144 research outputs found
GENETIC DATABASES: SOCIO-ETHICAL ISSUES IN THE COLLECTION AND USE OF DNA
No full textForeword -- Contributors -- Acknowledgements -- Ch. 1. Introduction: public participation in genetic databases / Richard Tutton and Oonagh Corrigan -- Ch. 2. Person, property and gift: exploring languages of tissue donation to biomedical research / Richard Tutton -- Ch. 3. Blood donation for genetic research: what can we learn from donors' narratives? / Helen Busby -- Ch. 4. Levels and styles of participation in genetic databases: a case study of the North Cumbria Community Genetics Project / Erica Haimes and Michael Whong-Barr -- Ch. 5. Informed consent: the contradictory ethical safeguards in pharmacogenetics / Oonagh Corrigan -- Ch. 6. Ambiguous gifts: public anxiety, informed consent and biobanks / Klaus Hoeyer -- Ch. 7. Abandoning informed consent: the case of genetic research in population collections / Jane Kaye -- Ch. 8. Children's participation in genetic epidemiology: consent and control / Emma Williamson, Trudy Goodenough, Julie Kent and Richard Ashcroft -- Ch. 9. 'Public consent' or 'scientific citizenship'? What counts as public participation in population-based DNA collections? / Sue Weldon - - Ch. 10. Tissue collection and the pharmaceutical industry: investigating corporate biobanks / Graham Lewis -- Inde
Levels and styles of participation in genetic databases: a case study of the North Cumbria genetics project
No full textWhat does infrastructuring look like in STS? When?:Workshop Report
No full textThe workshop was organized at the EASST2018 Conference to take stock of empirical insights and conceptual developments around the notion of infrastructuring in STS. We report on the collective process that aimed to critically map and disentangle assumptions, identify blind spots, and chart the varied uses of the notion in STS. By using a hands-on approach inspired by Participatory Design, the workshop contributes to the quest for new ways of thinking and inventing, in addition to proposing formats where collective conceptual experimentation could take place in cross-disciplinary settings
What does infrastructuring look like in STS? When?:Workshop Report
No full textThe workshop was organized at the EASST2018 Conference to take stock of empirical insights and conceptual developments around the notion of infrastructuring in STS. We report on the collective process that aimed to critically map and disentangle assumptions, identify blind spots, and chart the varied uses of the notion in STS. By using a hands-on approach inspired by Participatory Design, the workshop contributes to the quest for new ways of thinking and inventing, in addition to proposing formats where collective conceptual experimentation could take place in cross-disciplinary settings
Futures in Question: Theories, Methodologies, Practices
No full textThis special issue emerged out of a conference that we organized at Goldsmiths, London in September 2014, with the title ‘Futures in Question’. The conference itself was the final event in an ESRC Research Seminar Series on ‘Austerity Futures: Imagining and Materialising the Future in an “Age of Austerity”’ (2012-14). By involving a range of scholars from the social sciences, arts and humanities, our aim was for the seminar series and conference to explore the contours of ‘the future’ in the current context of multiple financial, ecological and political crises. Taking up a call from Nik Brown and Mike Michael (2003: 4) (both contributors to this volume), we aimed to ‘shift the analytical emphasis from looking into the future to looking at the future’, that is, to ‘engage with the future as an analytical object, and not simply a neutral temporal space into which objective expectations can be projected’.
The original articles in this special issue engage with this task, offering new conceptual framings for thinking about the future. These include: a recuperation of the idea of ‘wicked futures’ proposed by Ritte and Martin Webber (1973); an attention to how futures are understood and enacted on different scales; an account (including an etymology) of anticipation as an orientation to the future; an unpacking of the significance of financial speculation to futurity; a consideration of the sensory and intangible aspects of futurity; an examination of how relations to futurity are organised and experienced through different speeds and senses of urgency; and an analysis of the relationship between catastrophism, immunity and futurity
Promising pessimism : reading the futures to be avoided in biotech
No full textA number of science and technology studies (STS) scholars have suggested that the performativity of the 'forward-looking statement' is an important institutional element of contemporary biocapital. This paper considers how, when making projections that set up expectations about their futures, firms also acknowledge and detail the risk factors that they face in their operations. In other words, in addition to projecting optimistic scenarios, firms advance much more pessimistic images of futures that they wish to avoid: possible failures, disappointments and financial losses. I examine such pessimistic projections in company filings to the US Securities and Exchange Commission (SEC) and investigate their discursive character. I ask what value such pessimism might hold for STS scholars interested in the mangle of science and capital. I sample the SEC filings of three companies: deCODE Genetics, DNAPrint Genomics Inc. and NitroMed Inc. In their own particular ways, these projections exemplify the volatility and the promise of the life sciences in the 21st century. My reading shows that such pessimistic risk factor statements provide interesting commentary on the dynamics of risk and innovation in the context of contemporary biocapital, raising questions to which analysts to date have given little attention
Cad. Saúde Pública
No full textO livro de Richard Tutton, sociólogo britânico, aborda um tema atual e ainda pouco debatido no Brasil, que é o movimento denominado "medicina personalizada", e tem por objetivo a transformação da prática médica a partir da incorporação da informação e tecnologia genômica...Rio de Janeir
The Sociology of Futurelessness
No full textThis paper contributes to ‘sociologies of the future’ by discussing the concept of ‘futurelessness’. I provide a conceptual elaboration of what is meant by ‘futurelessness’, beginning with its use in the psychological literature of the 1980s concerned with the effect of a constant threat of nuclear war. I argue that this concept is of value to ongoing sociological debates about the relationship between how the future is imagined, power, and social change. I further discuss the extent to which ‘futurelessness’ is a particular mode of relating to and feeling about the future that is characteristic of contemporary European societies. I discuss how this ‘futurelessness’ must be understood in relation to political and cultural developments of the past fifty years and consider its significance for sociological debates about contemporary futurity
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