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‘We willen hier nooit meer weg’:Een onderzoek naar ervaringen met sociale contacten en zingeving in seniorenwooncomplexen te Bennekom, Wageningen en Rotterdam
Get PDFDe Nederlandse overheid stimuleert dat ouderen zo lang mogelijk zelfstandig blijven wonen en de meeste ouderen willen dat zelf ook. Om in de behoefte aan zelfstandige woonruimte te voorzien kent Nederland een groot aantal wooncomplexen die specifiek voor ouderen zijn bedoeld. Deze complexen beschikken vaak over extra voorzieningen, zoals een gemeenschappelijke ruimte waar bewoners elkaar kunnen ontmoeten en deel kunnen nemen aan gezamenlijke activiteiten.Dit onderzoek richt zich op de vraag wat er gebeurt in je leven als je de stap zet van het huis waarin je zo lang woonde, wellicht met je gezin, naar een appartement binnen een seniorencomplex. En als je er eenmaal woont, hoe ga je dan om met de spanning tussen de autonomie waarnaar je verlangt en de verbondenheid waaraan je behoefte hebt
Lived Experiences of Public Disability Representations: AScoping Review
No full textResearch has largely focussed on public perceptions of people with disabilities, particularly in the media. However, there is a lack of studies exploring how individuals with disabilities themselves experience public disability representation. This scoping review examines the lived experiences of individuals with disabilities regarding such representations. Eligible studies were peer-reviewed, published between January 1948 and July 2024, and presented qualitative findings on experienced public disability representation. A systematic search was conducted across PubMed, Scopus, ProQuest, OVID, EBSCO, and Webof Science using variations of the terms ’representation’ and ‘disability’, yielding 32 relevant studies. Data were analysed using both deductive and inductive methods. Deductive thematic analysis aligned the findings with two established media disability representation typologies: traditional and contemporary. Inductive thematic analysis identified three key themes—ignorance, incapability, and otherness—that illustrate how individuals with disabilities experience public representations. Overall, the review found that despite the absence of comparative studies, individuals with diverse disabilities report similar, predominantly negative experiences of public disability representation. Future studies should adopt an intersectional, cross-disability framework to better capture the experiences of people with disabilities, including those with intellectual disabilities.Research has largely focussed on public perceptions of people with disabilities, particularly in the media. However, there is a lack of studies exploring how individuals with disabilities themselves experience public disability representation. This scoping review examines the lived experiences of individuals with disabilities regarding such representations. Eligible studies were peer-reviewed, published between January 1948 and July 2024, and presented qualitative findings on experienced public disability representation. A systematic search was conducted across PubMed, Scopus, ProQuest, OVID, EBSCO, and Web of Science using variations of the terms ’representation’ and ‘disability’, yielding 32 relevant studies. Data were analysed using both deductive and inductive methods. Deductive thematic analysis aligned the findings with two established media disability representation typologies: traditional and contemporary. Inductive thematic analysis identified three key themes—ignorance, incapability, and otherness—that illustrate how individuals with disabilities experience public representations. Overall, the review found that despite the absence of comparative studies, individuals with diverse disabilities report similar, predominantly negative experiences of public disability representation. Future studies should adopt an intersectional, cross-disability framework to better capture the experiences of people with disabilities, including those with intellectual disabilities
Getting To(wards) Know(ing) Together:An Innovative Collaborative Approach in Residential Care for People with (Severe) Intellectual Disabilities and Behaviour That Challenges
No full textPeople with moderate to severe intellectual disabilities (M/S ID) and behaviour that challenges are still almost exclusively encountered and understood within a highly specialized professional care system context. They are almost invisible in the societal mainstream, where a wider variety of perspectives on (everyday) manners, encounters, relationships and life applies. These (and other) exclusionary dynamics render everyday relations with residents with M/S ID whose behaviours challenge still largely dependent on the interpretative frameworks and actions of professionals. Professionals are trained and socialized within highly specialized professional care system contexts, despite a growing scientific and professional awareness that behaviour that challenges is a multifaceted and contextual phenomenon. In this paper, we report on a pioneering initiative (titled Project WAVE) which aimed to cultivate a fresh and comprehensive approach to behaviours that challenge within stagnant care practices. Our goal was to foster an innovative collaborative paradigm by facilitating an extensive and enduring exchange between "insiders"-professionals of specialized care system contexts-and "outsider-researchers"-individuals socialized through alternative avenues. We present our epistemological and methodological approach, the data collection process (a multiple case-informed community of practice), and the most important lessons learned
Unveiling life stories about social justice for individuals with intellectual disabilities:A case study of Nazi’s eugenic practices
No full textThis paper unveils the story of Wilhelm, an individual with intellectual and physical disabilities in the context of eugenics practices during the Nazi regime. The findings of the singular case study are presented in a storytelling format, for contextual understanding, and to help everyone better comprehend the challenges faced by individuals with intellectual disabilities. Wilhelm’s story has been discussed through the lens of social justice shaping his world into one in which violence was justifiable. Lessons have been drawn to advocate for ongoing evaluation of social justice concepts, guided by criteria that reflect the realities and voices of the individuals involved. Additionally, we seek to enhance possibilities to unveil stories and honor the memory of individuals with intellectual disabilities who endured the atrocities of the Nazi era
Cybernetic Capitalism:A Critical Theory of the Incommunicable
No full textCybernetic Capitalism presents a groundbreaking synthesis of Niklas Luhmann's systems theory and critical theory. Overwijk examines how neoliberal capitalism now thrives on the management of incommunicability rather than the pursuit of total communicability, harnessing ecological complexity as its driving force. Contrary to earlier critiques that highlighted capitalism's push to render all social life fully communicable, the current era encourages market incalculability, profits from user unpredictability, and spurs service workers' creativity.This ecological logic resonates with the extractivist drive of the Anthropocene, reframing our understanding of capitalism as an adaptive, environment-attuned system. Cybernetic Capitalism also exposes how these dynamics intersect with the cultural rise of conspiracy theories and radical-right irrationalism. By illuminating capitalism's paradoxical reliance on both rationalist and irrationalist currents, Overwijk provides a vital new lens for interpreting the complex politics of our tim
Spiritual Needs and Concerns of Infertility Patients:A Literature Review
No full textUndergoing infertility treatment greatly impacts people in every dimension of life, including their spiritual existence. Spirituality is an intrinsic part of human existence and comprises three essential attributes and two common qualities. The three key attributes are: (I) transcendence, (II) connectedness to self, others and the world, and (III) the human search for meaning and purpose. The two qualities that distinguish spirituality are (1) the capability for change and evolvement and (2) a personal way of ‘being in the world.’ However, very little attention has been paid in research to the specific spiritual needs of infertility patients. We conducted a narrative literature review to examine what is known, with the aim of coming to a thorough understanding of the spiritual concerns of patients of fertility clinics. Based on the search criteria, 48 studies from around the world were included. We found that spiritual concerns of infertility patients occur in the midst of life as it is lived. Analyzing the literature shows how the three attributes of patients’ spirituality change profoundly, while the two qualities are revealed in the fluidity and open-ended nature of this change. We describe this change as the unraveling of the experienced unity of life. We conclude that current literature lacks a framework that looks at humanity as existing in and through relations. This would enhance the understanding of the spiritual needs of infertility patients
