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Decision-making in case of an unintended pregnancy: an overview of what is known about this complex process
No full textUnintended pregnancies are a worldwide health issue, faced each year by one in 16 people, and experienced in various ways. In this study we focus on unintended pregnancies that are, at some point, experienced as unwanted because they present the pregnant person with a decision to continue or terminate the pregnancy. The aim of this study is to learn more about the decision-making process, as there is a lack of insights into how people with an unintended pregnancy reach a decision. This is caused by 1) assumptions of rationality in reproductive autonomy and decision-making, 2) the focus on pregnancy outcomes, e.g. decision-certainty and reasons and, 3) the focus on abortion in existing research, excluding 40% of people with an unintended pregnancy who continue the pregnancy. We conducted a narrative literature review to examine what is known about the decision-making process and aim to provide a deeper understanding of how persons with unintended pregnancy come to a decision.Our analysis demonstrates that the decision-making process regarding unintended pregnancy consists of navigating entangled layers, rather than weighing separable elements or factors. The layers that are navigated are both internal and external to the person, in which a ‘sense of knowing’ is essential in the decision-making process. The layers involved and complexity of the decision-making regarding unintended pregnancy show that a rational decision-making frame is inadequate and a more holistic frame is needed to capture this dynamic and personal experience
Oud, ouder, oudst:Podcast - Op je gezondheid
No full textHeeft eenzaamheid effect op de gezondheid? En wat zou het hebben van het eeuwige leven betekenen voor ons welzijn
Expanding the quality of life paradigm:Contributions from the field of disability studies
No full textThis article considers the contributions from the field of Disability Studies to the conceptualization of Quality of Life (QOL) for people labelled with Intellectual Disability (ID). We suggest four elements from the field of Disability Studies that may be incorporated into an evolving QOL paradigm. The first element concerns the meaning of disability itself. Those working in contemporary Disability Studies identify societal obstacles and points of inaccessibility as sources of disablement while also recognizing the experience of difference. We suggest this understanding of disability as an interaction between a person and the social world/environment may be included more explicitly in QOL conceptualization. A responsive and adaptable definition of disability in the QOL paradigm is recommended. The second element is the recognition of relationality. The field of contemporary disability studies challenges the value of considering a person's disability as a solitary medical experience and questions the goals of independence, instead considering the value in interdependence and community. This could be included in the QOL paradigm by further emphasizing the importance of relationships and contributions of those labelled with ID. The third element is participatory design and epistemic justice, making space for people labelled with ID to contribute to research and direct the course of their own lives and supports. This element of self-determination is important to QOL but an increase in participatory research, service, and support design in the field is recommended. The final element is intersectionality, the idea that the experience of disability must be understood in the context of other points of identity or marginalization such as race, gender, and sexuality. We recommend that the QOL paradigm should allow for these additional elements to be included in further design and research in the field
'The Ball of Cooperation Rolls on':Some Personal Reflections on My Experiences as a Researcher
No full textPeople with disabilities are increasingly actively involved within research projects. For many of them this is a temporary role, but some work on longer-term projects and even build a career out of it. This is the case for the first author of this paper. He has worked as a researcher for almost six years. He is involved in various projects, all highly diverse in terms of subject, design, scope and collaboration with fellow researchers. In this paper, he looks back on his experiences in recent years. Together with colleagues, he reflects on his contribution to the various projects, his own development as a researcher and the impact of the work on his personal life. He finds that the essence of the motto ‘Nothing about us, without us’ has become increasingly intertwined with his life and identity through his work
De Zin van Resonantie voor Ecohumanisme
No full textDit artikel kreeg zijn eerste vorm in een engelstalige presentatie die ik gaf aan het Max Weber Kolleg (MWK), 17 april 2023. Het doel was tweeledig: allereerst, een inleiding geven in academische studies over humanisme, zoals het onderzoeksprogramma van de Universiteit voor Humanistiek (UvH) betracht; tegelijkertijd poogde ik te laten zien hoe het onderzoek van het MWK resoneert met deze humanismestudies. Dit veronderstelde weinig kennis van het humanisme (allerminst in relatie tot de praktijken van geestelijke verzorging), maar oppervlakkige kennis van Resonantie (2019) werd wel verondersteld. Voor degenen die een uitstekende inleiding tot Rosa’s oeuvre nodig hebben, raad ik aan het artikel van Frederic Vandenberghe in een eerdere editie van Waardenwerk (2022) te lezen. In deze bijdrage breid ik de responsieve relationaliteit uit Hartmut Rosa’s Resonantie (2019) uit naar het denken over Ecohumanisme – naar leven als ‘Aardbewoners in het Antropoceen’, in Latouriaans jargon. Ik doe dit (1) door humanisme te conceptualiseren en de ambiguïteiten van ‘zin’ te verkennen, (2) door resonantie te interpreteren in lijn met existentiële-fenomenologie, als een filosofisch antropologisch kader dat deze uitdagingen adresseert, en (3) door te engageren met humanistische zorg voor ‘ecologische rouw’. Dit stelt me in staat de implicatiesvoor een eco-humanistisch wereldbeeld te ontwikkelen
Opinie: Mensenrechten voor mensen met beperking draait om zo veel meer dan belegde boterhammen
No full textRemarks on The Music of Theology
No full textIn this response to The Music of Theology (2024), I remark upon three dimensions of the way of thinking theology set out by the authors. Firstly, I question the relationship between freedom and unfreedom they attribute to the aesthetic experience - because the theme of power is underdeveloped, I argue that the risk of being bound by undefined forces is greater than they show. Secondly, I show that their conceptualisation of resonance is more encompassing and ultimately convincing than Rosa's, because of the way they relate silence to sound. Finally, I show that the experience of music they operate under is private; focussing on the experience of live music might give a more thorough, relational understanding of music's foundational sharing
Perspectives on dying in severe and enduring eating disorders (SEEDs): A qualitative study among Dutch mental healthcare providers
Get PDFDying of severe and enduring eating disorders (SEEDs) was studied using semi-structured interviews (n = 7) and a follow-up videoconferencing focus group (n = 3) with Dutch mental healthcare providers. We identified three main themes: the uncertainties of dying from SEEDs, dilemmas in defining treatment resistance and palliative care, and suicidal ideation and intent. There were two contrasting perspectives on good care, both centering on the patient. While mental healthcare providers strive toward healthy living, palliative care strives toward quality of life and dying. Clarifying underlying concepts enables flexibility in applying these perspectives to optimize individual patient care
The Dignity Circle:Towards a non-ideal approach of social dignity in the context of marginalisation and care
Get PDF‘I’m a fighter and I do not give up’:– Socially isolated older adults’ experiences with meaning in life.
Get PDFPositively experienced relationships with family, partners and friends are the most important source of meaning in life for older persons. At the same time, Western countries are confronted with a growing number of socially isolated older adults who lack those relationships. This study aims to explore whether and how older adults who live in social isolation experience meaning in life. Data were collected via in-depth, semi-structured interviews with 24 socially isolated older adults, ranging in age from 62 to 94, all living in Rotterdam, The Netherlands. The criterion-based sampling of participants took place in close consultation with social workers of a mentoring project for socially isolated older adults. Follow-up interviews with 22 participants improved the credibility of findings and contributed to the breadth and depth of the researched casuistry. Data were analysed using an analytical framework based on seven needs of meaning identified by Baumeister (purpose, values, efficacy, self-worth) and Derkx (coherence, excitement, connectedness). The study demonstrates that isolated older adults may find anchors for meaning in life, although not all needs for meaning are satisfied, and there can also be tension between different needs. The needs-based model provides concrete distinctions for enabling care-givers to recognise elements of meaning