 0-14 scale and 63 [54-73] on a 0-100 scale.
The P.I.N.S. Initiative is a feasible avenue to engage Black women with largely intermediate cardiovascular health in wellness-focused services. This initiative provides a modifiable framework for further research toward identifying interventions to promote ideal CVH and equitable cardiovascular outcomes.African American Male Wellness AgencyOncology Nursing FoundationOhio State UniversityA one-year embargo was granted for this item.Academic Major: Public Healt
Going Beyond Counting First Authors in Author Co-citation Analysis
Full text linkThe present study examines one of the fundamental aspects of author co-citation analysis (ACA) - the way co-citation
counts are defined. Co-citation counting provides the data on which all subsequent statistical analyses and mappings
are based, and we compare ACA results based on two different types of co-citation counting - the traditional type that
only counts the first one among a cited work's authors on the one hand and a non-traditional type that takes into
account the first 5 authors of a cited work on the other hand. Results indicate that the picture produced through this non-traditional author co-citation counting contains more coherent author groups and is therefore considerably clearer. However, this picture represents fewer specialties in the research field being studied than that produced through the traditional first-author co-citation counting when the same number of top-ranked authors is selected and analyzed. Reasons for these effects are discussed
Variations on the Author
Full text link“Variations on the Author” discusses two of Eduardo Coutinho’s recent films (Um Dia na Vida, from 2010, and Últimas Conversas, posthumously released in 2015) and their contribution to the general question of documentary authorship. The director’s filmography is characterized by a consistent yet self-effacing form of authorial self-inscription: Coutinho often features as an interviewer that rather than express opinions propels discourses; an interviewer that is good at listening. This mode of self-inscription characterizes him as an author who is not expressive but who is nonetheless markedly present on the screen. In Um Dia na Vida, however, Coutinho is completely absent form the image, while Últimas Conversas, on the contrary, includes a confessional prologue that moves the director from the margins to the center of his films. This article examines the ways in which these works stand out in the filmography of a director who offers new insights into the notion of cinematic authorship
Appropriate Similarity Measures for Author Cocitation Analysis
Full text linkWe provide a number of new insights into the methodological discussion about author cocitation analysis. We first argue that the use of the Pearson correlation for measuring the similarity between authors’ cocitation profiles is not very satisfactory. We then discuss what kind of similarity measures may be used as an alternative to the Pearson correlation. We consider three similarity measures in particular. One is the well-known cosine. The other two similarity measures have not been used before in the bibliometric literature. Finally, we show by means of an example that our findings have a high practical relevance.information science;Pearson correlation;cosine;similarity measure;author cocitation analysis
Exploring the Lived Experience of Young African American Breast Cancer Survivorship to Inform the Adaptation of a Psychoeducational Intervention: Y-AMBIENT
Full text linkIn the United States, 26,393 young women (≤ 45 years) will be diagnosed with breast cancer in 2016. Though survival rates are improving, there are health disparities among young African American women when compared to young Caucasians (e.g., poorer quality of life). Despite recommendations to provide targeted evidence-based survivorship care, there are about 23,000 young African American breast cancer survivors (YAABCS) in Alabama, Louisiana, and Mississippi for whom this care does not exist. Few studies have examined survivorship experiences and/or tested intervention efficacy among this group. Further study is warranted to understand the experiences of YAABCS and adapt targeted interventions to improve quality of life. The purpose of this transcendental phenomenological study was to explore the lived experience of young African American breast cancer survivorship to inform the adaptation of a Research-Tested Intervention Program (Breast Cancer Education Intervention) for use among YAABCS. This study was guided by the conceptual framework of the Research-Tested Intervention Program (Quality of Life Model Applied to Breast Cancer) and a methodological framework (Nolan’s Evidence-based Disparity Intervention Translation Framework). A purposive and snowball sample of YAABCS was recruited from Alabama, Louisiana, and Mississippi. Data collected included a sociodemographic survey, two semi-structured interviews, field/reflective notes, and volunteered personal effects. Qualitative data were analyzed using NVivo11 Pro Software, then validated with participating YAABCS. Sociodemographic data were analyzed to describe participants’ characteristics. Fifteen YAABCS (mean age = 35 years; mean survivorship = 4 years) perceived survivorship as a labile, “new normal.” The essence of young African American breast cancer survivorship was described as actively structuring life to manage changes to physical, psychological, social, and spiritual self as well as seeking survivorship knowledge. While YAABCS often reported successful survivorship management, they acknowledged that survivorship was an ongoing “struggle” in which spirituality and survivorship knowledge were key. Findings from this study indicate that survivorship among YAABCS was more fluid and complex than the framework. Thus, findings provide formative data to adapt a targeted intervention that will be named Y-AMBIENT. Future testing of Y-AMBIENT will explore quality of life and potentially decrease quality of life health disparity among YAABCS
Dispelling the Myths Behind First-author Citation Counts
Full text linkWe conducted a full-scale evaluative citation analysis study of scholars in the XML research field to explore just how different from each other author rankings resulting from different citation counting methods actually are, and to demonstrate the capability of emerging data and tools on the Web in supporting more realistic citation counting methods. Our results contest some common arguments for the continued
use of first-author citation counts in the evaluation of scholars, such as high correlations between author rankings by first-author citation counts and other citation
counting methods, and high costs of using more realistic citation counting methods that are not well-supported by the ISI databases. It is argued that increasingly available digital full text research papers make it possible for citation analysis studies to go beyond what the ISI databases have directly supported and to employ more
sophisticated methods
koamabayili/VECTRON-author-checklist: VECTRON author checklist
No full textWe have done our best to complete the author checklist relating to the use of animals in the hut study. Note that the objective for the hut study was to evaluate the IRS treatment applications for residual efficacy against Anopheles mosquitoes, including the local An. coluzzii mosquito population. Cows were only used to attract mosquitoes into the huts and no tests were carried out directly on the cows. The author checklist is intended for use with studies where experiments are carried out on animals, which is why we have had such difficulty in completing this for the hut study, as many of the questions do not relate to how the cows were used
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