134 research outputs found
Gender differences in self-reported late effects, quality of life and satisfaction with clinic in survivors of lymphoma
No full textObjectives: gender differences in perceived vulnerability to late effects and views about follow-up among cancer survivors have received little attention. As lymphoma affects both genders similarly, we compared the consequences of cancer (late effects, perceived vulnerability and quality of life (health-related quality of life (HRQoL)), and satisfaction with clinic visits between genders.Methods: a cohort of 115 younger adults (18–45 years, >5 years disease-free survival), who had been treated for lymphoma participated. Questionnaires (n = 91) were completed before and after (n = 62) routine consultant-led appointments. Survivors (n = 24) without appointments were recruited by post. Questionnaires included HRQoL, late effects, perceived vulnerability, issues survivors wanted to discuss and reported discussing in clinic, time waiting in clinic and consultation satisfaction.Results: there were no gender differences in number of self-reported late effects or perceived vulnerability. Men with more late effects reported worse psychological HRQoL (r = 0.50, p<0.001). While men wanted to discuss more topics than they did, women were able to discuss the topics they wanted (ANOVA, p = 0.01). Multiple regression analyses showed a shorter wait in clinic (r = ?0.46, p = 0.009) and discussing more topics (r = 0.34, p = 0.06) explained 30.6% of the variance in consultation satisfaction for men.Conclusions: issues surrounding follow-up provision are increasingly important given the length of survival in young adults following treatment for lymphoma. Men may experience poor psychological well-being due to distress about unanswered concerns. Consideration of their concerns should be prioritised, given that satisfaction and ultimately continued attendance at clinic and HRQoL may be dependent on the extent to which follow-up meets survivors' expectation
The role of educative thought in the life and work of Antonio Gramsci
No full textMany philosophers have propounded a vision of an improved society, what distinguishes Antonio Gramsci is his continuous effort to make it happen by understanding the process in order to put into practice. Gramsci's conviction about the importance of educative development came from both theory and experience. While there has been considerable examination of Gramsci's work in relation to the Prison Notebooks, this study will seek to address a lacuna in Gramsci scholarship. Using Gramsci's philological method, I analyse Gramsci's pre-prison activity; his pre-prison articles and letters, which, together with his letters from prison, formed part of his educative mission. This educative process was necessary, in order to construct a new party which would develop a collective will, collaboratively, with the masses.In this study therefore, I explore the contexts and formative experiences of the first part of his life together with the intellectual sources from which Gramsci developed his later theories, making central hitherto underemphasised connections between them which informed his writing and ideas. I intend to illustrate that Gramsci's underlying purpose in his writing, and political activity, was not only practical, on how to create a new socialist ruling class, but also educative in forming the mindset and values of his comrades. So that in addition to outlining his vision of a new order, he implicitly guided or explicitly explained the processes by which the necessary changes in social relations and moral climate could be made in order to achieve it. Each person had to engage with the values of the new order so that each could contribute to the construction of a new robust state. It was essential to build a hegemony at the most profound level, one which was dependent on collective understandings and a collective will
'A fascinating time to be involved with research' Exploring the impact of COVID-19 on postgraduate psycho-oncology researchers
No full textKey pointsTo explore UK postgraduate researcher (PGRs) COVID-19 experiences, the British Psychosocial Oncology Society (BPOS) conducted an online survey23 respondents’ qualitative data were analysed thematically and summarised using the strengths, weaknesses, opportunities, and threats (SWOT) frameworkCOVID-19 offered opportunities to develop online skills, resilience, and adaptability, whilst opening wellbeing conversationsPGRs reported practical difficulties, social isolation, unhealthy work/life balance and concerns about future careersPGRs have had an unprecedented and continually evolving experience; BPOS and relevant institutions must continue to provide adequate support and development opportunities to safeguard their future
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Cold case north ::the search for James Brady and Absolom Halkett /
No full text"A small team uncovers new evidence and exposes police failure in one of the North's most enduring missing persons cases. Missing persons. Double murder? Métis leader James Brady was one of the most famous Indigenous activists in Canada. A communist, strategist, and bibliophile, he led Métis and First Nations to rebel against government and church oppression. Brady's success made politicians and clergy fear him; he had enemies everywhere. In 1967, while prospecting in Saskatchewan with Cree Band Councillor and fellow activist, Absolom Halkett, both men vanished from their remote lakeside camp. For 50 years rumours swirled of secret mining interests, political intrigue, and murder. Cold Case North is the story of how a small team, with the help of the Indigenous community, exposed police failure in the original investigation, discovered new clues and testimony, and gathered the pieces of the North's most enduring missing persons puzzle. 'Like too many cases involving missing and murdered Indigenous people, authorities failed to ensure that Brady and Halkett's deaths were properly investigated. This book helps get to the bottom of the fate of these two men, and demonstrates why investigators should never dismiss the knowledge of Indigenous Peoples.' --Darren Prefontaine, author of Gabriel Dumont."-
EORTC QLQ-C30 summary score reliably detects changes in QoL three months after anatomic lung resection for Non-Small Cell Lung Cancer (NSCLC)
No full textIntroduction: We tested the European Organization for Research and Treatment of Cancer Quality of Life (EORTC QLQ-C30) summary score (SumSC) to detect changes in the HRQOL after Non-small-cell lung cancer (NSCLC) surgery and compared its performance to the traditional scales. Method: EORTC QLQ-C30 data was obtained from 326 consecutive pre-operative patients submitted for anatomical lung resections for NSCLC.66 patients completed post-operative assessments 3 months after surgery. The data was analysed to evaluate the ability of the SumSC compared to the traditional scales to [1] preoperatively differentiate between clinical groups [2]; detect post-op changes and to [3] compare pre and post-op changes in clinically different groups.The importance of perioperative changes was measured by calculating the effect size (ES). Results: Of the 326 patients, those older than 70 years, with higher DLCO value and Performance Status (PS) ≤1 had a significantly better preoperative SumScore. Physical function (PF) showed a large and significant decline (ES 0.91). Role and social function also showed a significant and medium decline (ES 0.62 and 0.41). Postoperatively some symptoms scales showed significant increases in the values, implying worse symptoms with the largest increase in dyspnoea (ES -0.88). The change in General Health score (GH) was not significant after surgery (ES 0.26, p = 0.062). The SumSc, decreased significantly postoperatively. In particular, medium or large postoperative declines of SumSc were observed in both males and females, in patients with lower FEV1, lower performance score, and in those older than 70 years. Interestingly the decline of SumSc was observed irrespective of the preoperative DLCO level. Discussion: The Summary Score was more sensitive to changes in subjects’ HRQOL, than the GH score. The SumSc can be used as a parsimonious and easy to interpreted patient-reported-outcome measure in multi-institutional database and future clinical trials
Oncology professionals' views on the use of antidepressants in cancer patients: a qualitative interview study
No full textObjectives: Emotional distress, including depression, is an important issue for cancer patients and their families. Guidelines recommend the use of antidepressant drugs (ADs) for the management of depression in cancer. This study explores the views of oncology professionals about the inclusion of ADs in treatment plans. Design: Semi-structured interview study. Data were analysed using framework analysis. Setting: A specialist cancer centre and six district general hospitals across the Yorkshire Cancer Network. Participants: 18 randomly selected professionals from lung, breast, urology and colorectal cancer teams: oncologists (n=8), surgeons (n=3), clinical nurse specialists (n=2) and ward nurses (n=5). Results: Three main themes emerged relating to professionals' attitudes, knowledge and behaviour. Positive attitudes were primarily expressed by nurses. However, negative views were expressed about the potential for over-reliance on ADs, and their use constituting ‘giving in’. Doctors reported a lack of confidence in the use of and knowledge about ADs with an associated reluctance to prescribe. The general practitioner (GP) was regarded as the most appropriate professional to prescribe ADs. Conclusions: Cancer professionals highlighted a need for training in the appropriate use of ADs. Further, this research suggests that negative attitudes towards antidepressants may be a factor in their exclusion from treatment plans. The GP is seen to have a key prescribing role for AD therapy; however, it is unclear whether the GPs is asked to do this. This research raises questions about the adequacy of ADs in cancer care and to what extent the GP is able to meet this need
Prospective study of quality of life after lung cancer resection: using patient reported outcomes to assess the patient’s voice
No full textSurfactant function in neonates with respiratory distress syndrome
No full textThe function of pulmonary surfactant of a group of 14 preterm neonates (birth weight 907 +/- 60 g) who suffered from severe respiratory distress syndrome (RDS) and who had received exogenous bovine lipid extracted surfactant on the first day of life was compared to that in a second group of 8 neonates (birth weight 940 +/- 110 g) with mild RDS who had not received surfactant treatment. Mechanical respiratory support from day 2 on was the same in both groups. The minimal surface tension (gamma(min)) improved steadily, falling from about 30 mN/m initially to less than 20 mN/m before extubation, A consistent but loose correlation was found between gamma(min) and mechanical respiratory support necessary, as quantitated by the oxygenation index. Total protein was about 0.8 +/- 0.2 mg/mg of phospholipids and did not change during the first week of life. There were no correlations between total protein and gamma(min) or the oxygenation index. The data suggest that inhibition of surfactant function by proteins leaked into the airspaces does not play a major role during recovery from RDS, Instead, endogenous remodelling of surfactant might be of greater relevance
“No turning back” Psycho‐oncology in the time of COVID‐19: Insights from a survey of UK professionals
No full textKey pointsTo gain insight on UK professionals' experiences and views of the impact of the COVID‐19 pandemic on psycho‐oncology activity, the British Psychosocial Oncology Society (BPOS) conducted an online survey of members and UK colleaguesQualitative data from 94 respondents were analysed thematically. Key themes were summarised using the strengths, weaknesses, opportunities and threats (SWOT) frameworkProfessionals reported severe disruptions in delivering clinical and supportive care to people affected by cancer and associated research activity. There were major concerns that the full impact of the pandemic is yet to be realised.In both care and research settings, the pandemic has also been an impetus for positive changes in working practices, technology adoption, reducing process barriers and fostering collaborations which has to potential to be sustained.To mitigate ongoing challenges, is it vital that cancer organisations work together to adapt and promote psycho‐oncology activity to maximise benefit for patients and professionals in the longer‐term
Follow-up care after childhood cancer: Survivors' expectations and preferences for care
No full textObjective: Given increased survival rates and treatment-related late-effects, follow-up for cancer survivors is increasingly recommended. However, information about adverse events (e.g. possibility of late-effects) may be distressing for the cancer survivor and lead to poor clinic attendance. Survivor satisfaction with appointments and the information provided are important. The Monitoring Process Model provides a theoretical framework to understand how survivors cope with threatening information, and consequences for follow-up care. Our aims were to describe satisfaction with routine follow-up and association between montoring/blunting and satisfaction with care. Methods: 349 patients [aged 18-45 years with a history of haematological, germ cell, breast or childhood cancer, >5 years from diagnosis without relapse (>2 years for germ cell survivors), and with a follow-up appointment during the study period] were identified from hospital databases. Participants completed questionnaires before (T1) and after a routine appointment (T2). Results: 279 (79.9%) questionnaires were completed at T1 and 198 (56.7%) at T2. Clinic satisfaction was higher with shorter waiting time, longer consultation and more topics discussed, but not associated with monitoring. High monitors reported more psychological problems, more importance of clinic attendance and greater value of support groups and professional counselling. Conclusions: Satisfaction with follow-up is high among young adult cancer survivors. Follow-up was rated more highly by higher monitors, supporting previous findings that monitors seek out health care information. Provision of additional support services might increase satisfaction among survivors with psychological and social problems.+ ID der Publikation: unilu_6376 + Sprache: Englisch + Letzte Aktualisierung: 2018-12-28 09:20:5
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