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Facilitating Equitable Subacute-to-Home Transitions for Patients Receiving Palliative and/or End-of-Life Care: A Literature Review
Introduction: As people in subacute facilities approach the end of life, the focus of their care often shifts to comfort as they seek to return home. Interventions that aim to improve hospital-to-home transitions do not generally focus on subacute care. Objective: To summarize the existing literature on subacute-to-home transitions for individuals receiving palliative care near the end of life, and to explore whether these interventions are targeted toward marginalized groups to improve their transition experience. Methods: We searched the MEDLINE, Embase, HealthSTAR, and Cochrane Library electronic databases using terms related to end of life, palliative care, and transitions from subacute facilities to home. We identified 896 records and included 29 articles, 11 of which were intervention articles. We searched the 11 intervention articles for equity stratifiers. Results: Of the 29 included articles, four addressed transitions for end-of-life populations, three discussed family caregiver perspectives, and 11 were intervention studies, including regular home visit follow-ups, individualized transition care plans, and an individualized intervention with an advanced practice nurse. Subacute-to-home interventions showed positive outcomes such as reduced risk of hospital readmissions, reduced length of stays, and improved functional status. However, study limitations included small sample sizes, inconsistent definitions of outcomes, and incompletion due to COVID-19. No studies focused on marginalized groups. Conclusion/Discussion: While there was some literature supporting targeted interventions for subacute-to-home transitions for those receiving palliative care or end-of-life care, the included interventions did not target marginalized groups. Further research in these areas is required.
Child Rights and Well-Being in Nova Scotia: A Critical Conversation
Childhood lays the foundations for lifelong health and well-being. Children and youth have a fundamental right to have their needs met and to have their health and well-being considered a priority. Nova Scotia is one of the last provinces in Canada to create an independent body focused on asserting and protecting children‘s rights. At present, legislation in support of an independent Child and Youth Commission (CYC) is being considered to monitor child rights and engage young people in conversations about the things that matter to them. On November 18, 2022, and in recognition of National Child Day, a “Fishbowl Conversation” panel presentation was convened, with the panel held in-person at Dalhousie University and an audience participating online. The panel engaged in a critical conversation about ongoing work in Nova Scotia aimed at addressing child rights and well-being, for the purpose of guiding the work of a CYC. This commentary article summarizes the recommendations from this panel, unifying the work from various reports and initiatives addressing child rights in the province
Virtually Prioritizing a Community\u27s Needs: What Would Make it Easier for People who are Experiencing Homelessness to Manage Their Diabetes?
Introduction: During the pandemic, a group of people with lived experience (co-researchers) was convened for a community-based participatory research (CBPR) project in Calgary, AB that aimed to explore and address barriers to managing diabetes while experiencing homelessness. The group met bi-weekly using a videoconferencing platform on internet-enabled tablets. Objectives: Our aim is to explain the process we undertook to virtually engage in priority setting to identify a research priority for the CBPR project. Methods: Co-researchers participated in 17 focus group discussions about barriers to managing diabetes while experiencing homelessness, following which they were asked to brainstorm responses to the question, “What would make it easier for people who are experiencing homelessness to manage their diabetes?” In subsequent meetings, the responses were grouped to form categories. From those, the group chose the priority using a modified nominal group process, which involved sequentially ranking, then rating the categories. Ranking involved picking 1st, 2nd, 3rd and 4th choices, and rating involved distributing 0 to 10 points amongst the categories. Results: Seven categories were formed: Healthcare; Screening for Diabetes; Housing and Shelter; Access to Medications and Supplies; Healthy Food; Diabetes Awareness; and Diabetes Education. Among these, Diabetes Awareness was given the most votes during the ranking and the most points during the rating exercises. Therefore, this is the topic our research will be focused on. Conclusion: We will conduct research for the purpose of increasing diabetes awareness, among shelter staff specifically, and use forum theatre and a short narrative film to share the findings
Acknowledgements
Thank you to all the reviewers, authors, and readers of HPJ!
A special thank you to Dr. Sara Kirk and Dr. Cecilia Carrea at HPI for their continued support of HPJ.
Funding Support
Healthy Populations Institute
Dalhousie Research Centres and Institutes Next Wave Fund
Editorial Board
Co-Editors in Chief:
Christie Stilwell Stephanie Zubriski
Managing Editor:
Julia Kontak
Section Editors:
Brittany O’Shea, Megan White
Editorial Board:
Dr. Hilary Caldwell, Dr. Phillip Joy, Laura J Kennedy, Crystal Watson, Helen Wong, Joshua Yusuf
Copy Editor
Georgia Atkin
Communications
Megan Fleming
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