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The fragile process of homecoming - Young women in recovery from severe ME/CFS
Get PDFThis is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.Purpose: To explore the recovery narratives of 13 young women who had fallen ill with severe Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), during childhood and adolescence, with the focus on what they had to say about their past experiences from the perspective of the present.
Method: A qualitative narrative approach, informed by a phenomenological theoretical perspective, was adopted to explore what the women found significant and meaningful in their recovery process. Data analysis of in-depth narrative interviews was performed which are presented to readers through the stories of two particular participants.
Results: The first story describes how one participant made a recovery by testing her body’s tolerance and working to create a more confident self. The second story describes a complex exploration of possibilities for action in recovery, along with a struggle to make sense of setbacks and hold on to what has been gained.
Conclusion: Recovering from ME/CFS emerges as an inter-personal, contextual, fragile and nonlinear process of homecoming, based on gradually rising bodily based self-knowledge. Illness slowly fades away into the background, and there is the prospect of a healthier tomorrow.publishedVersio
Motivation and hesitancies in obtaining the COVID-19 vaccine – a cross-sectional study in Norway, USA, UK, and Australia
Get PDFThis article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/license s/by/4.0/).Background: Vaccinations protect the public against serious diseases or death; however, some individuals are hesitant in obtaining them. We aim to contribute to the understanding of the challenges of vaccination roll-out by examining the motivations, hesitancies, and their associated factors, in obtaining the COVID-19 vaccines two years into the pandemic.
Methods: Cross-sectional online surveys were conducted in Norway, the USA, the UK, and Australia (N = 1649). The participants self-reported whether they had obtained one of the COVID-19 vaccines. Those who had obtained a vaccine reported the reason for their motivation, and those who had not obtained a vaccine reported the reason for their hesitancies.
Results: More than 80% of the total sample obtained a COVID-19 vaccine because of public health recommendations and trusted that it was safe. Among those who had not obtained one, the most frequent reason was concerns about side effects. Most who obtained the vaccine reported that they believed in science, but many of those who had not obtained one reported distrust. Among those who had not obtained a vaccine, reports of distrust in policies and science were frequent. Concerns about side effects were more common in males and those with lower education, and those living in rural or remote areas.
Conclusion: People who endorsed the vaccine believed that the vaccine reduces the risk of illness, protects the health of others, and had trust in scientific vaccination research. Conversely, the most frequent reason for vaccine hesitancy was concerns about side effects, followed by distrust in healthcare and science. These findings could inform public health strategies that aim to increase vaccination rates.publishedVersio
Migration and health: exploring healthy ageing of immigrants in European societies
Get PDFThis is an Open Access article,
distributed under the terms of the Creative
Commons Attribution licence (http://
creativecommons.org/licenses/by/4.0/), which
permits unrestricted re-use, distribution and
reproduction, provided the original article is
properly cited.Aim: The aim is to identify important factors for immigrants’ health and well-being and for their use (or non-use) of primary health care (PHC) and other non-specialised services, and for possible ways that PHC can support healthy ageing of immigrants.
Background: Older persons are an increasing share of the immigrant population in the global north, frequently in contact with various forms of health services, (PHC services most of all. Consequently, PHC services are in a particularly unique position to support healthy ageing of immigrants.
Methods: The position paper builds on five international, multi-professional and cross-disciplinary small group discussions as well as an international workshop early summer. During the discussions and the workshop, topics were arrived at as to factors related to the health situation of older immigrants, their needs, and health-seeking behaviour, and to how PHC professionals could support healthy ageing in immigrants. Those main topics in turn guided search for relevant research literature and informed the selection of the main research questions of this paper.
Findings: Several factors, in addition to culture and cultural differences, are important to for PHC professionals and decision-makers to take into consideration in encounters with older immigrants. The socio-economic position of the older immigrant and close relatives, inter-generational relationships within the immigrant communities, country-specific factors in the host country like health care expenditure, and communication skills in health professionals are all examples of factors playing an important role regarding the health and health-seeking behaviour of older immigrants.publishedVersio
Female university academics' reflections on the development of their academic careers in the Norwegian higher education context
Get PDFThis is an open access article under the CC BY license (http://creativecommons.org/licenses/by/4.0/).The present study aims to get insight into how female university academic staff in teaching positions at various levels reflect on the development of their careers in higher education. A qualitative method was used with a participatory action research approach. The data were collected in the form of a workshop and analysed using the story dialogue method. Academic jobs, which are a mixture of teaching and research-related tasks, require that individuals prioritize their time well to be able to do research. In addition, the understanding and support of colleagues and management are crucial to achieving expected research results.publishedVersio
Erfaringer om medvirkning i egen rehabilitering. Dybdeintervju med personer som har blitt rammet av hjerneslag og hatt rehabiliteringstjenester i sin hjemkommune
Get PDFMaster i medborgerskap og samhandling. VID vitenskapelige høgskole, mai 2023Bakgrunn og formål: En økning i antall overlevende etter hjerneslag har ført til stadig flere som har behov for rehabilitering. Kommunene skal imøtekomme behovet for rehabilitering, og utformingen av rehabiliteringstjenester skal, i den grad det er mulig, utformes i samarbeid med bruker. Denne studien handler om erfaringer med medvirkning i eget rehabiliteringsforløp, fra et brukerperspektiv. Problemstillingen er formulert slik: Hvordan erfarer brukere å medvirke i eget rehabiliteringsforløp i samarbeid med tjenesteyter i kommunen? Formål med denne studien er å belyse rehabilitering og medvirkning i et medborgerskapsperspektiv.
Metode og utvalg: Denne studien har et kvalitativt fenomenologisk-hermeneutisk forskningsdesign for å svare på problemstillingen. Semistrukturert intervju ble valgt for å få frem utdypende beskrivelser fra erfaringer hos informantene. Totalt fem personer i aldersgruppen 45-60 år, som har erfaring med å motta tjenester fra kommunesektor i etterkant av hjerneslag, ble rekruttert og intervjuet. Datamaterialet ble bearbeidet med temaanalyse og drøftet i lys av relevant teori og policydokumenter.
Funn: Resultatene i denne studien tyder på at informantene har erfaringer med å medvirke i eget rehabiliteringsforløp, men også erfaringer med å ikke få medvirke. De trekker frem gode relasjoner med tjenesteyter og opplevelse av at de drar i samme retning som faktorer hvor medvirkning fremmes. De fleste savner mer informasjon fra tjenesteyter. Tanker rundt det å sette mål i samarbeid med tjenesteyter ble ikke vurdert som avgjørende for medvirkning i rehabiliteringsforløpet som helhet. Det var personavhengig om samarbeidet fungerte, og vonde enkelthendelser med tjenesteytere har satt spor som lager en form for «oss mot dem»-tankegang. Informantene medvirket også aktivt selv ved å stille spørsmål, kreve eller takke nei til det tjenesteyter kunne tilby. Når behovet for tjenester blir langvarig, erfarer informantene at det ikke er like lett å medvirke i tjenestetilbudet og tid er en luksus som ikke er alle forunt. De med behov for langvarige tjenester erfarer det som en påkjenning å være avhengig av hjelpen de mottar.
Oppsummering: Studien kan gi indikasjoner på at den personlige relasjonen mellom bruker og tjenesteyter spiller en stor rolle for om bruker erfarer reell medvirkning i rehabiliteringsforløpet. Informantene erfarer at personsentrert målsetting ikke påvirker hvor mye de får medvirke. Flere erfarer informasjon under forløpet som mangelfull. De med langvarige behov for tjenester erfarer at medvirkning avtar, og opplever å ikke bli prioritert
«Den tryggheten- den er ikke et urokkelig Dovrefjell». En kvalitativ studie om hva som bidrar til trygghet i utøvelse av sjelesorg
Get PDFSjelesorg er både en del av diakonien og en av arbeidsoppgavene til diakoner. Å oppleve trygghet i møte med konfident, er sentralt for å kunne ivareta begge parter. Gjennom arbeidet bruker sjelesørger seg selv som fagperson og medmenneske. Dette kan oppleves utfordrende og medføre utbrenthet. Studien har fokus på trygghet og belyser hva som kan hjelpe sjelesørger til å ta vare på seg selv og få kunnskap om forebyggende tiltak for å hindre utbrenthet. Studien blir belyst utfra en kvalitativ tilnærming gjennom forskningsspørsmålet: Hva bidrar til at sjelesørger blir trygg i utøvelse av sjelesorg?
Det er gjennomført seks semistrukturerte intervjuer av sjelesørgere med både lang og kort erfaring. Intervjuene ble transkribert og tematisert, og danner datamaterialet i oppgaven. Det teoretiske grunnlaget omhandler sjelesorg, relasjonskompetanse og veiledning.
Hovedfunnene viser at det er av betydning å være mentalt og fysisk forberedt, inneha åndelig-, teoretisk- og faglig kompetanse, kjenne seg selv, ha selvinnsikt, samt ha tilrettelagt for faglig veiledning gjennom arbeidet som sjelesørger. Disse funnene ble drøftet mot teori og tidligere forskning. Konklusjonen viser spesielt viktigheten av tilrettelagt veiledning, for å bli trygg i utøvelse av sjelesorg
From model to everyday practice: A qualitative observational study of daily fact team board meetings
Get PDFThis is an open-access article distributed under the terms of the Creative Commons Attribution 4.0 International License (CC-BY 4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. See http://creativecommons.org/licenses/by/4.0/.Introduction: The Flexible Assertive Community Treatment (FACT) model has rapidly become a way of organising services for people with severe mental illness. FACT describes the integrated approach of interprofessional teams.
Method: A qualitative study of interprofessional collaboration in three FACT teams was conducted. Thirty observations of the teams’ board meetings were conducted, and field notes were thematically analysed.
Results: This study generated three themes in interprofessional collaboration in FACT teams. The first theme reflects the challenges of working in line with the model, the second suggests an unclear understanding of a shared caseload, and the third shows different approaches to working with a shared caseload.
Discussion: The themes suggest that there is increased opportunity for the shared caseload in the FACT team board meeting. The findings reflect that there is a lack of either the resources necessary for working with a shared caseload or an understanding of the intention of a shared caseload.
Conclusion: The potential of the shared caseload in FACT team board meetings are dependent on sufficient resources and a collective understanding of the FACT model and the shared caseload among professionals. Further research on how a shared caseload is experienced and facilitated in FACT teams can provide insight into their practices.publishedVersio
Relasjonsbasert ledelse og arbeidsmiljø. En litteraturstudie basert på erfaringer og meninger fra helsepersonell og ledere i helse - og sosialsektoren
Get PDFHensikt: Mellomledere i helse- og omsorgssektoren står overfor store utfordringer de kommende årene. Eldrebølgen vokser, vi lever lengre, vi er mer bevisst på kvaliteten på tjenestene og effektivisering og kostnadsbesparing er i fokus. Likevel ser det ut til at en leders evne til å ivareta sine ansatte er høyt verdsatt. Formålet med denne studiet er derfor å undersøke hvordan relasjonsorientert mellomledelse kan bidra til gode relasjoner og et godt arbeidsmiljø i helse- og sosialsektoren.
Metode: Vi har foretatt et litteraturstudium hvor vi har analysert 5 kvalitative forskningsartikler som belyser problemstillingen.
Funn: Resultatene tyder på at det er tre faktorer som kan fremme gode relasjoner og et godt arbeidsmiljø: Lederens relasjonskompetanse, lederens egenskaper og lederens organisering av arbeidsmiljøet.
Konklusjon: Kjennskap til hvordan man ivaretar sine ansatte er avgjørende for å danne et godt arbeidsmiljø og en motstandsdyktig personalgruppe
The WebRA study: Opportunities and challenges in digital patient education from the perspective of patients with rheumatoid arthritis: A qualitative study
Get PDFThis is an open access article under the CC BY license (http://creativecommons.org/licenses/by/4.0/).Objective: To explore patients’ perceptions of digital patient education (PE), and how this contributes to self-management of rheumatoid arthritis (RA).
Methods: Individual interviews based on ’interpretive description’ methodology. The patients were purposively selected from a randomized controlled trial that investigated the effects of digital PE. The analysis included a descriptive section, followed by the interpretation and extraction of the main messages.
Results: Overall, participants had positive perceptions of the e-learning program. Advantages were flexibility, the possibility for repetition, entertainment, availability, and learning in familiar surroundings. Disadvantages were unmet relational support needs due to missing dialogue with health care providers (HCPs). For the majority, a need for insight into the condition led to an active approach to using e-learning. The e-learning program facilitated knowledge acquisition about RA, but relational support from HCPs and a positive attitude toward living with RA were also important for achieving self-management.
Conclusion: Digital PE is useful for self-management support in RA, however different forms and combinations of PE must be offered in the future to accommodate various needs throughout the disease course.
Practice implications: These results may inform future development and implementation of digital PE that adequately takes individual preferences for selfmanagement support into account.publishedVersio
