Sarah Lawrence College
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Free Play and Teacher Guided Play – A Nordic Approach
No full textA discussion of possibilities and limitations in free play and teacher guided play, as well as teachers’ roles in various types of play
Assessing The Impact Of Predictive Testing Protocols On Provider Burden For Huntington\u27s Disease
Get PDFPredictive testing for HD creates a potentially significant psychological burden on patients and their families, and in turn, the emotional strain of working with at-risk individuals may take a toll on providers. Protocols have been established by the HDSA that emphasize the importance of genetic counseling and support for individuals undergoing testing. Recently, the HDSA’s guidelines have switched from recommending a 3-visit protocol to a 2-visit protocol. Little is known about the effect of this change on genetic service providers, their practice, their perception of the patient experience, or the impact of their choice of protocol in terms of the burden on providers. This study examined the impact of such testing from the provider’s perspective. Providers involved in the HD predictive testing process at 43 Centers of Excellence across the country were invited to participate in a survey examining protocol use and emotional burden. Of the 54 respondents, 37% reported changing their protocol in light of the HDSA’s recommendations while 33% reported always having used the 2-visit protocol. Almost half (48%, n=26/54) of providers reported having feelings of emotional burden related to their work with predictive testing; the most frequent causes being “emotional overextension” and “exhaustion.” There was no difference in the emotional burden reported by providers who made the protocol switch and providers who did not. This study provides evidence that a 2-visit protocol for HD predictive testing has been widely adopted by practicing providers, and that many providers switched in response to the HDSA’s update to their guidelines. Results also suggest that there is a high emotional burden related to this type of work, regardless of the type of protocol used
Genetic Counseling Approaches To Moderate-Penetrance Breast Cancer
Get PDFATM, CHEK2, and PALB2 are considered to be moderate-penetrance breast cancer susceptibility genes (MPBCSGs). MPBCSG mutation-carriers are predicted to have a lower risk for breast cancer than carriers of mutations in genes such as BRCA1, BRCA2, and other high-penetrance breast cancer susceptibility genes. Ninety-one practicing genetic counselors were surveyed to investigate genetic counselor utilization of the NCCN guidelines and recommendations for carriers of ATM, PALB2, and CHEK2 based on personal and family history of breast cancer. Although the majority indicated that they would follow the guidelines regardless of personal or family history of breast cancer, some genetic counselor recommendations exceeded NCCN guidelines when there was a personal and/or family history of breast cancer for an individual with a MPBCSG mutation. For counselors that said they would exceed the NCCN guidelines, additional recommendations included consideration of risk-reducing mastectomy, bilateral risk-reducing mastectomy, increased screening for relatives, a referral to a breast surgeon, and use of risk models to clarify breast MRI recommendations. Our study is the first to report trends in the field regarding approaches to providing genetic counseling regarding ATM, CHEK2, and PALB2. The results demonstrate that personal/family history of breast cancer is a significant predictor of genetic counselor recommendation
Genetic Counseling Referrals and Genetic Profiles of Male and Young Female Breast Cancer Populations
Get PDFGenetic counselling and genetic testing of breast cancer patients can be helpful in estimating recurrence risks and guiding clinical management. Genetic testing results are useful for family members and their medical decisions as well. However, not all breast cancer patients are eligible for genetic counselling, but must meet eligibility criteria in Ontario to be referred. We studied two groups of patients – male breast cancer patients and young female patients aged 35 or under – who make up of a small subset of overall breast cancer patients. These groups should be offered genetic testing irrespective of family history. They could also potentially represent unique genetic profiles, different from the majority of breast cancer patients. Our study showed that the genetic testing uptake rates were 44% for male patients and 60% for young female patients, respectively. Pathogenic mutation rates were 4% for male patients and 25% for young patients, respectively. Our study demonstrated that 1) genetic referral rates and testing rates are low, and 2) pathogenic mutation rates are different from the general breast cancer population
Sylvia Beach and Les Amies des Livres: The Forgotten Feminist Roots of the Shakespeare and Company Lending Library
No full textIn the vibrant cultural landscape of Paris during the interwar years, Sylvia Beach, the proprietor of the English-language bookshop Shakespeare and Company is often called the “midwife to modernism.” Shakespeare and Company is remembered as an institution that connected the geniuses of the 1920s; Sylvia as the woman who facilitated those connections. This thesis questions this narrative and reconsiders Sylvia Beach and the role she played in modernist, interwar Paris. Through an analysis of Sylvia Beach’s early suffrage work, feminist sensibility, and collaborations with radical French activists, this thesis uncovers the forgotten feminist roots of this space remembered as a headquarters of male literary genius. Much more than a “midwife,” Sylvia Beach created a space that encouraged women to engage in the intellectual public sphere in a way that confronted both economically and socially constructed barriers in post-war France. Through this work she radically changed literary culture forever
A Model for a Progressive Preschool Approach in Ghana
Get PDFIn recent years, Ghana has made strides to meet international mandates for early childhood education. With the implementation of the Early Childhood Care policy in 2004, Ghana has made attempts to provide holistic care for children 0-8 years. This thesis will be two-fold: the first part will consist of the progress Ghana has made in the years since the policy’s implementation in getting children ready for primary(grade) school. The second portion of the thesis is a proposal to the Government of Ghana (specifically, the Ministry of Gender, Children and Social Protection and Ministry of Education) on a preschool approach novel to Ghana that will meet the needs of the modern Ghanaian child. The thesis will provide an overview of the current preschool system in Ghana based on extensive research on the strategies that are in place to meet this goal. The thesis will attempt to analyze the complex challenges and gaps of the current educational policies and practices in place. Based on the information gathered, the thesis will include a progressive preschool model that utilizes the Developmental- Interaction model of education with a social services component that has the needs of the family central in its focus
