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Sjim Romme - PhD project data for study 5.
No full textTitle
How to train patients for participation in quality improvement of care.
Abstract
Objectives
Patient and public involvement is regarded as vital in fostering high-quality care. While involvement has clear societal advantages, it is still widely viewed as tokenistic and surrounded by issues of representation. This study aims to understand how patients and informal caregivers can be trained to become patient partners who use their experiential expertise to contribute to quality improvement on a collective level.
Design
Using an action research approach, the Patient As a Person Academy, a 15-week training programme for patients and informal caregivers, was developed, tested, and evaluated in three development cycles. Evaluation methods varied per cycle and included open-ended questionnaires (N=27), semi-structured interviews (N=35), and agile evaluation sessions of all 15 training sessions.
Setting and participants
We purposively sampled patients and informal caregivers who had prior experience in patient and public involvement. Patients and informal caregivers who participated as patient and partner educators in health professions education in The Netherlands could participate
Intervention
Participants followed the Patient As a Person Academy, a 15-week training programme that prepares patients and informal caregivers to become patient partners.
Results
Participants reported that the Patient As a Person Academy’s focus on self-management skills, understanding healthcare professionals’ perspectives, and communication skills helped them engage in meaningful dialogue with healthcare professionals as patient partners and made them more confident in their roles. However, tailoring towards individual participants’ levels of acceptance of illness and reflexivity was needed. Participants reported that, next to the training programme, peer-to-peer coaching and guidance towards roles in quality improvement initiatives would be necessary to optimise their contributions.
Conclusions
Initiatives like the Patient As a Person Academy may alleviate the problems of tokenism in patient and public involvement. However, extensively preparing patients and informal caregivers does raise issues around representation.
Data index
The study contained 35 individual interviews and one questionnaire:
Folder name -.> Description
Transcripts pre-interviews cohort 2 -> Contains the transcripts of sixteen individual pre-interviews of the second cohort following the PAP-Academy
Transcripts post-interviews cohort 2 -> Contains the transcripts of fifteen individual post-interviews of the second cohort following the PAP-Academy
Transcripts postaction-interviews cohort 2 -> Contains the transcripts of four individual post-interviews of the second cohort following the PAP-Academy, six months after concluding the PAP-Academy
Open-ended questionnaire -> Contains the Excel-file with the data used in the questionnaire participants filled out six months after participating in the PAP-Academy<BR
Gemeente-, wijk- en buurtcodes van aanvullende verblijfsobjecten
No full textDeze component geeft een koppeling tussen overige objecten (RINOBJECTNUMMERs) en de gemeente/wijk/buurt waartoe dit object behoort (GWBCODENIETVSL_A). Overige objecten betreffen objecten die niet voorkomen in de Basisregistratie Adressen en Gebouwen (BAG) en geen historisch nummer hebben gekregen.
Werknemersenquête met informatie over werknemers in de zorg- en welzijnssector
No full textIn de werknemersenquête (WNE) wordt informatie verzameld over werknemers die werkzaam zijn in de zorg- en welzijnssector. Het gaat daarbij om informatie over arbeidskenmerken zoals het aantal uren dat men werkzaam is en het beroep dat men heeft. Daarnaast gaat het over de thema's scholing en vaardigheden, en gezond en veilig werken. Het onderzoek wordt twee keer per jaar uitgevoerd, een aantal kernvragen komt in elke meting terug, andere onderwerpen eens per jaar of worden per meting bepaald. Het CBS voert dit onderzoek uit in opdracht van het ministerie van Volksgezondheid, Welzijn en Sport (VWS) voor het onderzoeksprogramma Arbeidsmarkt Zorg en Welzijn (AZW). In het AZW programma worden tien branches onderscheiden
Werknemersenquête met informatie over werknemers in de zorg- en welzijnssector
No full textIn de werknemersenquête (WNE) wordt informatie verzameld over werknemers die werkzaam zijn in de zorg- en welzijnssector. Het gaat daarbij om informatie over arbeidskenmerken zoals het aantal uren dat men werkzaam is en het beroep dat men heeft. Daarnaast gaat het over de thema's scholing en vaardigheden, en gezond en veilig werken. Het onderzoek wordt twee keer per jaar uitgevoerd, een aantal kernvragen komt in elke meting terug, andere onderwerpen eens per jaar of worden per meting bepaald. Het CBS voert dit onderzoek uit in opdracht van het ministerie van Volksgezondheid, Welzijn en Sport (VWS) voor het onderzoeksprogramma Arbeidsmarkt Zorg en Welzijn (AZW). In het AZW programma worden tien branches onderscheiden
Food Frequency Questionnaire (FFQ)
No full textA food frequency questionnaire (FFQ) consists of a finite list of foods and beverages with response categories to indicate usual frequency of consumption over the time period queried
Dutch Reactive and Proactive Aggression Questionnaire (DRPI)
No full textThe Dutch Reactive Proactive Aggression Questionnaire (DRPI) consists of 23 items that measure different types of aggression through two subscales: Proactive and Reactive aggression
Professional ambition and future expectations
No full textProfessional ambition and future expectations is a self-developed assessment of professional ambitions (e.g., in which sector to work, important components of a future job) and expectations for the future (e.g., what is the probability of having a job or kids in ten years)
Self-Report of Aggression and Social Behavior Measure (SRASBM)
No full textThe Self-Report of Aggression and Social Behavior Measure (SRASBM) assesses perpetrators and victims of proactive and reactive forms of overt and relational aggression. It includes nine subscales: Physical aggression total, Physical aggression proactive ("I try to get what I want by physically threatening someone."), Physical aggression reactive ("When someone really upsets me, then I push or punch that person."), Relational aggression total, Relational aggression proactive ("Others know I will not like them if they don’t do what I want."), Relational aggression reactive ("If i can’t participate in an activity of others, then they can’t participate when I’m doing something."), Victim total aggression, Victim relational aggression ("Others ignore me or pretend they don’t know me when they are mad at me"), and Victim physical aggression total (Others push me or punch me when they’re mad at me.)
Pubertal Development Scale (PDS)
No full textThe Pubertal Development Scale (PDS) assesses the development of secondary sexual characteristics, such as growth spurts, body hair growth, skin changes, breast development and menarche in girls, and voice changes and growth of testes in boys
Prosocial Cyberball Game (PCG) - Owl task
No full textThe Prosocial Cyberball Game (PCG) measures prosocial behavior related to empathy when seeing that someone is being socially excluded. In the game, children play a (digital) ball-tossing game with peers. In the first block of the game, all children typically receive the ball an equal amount of time. In the second block of the game, one of the peers is systematically ignored by the other peers (never receives the ball). Participants have the option to show empathy by throwing the ball to the ignored player more often. The increase in the amount of throws from the first block to the next is then measured