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Research Ethics - Ethical Principles
Dr Helen Kara, NCRM visiting fellow, in the second (of three) part of the ‘Research ethics: theory and practice’ NCRM online course.
This video is part of the online learning resources from the National Centre for Research Methods (NCRM). To access the supporting materials (presentation slides, datasets, recommended reading, links to related publications and resources) visit https://www.ncrm.ac.uk/resources/online/research_ethics_theory_and_practice
Creative Research Methods - Technology and mixed methods research
Dr Helen Kara, NCRM visiting fellow, in the second (of three) part of the ‘Creative Research Methods’ NCRM online course.
This video is part of the online learning resources from the National Centre for Research Methods (NCRM). To access the supporting materials (presentation slides, datasets, recommended reading, links to related publications and resources) visit https://www.ncrm.ac.uk/resources/online/research_ethics_theory_and_practice
MethodsNews Newsletter 2017: 2
In this issue:
1. What do we know about mixed-device online surveys in the UK?
2. Diary methods: voyages into the interior
3. New methods for tracking immediate audience reaction to performances
4. Complex social survey data designs
5. Researching approaches for education in the digital age: digital tethering and digital métissage
6. Missing biomarkers in biosocial data
7. Talking to autistic students in transition: collages, card sorts and walking interviews
8. NCRM training and event
Creating a synthetic spatial microdataset for zone design experiments
New forms of administrative and linked data containing high levels of attribute and spatial detail present increased risks of information disclosure about individuals, potentially enabling identification. Evaluation of disclosure risk using real data is not feasible, as disclosive record-level data are understandably not accessible for such research. This paper details development of a synthetic microdataset for England and Wales with a realistic distribution of household locations and individual characteristics. Data for the study comes from the England and Wales 2011 Census and are combined from multiple tables and sources to arrive at the final dataset. Our motivation for this work is exploit the synthetic dataset for assessment of alternative automated zone design solutions, with the eventual aim of improving researcher access to the most useful data while minimising disclosure risk. However, the synthetic microdataset, and the methodological approach used to produce it, potentially have wider utility than our automated zone design research. This working paper documents the generation of our synthetic dataset in a way intended to benefit others needing to conduct experiments on a non-disclosive population microdataset
The poetic autoethnographies
http://www.ncrm.ac.uk/research/IVES/
Dr Helen Johnson (University of Brighton) talks about the Poetic Autoethnographies project and the NCRM IVES (International Visitor Exchange Scheme) bursary that helped to fund the research
Creative Research Methods - Transformative adn Indigenous research
Dr Helen Kara, NCRM visiting fellow, in the third (of three) part of the ‘Creative Research Methods’ NCRM online course.
This video is part of the online learning resources from the National Centre for Research Methods (NCRM). To access the supporting materials (presentation slides, datasets, recommended reading, links to related publications and resources) visit https://www.ncrm.ac.uk/resources/online/research_ethics_theory_and_practice
MethodsNews 2017: 3
In this issue:
1. Methods in 2017
2. Ethics in social media research: where are we now?
3. Innovations in measuring household finances
4. Creating the Anonymisation Decision-making Framework
5. Creative methods in longitudinal research with young
people
6. Probing of “Don’t Know” responses in surveys
7. The role of the proxy ethnographer: a step too far?
8. NCRM training and events 2017/201
Cognitive development in children up to age 11 years born after ART - a longitudinal cohort study
Since the first IVF baby was born in 1978, there has been a rapid increase in ART use, with more than 5 million children conceived to date (Präg and Mills, 2015). This has raised questions regarding the long-term impacts of ART on offspring. Results to date remain highly contradictory. Many studies report an increased risk of an impaired behavioural, socio-emotional and cognitive development (Sutcliffe and Ludwig, 2007; Hart and Norman, 2013a; Spangmose et al., 2017) and mental disorders (Svahn et al., 2015) in ART children. Some studies have found a delay in cognitive development of ART offspring, particularly with ICSI children (Knoester et al., 2008; Goldbeck et al., 2009). ART offspring have higher risks of adverse birth outcomes, such as low birthweight (LBW), preterm delivery and birth defects (van Balen, 1998; Romundstad et al., 2008; Wilson et al., 2011; Hansen et al., 2013; Hart and Norman, 2013a; Kondapalli and Perales-Puchalt, 2013; Präg and Mills, 2015). Higher risks of poor health at birth are partially related to the higher incidence of multiple births, a historical consequence of ART (Pison et al., 2015). A series of systematic reviews have concluded, however, that there are no developmental differences between ART offspring and those from a natural conception (NC) once perinatal problems such as preterm birth, LBW and birth defects are taken into account (Wilson et al., 2011; Pandey et al., 2012; Hansen et al., 2013).
Others have likewise found no differences in the cognitive, motor and language development of 2-year-olds (Balayla et al., 2017) and in the intellectual development of 5-year-olds (Ponjaert-Kristoffersen et al., 2004), cognitive outcomes in 3 and 5-year-olds (Carson et al., 2009, 2011), mental health and developmental outcomes at age 7–8 years (Carson et al., 2013; Punamaki et al., 2016), overall, verbal and IQ cognitive ability in 8–10 year-olds (Leunens et al., 2006, 2008) or in academic performance of adolescents (Spangmose et al., 2017). Other studies have found not only comparable but also even higher mental health and socio-emotional development of ART children (Wagenaar et al., 2008, 2009; Mains et al., 2010; Hart and Norman, 2013b).
Research to date has generally examined development in different age groups in isolation, rarely scrutinising how differences in cognitive development in ART versus NC children develop over time. Cognitive ability during childhood has been shown to be a pivotal determinant of adolescent and adult outcomes such as educational attainment, earnings, and also crime, participation in risky behaviour, depression and teenage parenthood (Feinstein, 2003; Heckman, 2007). These studies have underlined the importance of looking at progression across different stages of childhood rather than one point in time (Heckman, 2006; Ermisch, 2008; Cunha et al., 2010). Some studies have suggested that infertility and conception via ART may have stronger detrimental impacts in early childhood, related to elevated anxiety, delayed mother–infant attachment, diminished maternal confidence and overprotecting parenting (Bernstein, 1990; Golombok and Brewaeys, 1996; Gibson et al., 2000; Hammarberg et al., 2008). Others have argued that perinatal problems may have long-term negative effects on children's development at older ages, from health conditions to educational attainment and income (Black et al., 2007; Myrskylä et al., 2013).
Recent studies have argued that findings may be confounded by the characteristics of ART parents (Golombok, 2015; Spangmose et al., 2017), yet few have attempted to empirically investigate this selectivity. There is consensus that the early formation of children's cognitive ability is positively related to older, highly educated and high socio-economic status (SES) parents (Feinstein, 2003; Liu et al., 2011; Goisis and Sigle-Rushton, 2014; Myrskylä et al., 2013). Since ART treatments are often costly, access is frequently related to individuals who are able to bear these treatment costs (Chambers et al., 2014a,b; Präg and Mills, 2017).
The aim of this study is to examine whether the cognitive development of children conceived after ART (IVF and ICSI) – measured as cognitive skills at age 3, 5, 7 and 11 years – differs over time compared to children born after NC. A secondary aim is to examine how parental characteristics serve as confounders in these effects
Data Linkage: An Overview
Professor Natalie Shlomo
This is an Online Resource created by the National Centre for Research Methods (NCRM). Course materials, recommended readings and other resources are available via www.ncrm.ac.uk/resources/online
Biological Research: Biological Data Quality Issues
Professor Tarani Chandola in the second (of three) part of the 'Biological Research - Biological Research Framework' NCRM online course.
This video is part of the online learning resources from the National Centre for Research Methods (NCRM). To access the supporting materials (presentation slides, datasets, recommended reading, links to related publications and resources) visit https://www.ncrm.ac.uk/resources/online/biosocial_research