4,208 research outputs found
Effekter och erfarenheter av spädbarnsmassage [Elektronisk resurs]
No full textI kapitlet Effekter och erfarenheter av spädbarnsmassage av Pernilla Garmy, Eva-Lena Einberg och Gerth Hedov sammanfattas tre studier som genomförts i samarbete mellan forskare i forskningsmiljön CYPHiSCO och studenter på distriktssköterskeprogrammet vid Högskolan Kristianstad. Den första studien är en litteraturöversikt som undersöker effekt av spädbarnsmassage. I den andra studien beskrivs barnhälsovårdssjuksköterskors erfarenheter av att lära ut spädbarnsmassage i föräldragrupper och i den tredje studien beskrivs föräldrars erfarenheter av att ge massage till sina spädbarn
Information till föräldrar som fått ett barn med funktionsnedsättning : exemplet Downs syndrom
No full textDetta kapitel handlar om arbetet med att utforma riktlinjer för hur man möter och ger stöd till föräldrar som fått ett barn med funktionsnedsätt- ning (Downs syndrom). Tidsmässigt rör det om den första tiden för föräldrarna, om vad som sägs till dem och vad som görs inom förloss- nings- och barnsjukvården. Hur reagerar föräldrarna i den för dem nya, oväntade, okända och sannolikt skrämmande situationen? Vad vill för- äldrarna ha och vad behöver de ha och inte minst vad ges de för initialt omhändertagande? De nya nationella medicinska riktlinjerna har för första gången fått ett eget avsnitt som handlar om just detta första om- händertagande. Avsnittet har sin utgångspunkt i både beprövad erfaren- het och empirisk forskning. Vårdprogrammet presenterades 21 mars 2013. Detta arbete kan också ses som ett exempel på hur man kan ”fånga upp” ett vårdproblem från empirin, processa det genom forskningsprocessen och hur man sedan implementera resultatet åter till empirin
Swedish Parents of Children with Down Syndrome : A study on the initial information and support, and the subsequent daily life
No full textIn this study 165 Swedish parents of young children with Downs’s syndrome (DS) were investigated regarding their perception of the quality of the first information and support received after the birth of the child. The parents’ opinions were compared with clinical routines at the paediatric clinics regarding these issues. Strong clinical ambitions fell short, however, since 70 % of the parents felt insufficiently informed; 56 % felt unsupported, and the timing of the disclosure varied between 0 hour to >5 days. On the basis of a grounded theory analysis the parents’ written narratives regarding the quality of the first information and support were analysed to better understand the reasons underlying the parental dissatisfaction. Criticisms were raised by the parents concerning: the low communication skills by professionals; the lack of privacy; too much negative information; and an unmet desire to early meet other DS parents. The implications of being DS parents regarding their daily life were examined by measuring parental health, stress, sense of coherence, employment and sick leave rates. Results were compared with those in a randomly selected group of parents of healthy age-matched children. The similarities between the DS and control parents were more pronounced than the differences regarding divorce rates, siblings in the family, time spent on child care, employment and sick leave rates, and their self-perceived health, stress, and sense of coherence. However, self-perceived health of the DS mothers was impaired and stress was increased. A small group of DS parents (5 mothers and 1 father) had an extremely high rate of sick leave and no such group was seen in the control parents. In addition, the DS mothers stayed at home because of the child’s sickness most frequently and the DS fathers stayed at home for this reason more than control mothers. Conclusions: Existing guidelines for optimal first information and support of new parents of children with DS are not always followed in Sweden. Qualitative clinical improvements from the parents’ perspective are proposed. Most DS parents live an ordinary family life in respect to the measured parameters, but the risk for health deterioration, particularly in DS mothers, might need attention
Active parents-active children : a study among families with children and adolescents with Down Syndrome.
No full textFrom a public health perspective, it is important that children with Down syndrome (DS) lay the foundations of physical activity (PA) early in life to keep active in school, as teenagers and as adults. The aims were to investigate PA patterns in children and adolescents with DS, as well as their parents' and siblings' PA patterns. METHODS: A survey was performed among 310 families with children with DS (54% boys and 46% girls) aged 8-18 years (mean 14.04, SD 3.18) in Sweden. Chi-squared tests and multiple logistic regression were carried out. RESULTS: Nineteen percent of children and adolescents with DS and 34% of the parents were active three or more times per week. The child's PA level was significantly associated with parents' PA (OR = 5.5), siblings' PA (OR = 5.1) and the child's locomotion ability (OR = 3.5). Physically active parents had active children to a greater extent than inactive parents (59% vs. 29%; p < 0.001). CONCLUSIONS: Physically active parents have active children. To promote PA among children and adolescents with DS, it is important to promote and pay attention to the parents' and siblings' PA behavior, as children with DS are dependent on support from the family
Information till föräldrar som fått ett barn med funktionsnedsättning [Elektronisk resurs] : exemplet Downs syndrom
No full textDetta kapitel handlar om arbetet med att utforma riktlinjer för hur man möter och ger stöd till föräldrar som fått ett barn med funktionsnedsätt- ning (Downs syndrom). Tidsmässigt rör det om den första tiden för föräldrarna, om vad som sägs till dem och vad som görs inom förloss- nings- och barnsjukvården. Hur reagerar föräldrarna i den för dem nya, oväntade, okända och sannolikt skrämmande situationen? Vad vill för- äldrarna ha och vad behöver de ha och inte minst vad ges de för initialt omhändertagande? De nya nationella medicinska riktlinjerna har för första gången fått ett eget avsnitt som handlar om just detta första om- händertagande. Avsnittet har sin utgångspunkt i både beprövad erfaren- het och empirisk forskning. Vårdprogrammet presenterades 21 mars 2013. Detta arbete kan också ses som ett exempel på hur man kan ”fånga upp” ett vårdproblem från empirin, processa det genom forskningsprocessen och hur man sedan implementera resultatet åter till empirin
Bättre stöd åt nyblivna föräldrar till barn med livslångt funktionshinder : Förslag till nya riktlinjer
No full textLetter from Rev. Fred Fertig, August 1, 1942
No full textTyped correspondence from Rev. Fred Fertig providing a character reference for Japanese Americans at the Santa Anita Assembly Center.The Bishop James Chamberlain Baker Collection includes letters, documents, and articles about Japanese Americans during World War II. Subjects in the collection include Japanese Americans mass removal, Pearl Harbor and the aftermath, religion, and support from the non-Japanese American community. The collection was digitized and made accessible online by CSUDH Gerth Archives and Special Collections
Citizens behind barbed wire; New Caledonia: a French Australia; Records; Letters to the Editor
No full textPages 649-666 from "The Nation." Articles include "Citizens Behind Barbed Wire" by Charles Inglehart, "New Caledonia: A French Australia" by Ida Treat, "Records" by B. H. Haggin, and "Letters to the Editors."The Bishop James Chamberlain Baker Collection includes letters, documents, and articles about Japanese Americans during World War II. Subjects in the collection include Japanese Americans mass removal, Pearl Harbor and the aftermath, religion, and support from the non-Japanese American community. The collection was digitized and made accessible online by CSUDH Gerth Archives and Special Collections
Postcard from Kantaro and Chiyo Matsubara, March
No full textA postcard from Kantaro and Chiyo Matsubara. It reported that they arrived at Narita Airport on March 15, safely returning from a trip to U.S. "生長の家 = Seicho no Ie."The Fuchita Family Collection contains one photograph album with newspaper clippings compiled by Kuni Yasumura Fuchita. Subjects include the Manzanar incarceration camp, Buddhism, the Koyasan Buddhist Temple, Ikebanas, Japan, and Japanese Americans. Credit line: Japanese American National Museum (Gift of Lynn T. Akamine, 2005.163.25). The collection was digitized and made accessible online by CSUDH Gerth Archives and Special Collections
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