1,720,995 research outputs found
Replication Data for: HOPEVOL, appropriate hospice care in the Netherlands
No full textThe quantitative and qualitative datasets comprise data from the HOPEVOL study a national study of appropriate hospice care in the Netherlands.
This study contains multiple datasets
1) HOPEVOL1 and HOPEVOL2study: The raw data from two dataset were merged to one complete set containing data from 803 patients admitted to hospices in the Netherlands in 2017 and 2018. In total 266 variables were collected from all patients.
2) HOPEVOL1 en HOPEVOL2 report The datasets comprises data from 204 patients contributed to an indepth symptom management practices overview, containing information on practices of 14 symptoms and use of three PROMS in total 296 variables
3) A data dictionary of all data collected in HOPEVOL1 and HOPEVOL2 in Dutch
4) HOPEVOL_hospice_characteristics: comprises information of structure and process of care of 42 hospices in 149 variables.
5) Dignity_caregiver: qualitative data, transcriptions of focusgroups interviews with caregivers working in hospices in the Netherlands discussing dignity and dignity conserving care practices in daily hospice care.
6) Dignity_patient: qualitative data: transcriptions of of interviews with patients exploring the meaning of dignity and dignity conserving care form the patient perspective.
7) Dignity_patient_dignity_inventory; contains patient characteristics, PDI outcomes and USD4D outcomes of 99 patients admitted to hospices in the Netherlands in 2021
INZICHT, validation of the Utrecht Symptom Diary - four dimensional
No full textThe validation of the USD-4D is performed in multiple studies
1) What do patients need to use the USD-4D in daily care
Qualitative data from individual interviews with 13 patients
2) What do healthcare professionals need to work with the USD4D in daily care
Quantitative data from a 49-item survey completed by 122 healthcare professionals
3) Content validity of the USD-4D from the patient perspective
Qualitative data from interviews with 12 patients
4) Content validity of the USD-4D from the health care professional perspective
Quantitative data from a survey completed by 601 healthcare professionals
5) Construct validity of the USD-4D using hypotheses testing
Quantitative data were used from two cohorts of patients with life limiting illness
Going Beyond Counting First Authors in Author Co-citation Analysis
Full text linkThe present study examines one of the fundamental aspects of author co-citation analysis (ACA) - the way co-citation
counts are defined. Co-citation counting provides the data on which all subsequent statistical analyses and mappings
are based, and we compare ACA results based on two different types of co-citation counting - the traditional type that
only counts the first one among a cited work's authors on the one hand and a non-traditional type that takes into
account the first 5 authors of a cited work on the other hand. Results indicate that the picture produced through this non-traditional author co-citation counting contains more coherent author groups and is therefore considerably clearer. However, this picture represents fewer specialties in the research field being studied than that produced through the traditional first-author co-citation counting when the same number of top-ranked authors is selected and analyzed. Reasons for these effects are discussed
Variations on the Author
Full text link“Variations on the Author” discusses two of Eduardo Coutinho’s recent films (Um Dia na Vida, from 2010, and Últimas Conversas, posthumously released in 2015) and their contribution to the general question of documentary authorship. The director’s filmography is characterized by a consistent yet self-effacing form of authorial self-inscription: Coutinho often features as an interviewer that rather than express opinions propels discourses; an interviewer that is good at listening. This mode of self-inscription characterizes him as an author who is not expressive but who is nonetheless markedly present on the screen. In Um Dia na Vida, however, Coutinho is completely absent form the image, while Últimas Conversas, on the contrary, includes a confessional prologue that moves the director from the margins to the center of his films. This article examines the ways in which these works stand out in the filmography of a director who offers new insights into the notion of cinematic authorship
Appropriate Similarity Measures for Author Cocitation Analysis
Full text linkWe provide a number of new insights into the methodological discussion about author cocitation analysis. We first argue that the use of the Pearson correlation for measuring the similarity between authors’ cocitation profiles is not very satisfactory. We then discuss what kind of similarity measures may be used as an alternative to the Pearson correlation. We consider three similarity measures in particular. One is the well-known cosine. The other two similarity measures have not been used before in the bibliometric literature. Finally, we show by means of an example that our findings have a high practical relevance.information science;Pearson correlation;cosine;similarity measure;author cocitation analysis
Dispelling the Myths Behind First-author Citation Counts
Full text linkWe conducted a full-scale evaluative citation analysis study of scholars in the XML research field to explore just how different from each other author rankings resulting from different citation counting methods actually are, and to demonstrate the capability of emerging data and tools on the Web in supporting more realistic citation counting methods. Our results contest some common arguments for the continued
use of first-author citation counts in the evaluation of scholars, such as high correlations between author rankings by first-author citation counts and other citation
counting methods, and high costs of using more realistic citation counting methods that are not well-supported by the ISI databases. It is argued that increasingly available digital full text research papers make it possible for citation analysis studies to go beyond what the ISI databases have directly supported and to employ more
sophisticated methods
A systematic review of classifications systems to determine complexity of patient care needs in palliative care
Full text linkBACKGROUND: Providing the right care for each individual patient is a key element of quality palliative care. Complexity is a relatively new concept, defined as the nature of patients' situations and the extent of resulting needs. Classifying patients according to the complexity of their care needs can guide integration of services, anticipatory discussions, health service planning, resource management and determination of needs for specialist or general palliative care. However, there is no consistent approach to interpreting and classifying complexity of patient needs. AIM: The aim of this article is to identify and describe classification systems for complexity of patient care needs in palliative care. DESIGN: Narrative systematic review (PROSPERO registration number CRD42020182102). DATA SOURCES: MEDLINE, Embase, CINAHL and PsychINFO databases were searched without time limitations. Articles were included that described classification systems for complexity of care requirements in populations with palliative care needs. RESULTS: In total, 4301 records were screened, with nine articles identified reporting the use of patient classification systems in populations with palliative care needs. These articles included the use of six classification systems: HexCom, Perroca Scale, AN-SNAP, Hui Major Criteria, IDC-Pal and PALCOM. These systems were heterogenous in the manner they determined complexity of care needs. The HexCom and IDC-Pal systems contained items that covered all domains of complexity as described by Hodiamont; personal, social support, health care team and environment. CONCLUSION: Although six classification systems have been developed, they access differing aspects of care needs and their application has been limited. The HexCOM and IDC-Pal systems offer the broadest determinations of complexity from an individual perspective. Further research is needed to apply these systems to populations external to those in which they were developed, and to appreciate how they may integrate with, and impact, clinical care
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