1,744,196 research outputs found
Ophthalmic complications of spina bifida and hydrocephalus
No full textThis thesis represents an attempt to further our knowledge of the ophthalmic complications of spina bifida and hydrocephalus by means of literature review and a long term clinical study, and to determine whether regular ophthalmic supervision can assist in the general management of affected children. The ophthalmic complications of spina bifida have often been reported in the literature and thought to merit regular supervision of affected children, yet few centres currently offer this service. In this study 322 children attending one regional centre were examined repeatedly over a six year period by one ophthalmologist. Ophthalmic complications were found to be very common. They frequently provided evidence of raised intracranial pressure due to shunt dysfunction even when other objective evidence was lacking. Every spina bifida and hydrocephalus clinic should have an ophthalmalogist in its medical team. Preservation of visual function and early diagnosis of raised intracranial pressure in these children should result from this arrangement
Lifestyle in adults aged 35 years who were born with open spina bifida: prospective cohort study.
No full textBACKGROUND AND METHODS: From 1963 to 1971, 117 babies with open spina bifida were treated non-selectively from birth. In 2002 we reviewed all the survivors by postal questionnaire and telephone call. The aims were to find out how many were living independently in the community or were in open employment or drove a car. In addition to these achievements we recorded health, medication and admissions to hospital and asked how much daily help they needed.
RESULTS: Ascertainment was 100%. There had been 63 deaths, mainly of the most severely affected. The mean age of the 54 survivors was 35 years. The outcome in terms of disability ranged from apparent normality to total dependency. It reflected both the neurological deficit, which had been recorded in infancy in terms of sensory level, and events in the CSF shunt history. Overall about 2 in 5 of the survivors lived independently in the community, 2 in 5 drove a car, 1 in 5 was in competitive employment and 1 in 5 could walk 50 metres.
CONCLUSION: Although those who survived to age 35 years tended to be less disabled, 2 in 5 continued to need daily care
Transition into adult healthcare services in Scotland –findings from a study concerning service users at the Scottish Spina Bifida Association
Get PDFBackground and Aims Literature on interventions that enable young people with Spina Bifida and/or Hydrocephalus to have smooth transition, into adult healthcare services, stress the need for the process to start early and to include all family members. The study reported here was set to quantify and articulate the experiences of service users who are or due to be going through the transition process in Scotland today. Methods and ResultsFocus group sessions, in the North of Scotland and in the ‘Central Belt’, captured rich qualitative data. A survey, sent to eligible participants on the Spina Bifida National database, offered complimentary data source. Despite the fact that the number of returned questionnaires was low (n=20) data analysis identified a number of core recurring themes. These include issues concerning Communications, Respect, Choice and Control. Findings suggest that there is a significant chasm between the political rhetoric and the reality faced by young people with Spina Bifida moving to adult healthcare services.ConclusionA possible way to facilitate successful transition of young people is using personal healthcare information as the locus for needed change. More research is needed to ascertain whether a ‘Person Centred Record’, which is set to empower young people on their transition pathway, is an appropriate transition tool. <br/
Pathological anatomy of spina bifida
No full textSpina bifida occulta results from incomplete closure of the neural tube around the twentieth day of embryonic development [1]. Spina bifida was described in the medieval literature and was recognized even earlier. Indeed, the association of foot deformities with sacral hypertrichosis may be the origin of the mythological figure of the satyr [2]. The term spina bifida encompasses the entire central nervous system, ranging from merely an absent spinous process through to myelomeningocele (MMC), Chiari malformation and hydrocephalus to cortical cytoarchitectural changes [2]. © 2008 Springer-Verlag Italia
L'homme qui vécut soixante-sept vers (Thersite dans la littérature antique et moderne
No full textSpina Lugi. L'homme qui vécut soixante-sept vers (Thersite dans la littérature antique et moderne). In: Bulletin de l'Association Guillaume Budé, n°3, octobre 2001. pp. 277-297
The spina bifida: Management and outcome
No full textThe evolution of technology has made new surgical techniques available for the treatment of diseases associated with the spina bifida malformation, and this is especially true in hydrocephalus and fetal surgery. The progress in this last field and in prenatal diagnosis have raised the significant problem of the effectiveness and usefulness of in utero surgical treatment of the malformation, that are extensively discussed in this volume. Also the clinical situations that can be seen in adolescents or young adults with spina bifida, including sexuality and pregnancy, are highlighted. Aim of this book is to promote a multidisciplinary approach to spina bifida, providing the three main specialists categories involved - neurosurgeons, orthopaedic surgeons, and urologists - with an updated overview of surgical approaches and with a concise reference that explains the main clinical problems to be faced in everyday clinical practice. © Springer-Verlag Italia 2008
Open Spina Bifida Aperta Atlas
No full text<p><span>The Open Spina Bifida Aperta (OSBA) atlas is a set of neuroimaging templates for newborns with open spina bifida (spina bifida aperta, </span><span>SBA). The OSBA atlas was constructed using structural T2-weighted and diffusion tensor MRI of 28 newborns with SBA. The corrected gestational age at MRI was 38.1 ± 1.1 weeks (mean ± SD). The OSBA atlas consists of T2-weighted and fractional anisotropy templates, along with 9 tissue prior maps and region of interest (ROI) delineations. The OSBA atlas offers a standardized reference space for spatial normalization and anatomical ROI definition. </span></p>
Brief von Peter de Spina an Johann Dolaeus
No full textBRIEF VON PETER DE SPINA AN JOHANN DOLAEUS
Brief von Peter de Spina an Johann Dolaeus (247r
Brief von Peter de Spina an Johann Dolaeus
No full textBRIEF VON PETER DE SPINA AN JOHANN DOLAEUS
Brief von Peter de Spina an Johann Dolaeus (245r
Gli obiettivi e i risultati della ricerca
No full textIl testo presenta il programma di ricerca intrapreso dalla Fondazione Rocco Chinnici e coordinato da A. La Spina, il cui primo risultato è il volume I costi dell'illegalità - Mafia ed estorsioni in Sicilia. La cultura dell’illegalità, molto diffusa nel Mezzogiorno, rappresenta uno dei più rilevanti ostacoli allo sviluppo economico e sociale di tale area. La gran parte delle stime quantitative, che pure esistono, lasciano a desiderare quanto a coerenza, controllabilità e attendibilità del percorso seguito per la loro formulazione (come viene illustrato nel testo). È necessario individuare con precisione e con cautele maggiori di quanto non sia stato fatto in passato, e attraverso percorsi metodologici controllabili, sia le caratteristiche e le dimensioni quantitative dei fenomeni illegali, sia le loro conseguenze economiche dirette e indirette. Quando si parla di illegalità nel contesto del Mezzogiorno si fa spesso senz’altro (ed esclusivamente) riferimento alle violazioni di norme penali da parte di organizzazioni di stampo mafioso. Questa è certamente la più rilevante forma di illegalità, pur non essendo l’unica. Vi sono altre forme di illegalità (assai rilevanti in un contesto come quello meridionale), come lo scambio occulto, connesso ai reati di corruzione o concussione; la «legalità debole», vale a dire l’inefficacia e/o la distorsione di norme rilevanti per l’attività economica, diverse da quelle di diritto penale; la criminalità comune. La ricerca si è concentrata sull’illegalità riconducibile alla criminalità mafiosa, per valutarne quantitativamente i costi, con particolare riferimento all’estorsione. Dal momento che, vista la natura del fenomeno, le dichiarazioni delle possibili vittime dell’estorsione sono necessariamente poco attendibili, si è scelto di avvalersi di dati assai meno sfuggenti, vale a dire le risultanze delle indagini giudiziarie, che oggi in moltissimi casi fotografano in modo oggettivo (attraverso intercettazioni, ritrovamenti di elenchi, registri, libri mastri e «pizzini», rivelazioni di collaboratori di giustizia, indagini patrimoniali e bancarie) le attività dei mafiosi. Sulla base di tali indicazioni, il gruppo di ricerca ha costruito una cospicua base di dati e formulato una stima monetaria del costo dell’estorsione attraverso un percorso controllabile
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