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    Vivere con la malattia. Un’indagine psicosociale sulle famiglie con un figlio affetto da neurofibromatosi

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    I dati presentati riguardano un’indagine che si è proposta l’obiettivo di ricostruire gli scenari di vita quotidiana dei nuclei familiari con soggetti affetti da una patologia cronica poco studiata dal punto di vista psicologico: la neurofibromatosi. Il campione dell’indagine comprende n.52 soggetti (27 donne e 25 uomini) che costituiscono n.27 coppie di genitori (in due casi la coppia era separata e il marito, pur sollecitato, non si è presentato al colloquio). Nel 44,5% dei casi la patologia presenta il carattere di familiarità e il restante 55,5% è di tipo sporadico. Inoltre sono stati intervistati 8 testimoni privilegiati tra i medici che si occupano di questa patologia. Sono state realizzate interviste semi-strutturate volte a indagare: l’organizzazione del ménage familiare, la vita quotidiana del figlio affetto da neurofibromatosi, la percezione della malattia, i rapporti con i servizi socio-sanitari. Ai genitori è stata inoltre somministrata l’Impact Family Scale. Dai risultati emerge che le madri organizzano la vita del figlio e quella familiare, assumendo il ruolo di uniche referenti rispetto alla continuità dei rapporti con i medici. La vita quotidiana della famiglia è completamente strutturata sulla patologia del figlio, limitando drasticamente lo spazio personale dei singoli genitori, oltre a privarli della categoria del “futuro”, intesa come progettualità individuale e di coppia. Per quanto riguarda il “il lavoro del dolore” e la reazione alla malattia risulta evidente che la domanda “Perché proprio io?” richiede una risposta che si articola nel tempo. L’impatto con la diagnosi è fonte di ansia e di allarme che suscitano nella coppia interrogativi e paure legate soprattutto al rischio di un’evoluzione letale della malattia oppure immediate richieste di guarigione. Solo in un secondo momento l’ambivalenza originata dal sì razionale e dal no emotivo si ricompone, in sintonia con il processo di elaborazione personale. L’asimmetria tra bisogni individuali e risposte mediche è forte: spesso le argomentazioni della medicina parlano un linguaggio impersonale che tende a prescindere dalle soggettività di chi pone simili interrogativi. Risultano quasi del tutto assenti contatti diretti tra medico specialista e medico di famiglia. I rapporti con i servizi territoriali sono sostanzialmente inesistenti. I dati raccolti sembrano confermare una crisi dei servizi territoriali la cui funzione principale tende a identificarsi con il patologico, trascurando sia la fase preventiva della malattia sia quella del sostegno psicosocial

    Optimization of the Zr-loading on siliceous support catalysts leads to a suitable Lewis/Bronsted acid sites ratio to produce high yields to gamma-valerolactone from furfural in one-pot

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    The study for the production of gamma-valerolactone from furfural in one-pot has been carried out using ZrO2 supported on silica spheres. The catalysts synthesized were characterized by XRD, UV-vis, HR-TEM, N-2 adsorption, IR, pyridine adsorption-IR and NH3-TPD in order to determine their physicochemical characteristics. Both, Lewis and Bronsted acid sites are necessary to produce gamma-valerolactone from furfural, because they are involved in different steps of the reaction. Accordingly, a reaction mechanism has been proposed. Lewis acid sites of ZrO2 interacting with the -OH surface groups of the siliceous spheres can generate Bronsted acid sites in the supported Zr catalysts, which are absent in both pure ZrO2 and the silica spheres. Then, by controlling the amount of Zr in the supported catalysts, the relative amount of Lewis and Bronsted acid sites can be optimized to obtain the highest yields to gamma-valerolactone. The Zr-loading of the optimal supported catalyst was ca. 7 wt% Zr, which reached a gamma-valerolactone yield of 72.4 % after 8 h at 180 C using 2-propanol as a solvent and hydrogen donor

    Going Beyond Counting First Authors in Author Co-citation Analysis

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    The present study examines one of the fundamental aspects of author co-citation analysis (ACA) - the way co-citation counts are defined. Co-citation counting provides the data on which all subsequent statistical analyses and mappings are based, and we compare ACA results based on two different types of co-citation counting - the traditional type that only counts the first one among a cited work's authors on the one hand and a non-traditional type that takes into account the first 5 authors of a cited work on the other hand. Results indicate that the picture produced through this non-traditional author co-citation counting contains more coherent author groups and is therefore considerably clearer. However, this picture represents fewer specialties in the research field being studied than that produced through the traditional first-author co-citation counting when the same number of top-ranked authors is selected and analyzed. Reasons for these effects are discussed

    Variations on the Author

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    “Variations on the Author” discusses two of Eduardo Coutinho’s recent films (Um Dia na Vida, from 2010, and Últimas Conversas, posthumously released in 2015) and their contribution to the general question of documentary authorship. The director’s filmography is characterized by a consistent yet self-effacing form of authorial self-inscription: Coutinho often features as an interviewer that rather than express opinions propels discourses; an interviewer that is good at listening. This mode of self-inscription characterizes him as an author who is not expressive but who is nonetheless markedly present on the screen. In Um Dia na Vida, however, Coutinho is completely absent form the image, while Últimas Conversas, on the contrary, includes a confessional prologue that moves the director from the margins to the center of his films. This article examines the ways in which these works stand out in the filmography of a director who offers new insights into the notion of cinematic authorship

    Appropriate Similarity Measures for Author Cocitation Analysis

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    We provide a number of new insights into the methodological discussion about author cocitation analysis. We first argue that the use of the Pearson correlation for measuring the similarity between authors’ cocitation profiles is not very satisfactory. We then discuss what kind of similarity measures may be used as an alternative to the Pearson correlation. We consider three similarity measures in particular. One is the well-known cosine. The other two similarity measures have not been used before in the bibliometric literature. Finally, we show by means of an example that our findings have a high practical relevance.information science;Pearson correlation;cosine;similarity measure;author cocitation analysis

    Dispelling the Myths Behind First-author Citation Counts

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    We conducted a full-scale evaluative citation analysis study of scholars in the XML research field to explore just how different from each other author rankings resulting from different citation counting methods actually are, and to demonstrate the capability of emerging data and tools on the Web in supporting more realistic citation counting methods. Our results contest some common arguments for the continued use of first-author citation counts in the evaluation of scholars, such as high correlations between author rankings by first-author citation counts and other citation counting methods, and high costs of using more realistic citation counting methods that are not well-supported by the ISI databases. It is argued that increasingly available digital full text research papers make it possible for citation analysis studies to go beyond what the ISI databases have directly supported and to employ more sophisticated methods

    Author Index

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    koamabayili/VECTRON-author-checklist: VECTRON author checklist

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    We have done our best to complete the author checklist relating to the use of animals in the hut study. Note that the objective for the hut study was to evaluate the IRS treatment applications for residual efficacy against Anopheles mosquitoes, including the local An. coluzzii mosquito population. Cows were only used to attract mosquitoes into the huts and no tests were carried out directly on the cows. The author checklist is intended for use with studies where experiments are carried out on animals, which is why we have had such difficulty in completing this for the hut study, as many of the questions do not relate to how the cows were used
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