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Commentary on "Health-Related Quality of Life in Children With Chronic Illness Compared to Parents: A Systematic Review"
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Stap voor Stap: Grofmotorische ontwikkelingstrajecten van veel te vroeg geboren kinderen tot zij los gaan lopen
No full textSummary Infants born very preterm - before 32 weeks gestation and ≤1500 grams birthweight - are at risk of developmental problems. Gross motor development is an early marker in the first year of life to identify developmental delay. As in other developmental domains, gross motor development is characterized by variability between infants known to be related to both infant and environmental factors. This variability makes predicting infant motor development difficult and with that clinical decision-making on initiating early intervention. Repeatedly, within the same child, measuring gross motor development over time makes discrimination of typical or atypical development and developmental progress possible. The Alberta Infant Motor Scale (AIMS) is an observational instrument frequently used by paediatric physiotherapists worldwide to measure infant gross motor development. Among other things, this dissertation describes cross-cultural research to examine the validity of the Canadian norm values of the AIMS for the Dutch population of infants from birth to independent walking. Next, a longitudinal study was conducted to explore the variation in course and speed of gross motor development of Dutch very preterm infants until independent walking and influencing factors. Parents made multiple home video recordings of their infant (corrected age 3.5 to 17.5 months), from which gross motor development was assessed with AIMS. Lastly, parental beliefs about their child's motor development and experiences with the home-video method were examined. Main outcomes of the studies are 1) Dutch infants develop at a slower pace than Canadian infants from birth until independent walking, 2) there is strong evidence for the association of birthweight and moderate evidence for gestational age and sleeping position with infant gross motor development, 3) gross motor growth curves showed that three profiles, comparable to profiles observed among term born infants, can be distinguished: early developers, gradual developers and late bloomers and, 4) parents of very preterm infants believed stimulating motor development to be more important than parents of term born infants
Asymmetry and infants born preterm
No full textThe main aim of the thesis was to contribute to the diagnostic process and clinical decision making by pediatric physiotherapists in very young infants with an atypical motor performance, influenced by both an asymmetric development, and a development according to a preterm birth. In Part I, the development of a differential diagnostic screening instrument, containing a classification scheme, the clinical diagnostic criteria (CDC) for differential diagnostics, and a list of ‘red flags’ is described, on the basis of literature search and expert consensus.In two Delphi rounds, six medical specialists and seven pediatric physiotherapists were polled anonymously on the classification, completeness, and relevance of the diagnoses and the CDC. In Round 3, a face-to-face meeting with eight therapists, the previously selected diagnoses and CDC were prioritised, reduced to ten diagnoses and 21 CDC, and completed with eight hard clinical signs (red flags). In Part II, contains two descriptive studies on idiopathic asymmetry in infants born very preterm, a retrospective and subsequently a prospective study. To describe the natural course of a positional preference of the head and deformational plagiocephaly (DP) up to 6 months corrected age (CA) in infants born with a gestational ag
499 HEMOPHILIA JOINT HEALTH SCORES (HJHS): PERFORMANCE OF THE HJHS IN DIFFERENT POPULATIONS
No full textIntroduction: The Hemophilia Joint Health Score (HJHS) was developed for detection of early joint changes in children and youth with haemophilia with intensive treatment. The HJSH has been reported to be time consuming. The purpose of this study was to determine the performance of the HJHS across different populations and ages and to identify redundant items. Methods: This study was a cross-sectional multicenter secondary analysis on pooled data of published studies using the HJHS (0-124, 0 as optimum score). All patients with haemophilia A (FVIII) and B (FIX) aged 4-30 years were included. To identify redundant items the following aspects were evaluated: inter-item correlations and component loadings with an exploratory factor analysis, internal consistency, item-total correlations and frequency of endorsement. Results: HJHS scores of 499 patients from 7 studies were pooled. Patients from Romania, Pakistan, Lithuania, Brazil and the USA (n=279) had a median age of 13 years (range 4;29), 75% had severe haemophilia and 39% received prophylaxis. Patients from the Netherlands, UK and Canada (n=220) had a median age of 13 years (range 4;30), 93% had severe haemophilia and 91% received prophylaxis. Median (IQR) HJHS total score was significantly higher in the populations with a less intensive treatment: 12 (5-26) vs. 2 (0-7) (p<0.001). Knees were the most affected joints in less intensive treated patients and ankles in the more intensive treated patients. In both groups, the item ‘duration swelling’ was least informative (0 scores: ≥85%) and the item ‘global gait’ was most informative (0 scores: ≤63%). In addition, median (IQR) HJHS total score was significantly higher in adults (n=174) vs. children (n=325): 12 (4-23) vs. 5 (0-12) (p<0.001). In both age groups, the item ‘duration swelling’ was least informative (0 scores: ≥84%) and the item ‘global gait’ was most informative (0 scores: ≤65%). Discussion/Conclusion: This study supports that the HJHS is able to measure joint health in patients across different populations and ages. There might be room for item-reduction based on the non-informative items that have been found in this study. A more compact version of the HJHS is expected to facilitate clinical use in patients with haemophilia. The next step is to combine data from statistical analyses of the pooled data, with expert opinion to explore and consider options for shortening the HJHS without loss of information
Going Beyond Counting First Authors in Author Co-citation Analysis
Get PDFThe present study examines one of the fundamental aspects of author co-citation analysis (ACA) - the way co-citation
counts are defined. Co-citation counting provides the data on which all subsequent statistical analyses and mappings
are based, and we compare ACA results based on two different types of co-citation counting - the traditional type that
only counts the first one among a cited work's authors on the one hand and a non-traditional type that takes into
account the first 5 authors of a cited work on the other hand. Results indicate that the picture produced through this non-traditional author co-citation counting contains more coherent author groups and is therefore considerably clearer. However, this picture represents fewer specialties in the research field being studied than that produced through the traditional first-author co-citation counting when the same number of top-ranked authors is selected and analyzed. Reasons for these effects are discussed
Variations on the Author
Get PDF“Variations on the Author” discusses two of Eduardo Coutinho’s recent films (Um Dia na Vida, from 2010, and Últimas Conversas, posthumously released in 2015) and their contribution to the general question of documentary authorship. The director’s filmography is characterized by a consistent yet self-effacing form of authorial self-inscription: Coutinho often features as an interviewer that rather than express opinions propels discourses; an interviewer that is good at listening. This mode of self-inscription characterizes him as an author who is not expressive but who is nonetheless markedly present on the screen. In Um Dia na Vida, however, Coutinho is completely absent form the image, while Últimas Conversas, on the contrary, includes a confessional prologue that moves the director from the margins to the center of his films. This article examines the ways in which these works stand out in the filmography of a director who offers new insights into the notion of cinematic authorship
Appropriate Similarity Measures for Author Cocitation Analysis
Get PDFWe provide a number of new insights into the methodological discussion about author cocitation analysis. We first argue that the use of the Pearson correlation for measuring the similarity between authors’ cocitation profiles is not very satisfactory. We then discuss what kind of similarity measures may be used as an alternative to the Pearson correlation. We consider three similarity measures in particular. One is the well-known cosine. The other two similarity measures have not been used before in the bibliometric literature. Finally, we show by means of an example that our findings have a high practical relevance.information science;Pearson correlation;cosine;similarity measure;author cocitation analysis
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