Sarah Lawrence College
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Exploring Perceptions of What Genetic Counseling is Amongst Families Affected by Genetic Conditions, Who Have Not Yet Had Genetic Counseling Themselves
Get PDFThis study aimed to understand the perceptions and expectations that individuals who are affected or who have a genetic condition have about genetic counseling. This was a qualitative study that aimed to improve understanding of the layperson’s perception of genetic counseling using interviews with participants. Interviews were conducted at Cardiff University in Cardiff, Wales. Interview transcripts were analyzed using thematic analysis to identify common themes amongst the participants’ perceptions and to assess where these perceptions differ from professional definitions of genetic counseling. Themes were analyzed using the five dimensions of empowerment. The omnipresent theme among the study was the expectation of achieving emotional regulation from the genetic counseling session. The majority of participants indicated that they expect support from their health care providers and this expectation is even more-so in regards to their genetic counselors. The second pervasive theme among participants is the expectation of achieving cognitive control. Patients seek information about their conditions and about general genetics, many because of lack of knowledge about the field. Data from this study could better shape communications between patients and providers and create realistic expectations about what they should expect when they are referred to genetic counseling. Results from this work could help to resolve misconceptions and stigma the layperson has about genetic counseling
Exploring the Implementation of Non-Traditional / Expanded Training for Genetic Counselors
Get PDFWith over a third of Genetic Counselors working in a Non-Traditional or expanded role, there is no denying that their knowledge and skills are transferable and being increasingly applied to roles outside the clinic. However, as of 2018, the Accreditation Council for Genetic Counselors (ACGC) practice standards require 50 core cases from a clinical setting while placements outside the clinic, such as a laboratory, research studies, or public health settings are considered enhancements, not requirements. Yet, the ACGC also states that “training should reflect current trends in the workplace,” leaving it up to training programs to decide how best to prepare students for the profession. Clinical coordinators from training programs and Hiring Managers for Non-Traditional settings were interviewed to understand their opinions on student training as well as to compare and contrast the opinions of those preparing students to be hired to the expectations of those doing the interviewing and hiring
Barriers of Being Undocumented: Mexican Women, U.S. Immigration Law, and the Reporting of Sexual Assault and Abuse
Get PDFThis thesis explores the difficulties undocumented Mexican women face when reporting sexual assault and domestic abuse. I examine the history of immigration law starting from the enactment of the Immigration Reform and Control Act (IRCA) of 1986 until the beginning of the Trump Administration in 2016. I explore how discourse and rhetoric enforces the criminalization of immigrant groups while also “othering” them from society. I use various court cases to examine the violence immigrant women face and how their vulnerabilities as undocumented immigrants make it even more difficult to report a crime. I also analyze the simultaneous policies that were put in place during this thirty-year time span that were meant to defend immigrant women’s rights. By utilizing interviews with leaders and advocates of different organizations, I am able to fully grasp how even the resources available to immigrant women are limited by barriers of the legal system
