152 research outputs found
The faithfull shepheard, or, The shepheards faithfulnesse : wherein is for the matter largely, but for the maner, in few words, set forth the excellencie and necessitie of the ministerie; a ministers properties and dutie; his entrance into this function and charge; how to begin fitly to instruct his people; catechising and preaching; and a good plaine order and method therein ... /
No full textMode of access: Internet
On the Edge. Artists in Dialogue with Humboldt University Collections
No full textA six meter long tapeworm …. a silver cuff … ‘skeleton’ leaves … an ‘exploded’ skull … a dandelion research station … deep sea creatures … All of these extraordinary things and more feature in the exhibition ON THE EDGE, providing a fascinating insight into the Humboldt-Universität zu Berlin scientific collections through the eyes of seven artists from Germany and the UK: Annie Cattrell, Simon Faithfull, Agnes Meyer-Brandis, Lucy Powell, Andrea Roe, Nicole Schuck and Wolf von Kries. An exhibition at Tieranatomisches Theater, Humboldt-Universität zu Berlin, 4 June – 13 September 2015
Te Deum laudamus /
No full textTe Deum laudamus text incorporated in the 29 color plates; "Description of the plates" on 9 pages at end.On title page: Emily Faithfull, printer & publisher in ordinary to Her Majesty. Victoria Press, Princes St., Hanover Square.The English translation is from the Book of Common Prayer.Mode of access: Internet.Library's copy had presentation inscription by the illuminator.Binding: gold stamped blue cloth binding
An exploration of early palliative care in adult atients with cystic fibrosis and health care professionals.
No full textAbstract Background: Cystic Fibrosis (CF) is one of the United Kingdom’s most common life limiting genetic disorders. Improvement in treatment modalities over the last 20 years has resulted in this group of patients living longer. The acceptability of accessing early palliative care for patients with CF and staff perceptions of a palliative care referral for this group is relatively unexplored. Integrated care has been used as a theoretical model to underpin this study. Aim: To explore the experience and perceptions of patients with CF and staff regarding palliative care and the acceptability of this as a service early in the patient’s disease trajectory. Method: A Mixed Methods Study informed this research. This three phase study included a Focus Group (phase 1) with 8 experts from both CF and palliative care, a national survey (phase 2) with 46 experts from CF and palliative care teams, and 17 interviews (phase 3) with patients with CF and health care professionals who care for patients with CF. Results: The term “palliative care” remains a barrier for some professionals in considering a referral to palliative care. Patients interviewed did not have such a problem with the term. Patients are supportive of palliative care being introduced earlier in the disease trajectory. Currently there is evidence to suggest that over 50% of teams do not have an integrated service between CF and palliative care. Discussion: This innovative study has identified a lack of clarity relating to when a patient with CF should be referred to palliative care services. Uncontrolled symptoms and transplant have been highlighted as potential triggers for referral to palliative care services. Patients have recognised that transplant may be too late for a referral and would like to be made aware of palliative care services earlier in the disease pathway. A model of integrated care has been generated from the findings of the study. Conclusion This study has explored early palliative care in adults with CF and considered the perceptions and experiences of patients and health care professionals. This three phase study has determined the views of patients for the first time regarding early palliative care. Together with national data in phase two and in depth interviews in phase three, an integrated model between CF and palliative care is proposed that illustrates the views of the patients and health care professionals, offering considerations for organisations in the development of integrated services. Key words: Cystic Fibrosis, Palliative Care, Integrated Care, patient and health care professional perceptions and experiences
Respite care for patients with neuro-degenerative diseases.
No full textAim: This study aimed to develop a grounded theory to explain the experience of patients with neurodegenerative diseases and their carers, following an episode of residential respite care.
Background: Neurodegenerative diseases are incurable, debilitating and result in progressive deterioration of the patient which present as problems with cognitive functioning (dementias) and/or physical functioning (ataxias). To allow quality of life and purpose for the patient and caregiver, as well as providing value for money, respite is an area of care which could offer the patient rehabilitation, maximisation of functionality and quality of life; relief from caregiving duties for the carer and signposting for additional assistance and support.
Methods: This was a qualitative, grounded theory study conducted across south east England. An initial audit, attendance at support groups and specialist clinics provided scoping of the scale of the problems encountered by this patient population. Data collection included 17 semi structured interviews conducted with patients and carers who had recently received residential respite, non-participant observation at a hospice offering dedicated respite care and 4 hospice staff interviews.
Findings: A successful respite depended on the patient and carer identifying the need for respite and the information required to determine where, what, when and how respite could be accessed. The logistics of the referral process, preparation for respite and the handover of care needs to professionals were key factors for a therapeutic admission.
Conclusion: The outcomes from the respite admission should be mutually acceptable to both the patient and carer and be able to demonstrate acceptance and adaptation to a new normalcy, influenced by disease progression and reflecting on time present and time past. The onward journey sees a transitioning which involves restoration and building up a level of resilience for the carer, which all contribute to sustainability and being able to continue in the caring role
An exploration of early palliative care in adult atients with cystic fibrosis and health care professionals.
No full textAbstract
Background:
Cystic Fibrosis (CF) is one of the United Kingdom’s most common life limiting genetic disorders. Improvement in treatment modalities over the last 20 years has resulted in this group of patients living longer. The acceptability of accessing early palliative care for patients with CF and staff perceptions of a palliative care referral for this group is relatively unexplored. Integrated care has been used as a theoretical model to underpin this study.
Aim:
To explore the experience and perceptions of patients with CF and staff regarding palliative care and the acceptability of this as a service early in the patient’s disease trajectory.
Method:
A Mixed Methods Study informed this research. This three phase study included a Focus Group (phase 1) with 8 experts from both CF and palliative care, a national survey (phase 2) with 46 experts from CF and palliative care teams, and 17 interviews (phase 3) with patients with CF and health care professionals who care for patients with CF.
Results:
The term “palliative care” remains a barrier for some professionals in considering a referral to palliative care. Patients interviewed did not have such a problem with the term. Patients are supportive of palliative care being introduced earlier in the disease trajectory. Currently there is evidence to suggest that over 50% of teams do not have an integrated service between CF and palliative care.
Discussion:
This innovative study has identified a lack of clarity relating to when a patient with CF should be referred to palliative care services. Uncontrolled symptoms and transplant have been highlighted as potential triggers for referral to palliative care services. Patients have recognised that transplant may be too late for a referral and would like to be made aware of palliative care services earlier in the disease pathway. A model of integrated care has been generated from the findings of the study.
Conclusion
This study has explored early palliative care in adults with CF and considered the perceptions and experiences of patients and health care professionals. This three phase study has determined the views of patients for the first time regarding early palliative care. Together with national data in phase two and in depth interviews in phase three, an integrated model between CF and palliative care is proposed that illustrates the views of the patients and health care professionals, offering considerations for organisations in the development of integrated services.
Key words: Cystic Fibrosis, Palliative Care, Integrated Care, patient and health care professional perceptions and experiences
Using primary care data to report real-world pancreatic cancer survival and symptomatology
No full textPancreatic cancer is the 10th most common cancer diagnosed; despite recent advances in many areas of oncology, survival remains poor, in part owing to late diagnosis. Whilst primary care data are used widely for epidemiology and pharmacovigilance, they are less used for observing survival. In this study we extracted a pancreatic cancer cohort from a nationally representative English primary care database of electronic health records (EHRs) and reported on their symptom and mortality data. A total of 11, 649 cases were identified within the Oxford Royal College of General Practitioners (RCGP) Clinical Informatics Digital Hub network. All-cause mortality data was recorded for 4623 (39.69%). Mean age at recording of cancer diagnosis was 71.4 years (SD 12.0 years). 1-year and 5-year survival was 22.06% and 3.27% respectively. Within a multivariate model, age had a significant impact on survival; those diagnosed under the age of 60 had the longest survival, as compared to those age 60 – 79 (HR: 1.36, 95% CI: 1.20 – 1.54, p < 0.001) and 80+ (HR: 2.13, 95% CI: 1.86 – 2.44, p < 0.01). Symptomatology was examined; at any time point abdominal pain was the most commonly reported symptom present in 5271 cases (45.2%), but within the 12 months preceding diagnosis jaundice was the most common feature, present in 2587 patients (22.2%). Future studies clarifying other contributing factors on survival outcomes and patterns of symptomatology are needed; primary care EHRs provide an opportunity to evaluate real-world cancer patient cohort data
Patients' experiences following cranial radiotherapy: a study of the somnolence syndrome
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