University of Humanistic Studies OAI Repository
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Meaning in Life and Social Connectedness
No full textAnja Machielse explains the concept of meaning in life and the importance of social connectedness to the process of meaning-making in old age. Using “belongingness theory”, she clarifies the vital role interpersonal relationships play in personal life and how they contribute substantially to the capacity to make sense of one’s life. However, changes in older people’s lives may affect their experience of meaningfulness and their social needs. The confrontation with adverse life events in various areas has implications for all dimensions of meaning in life and leads to a greater need for emotional closeness. But whereas the need for profound, close relationships increases, the opportunities for maintaining relationships are fewer, and the risk of social, emotional, and existential loneliness increases. Since people who lack meaningful relationships also lose meaning, Machielse emphasizes the importance of social recognition and acceptance of older adults from the wider environment and society. Meaningful aging presupposes a social environment or humane society where older people feel included and accepte
The social fabric of voluntary and community initiatives:On crafting space for meaningful relationships
Get PDFThe publication The social fabric of voluntary and community initiatives reflects on the role that voluntary and community initiatives can play in pressing societal issues. How do they contribute to such a social fabric? The publication is based on the ethnographic research of the University of Humanistic Studies. The most important insight is that voluntary and community initiatives do not simply strengthen social fabrics but perform the ongoing work of crafting space within these fabrics for something meaningful to emerge. Simply bringing people together does not automatically add value to people’s life. Among the support and activities in for example community centers, attention is needed to foster meaningful relationships. The publication is a special edition associated with Growing Older Together a development program of NOV (Association of Dutch Volunteer Organizations) in which older people are the resource to improve health and wellbeing
How to provide existential and spiritual support to people with mild to moderate dementia and their loved ones. A pilot study.
No full textThis dataset is for replication and follow-up research purposes. It consists of all key documents from data collection to data analysis of the research project. See the readme document for the relevant procedure and document description
The SEE ME-trainingstoolkit:From shortages to talents in elderly care
Get PDFZorg voor ouderen is meestal gericht op medische en fysieke aspecten, maar ouder worden brengt ook sociale, culturele en spirituele veranderingen met zich mee. Een breed perspectief op ouderenzorg is noodzakelijk, met aandacht voor de talenten en behoeften van ouderen. Het SEE ME-project ontwikkelde een trainingstoolkit die zorgverleners helpt om de persoon achter de oudere te ZIEN
Fostering collaborative moral learning in residential care for people with intellectual disabilities: The role of art and boundary work
No full textConducting participatory action research (PAR) with people with and without intellectual disabilities presents challenges, primarily due to participants’ varying verbal expression and reflective thinking abilities, leading to potential power imbalances and unfair outcomes. This study investigates using the arts to address these issues in a residential care setting. We specifically chose to collaborate with an artist who maintained an autonomous artistic practice on the research site. This collaboration, occurring at the intersection of the arts, academia, and the residential care context, presented new opportunities and challenges, and thus demanding extensive ‘boundary work.’ In this article we address the fieldwork challenges we encountered to deepen the understanding of two interrelated questions: how can the arts stimulate equitable, collaborative moral learning processes between individuals with and without intellectual disabilities? And what kind of boundary work is required to facilitate these processes within the context of residential care for people with intellectual disabilities? This study confirms that the use of the arts can have an emancipatory effect on knowledge production by making abstract questions tangible and offering embodied ways to engage in meaning-making processes. We underscore the moral dimensions of these endeavours. Noticing that embodied reactions depend on others to move beyond the here-and-now, boundary work and a shared problem definition are indispensable. This study stresses that within the context of a residential care setting, boundaries exist not only between the fields of arts and the care organization but also within the care organization itself
Lesson plan social inclusion and the UN Convention and people with mild to severe intellectual disabilities
No full textOpinie: Mensenrechten voor mensen met beperking draait om zo veel meer dan belegde boterhammen
No full textInterfaith Collaboration:Boundary Crossing in a Participatory Action Research Project with Health Care Chaplains in The Netherlands
No full textThis article explores the challenges faced by a multifaith chaplaincy team in a Dutch health care organization when searching for a shared professional identity regarding the role of worldview and religion. Using boundary theory, we show how the diverse worldviews and the contradictory visions on their role for chaplaincy’s professional identity led to misunderstandings and conflict. However, open and respectful dialogue about these differences helped clarify disagreements and identify common ground. The findings suggest that in secular contexts worldview remains significant in chaplaincy and that engaging in dialogue about worldviews and seeking connections across differences is the basis for a shared professional identity
Working Hard to Be Normal: The Social Dynamics of Social Inclusion
No full textIn deze bijdrage levert Bredewold een beschouwing op het boek Hard Werken om Normaal te zijn van Jaap Olthof
“I like it when you feel you can discuss things”::A qualitative study on sharing medical care for children with profound intellectual and multiple disabilities.
No full textIn the Netherlands, many parents of children with profound intellectual and multiple disabilities care for their children at home. Little is known about how parents and involved healthcare professionals share and align medical care for these children. This study aims to contribute to a better understanding of the dimensions that affect how medical care is shared and how healthcare professionals can align care with family needs. The study design was inspired by grounded theory. We analyzed in-depth interviews with 25 Dutch parents. The analysis identified five dimensions affecting how parents and professionals shared and aligned medical care: fragility, planned care, irregularities, interactions with providers, and parents’ choices. We recognized three distinctive ways these dimensions interplayed, characterizing scenarios of sharing care: dependent care, dialogical care, and autonomous care. The findings illuminated that parental distress decreased when parents could communicate about what they considered important for their child and family and its implications for sharing care. Parents developed their capacity to manage medical care and often evolved in their thinking about the quality of care and life. Sometimes this evolution was due to struggles with the care provided by professionals. Therefore, healthcare professionals may need to broaden the relational work of shared decision-making to include the sharing of medical care. Arrangements need to be continually reassessed as changes in the child’s and family’s situation trigger changes in preferred patterns of sharing care. Commitment to parents’ autonomy implies that healthcare professionals should be attentive to the parents’ emotional and relational needs