1,720,966 research outputs found
How «personal» is the «personal Health Record»? Technology and patient empowerment in the care of Diabetes
Full text linkThis paper explores the role and meaning of medical information against the backdrop of new digital tools that allow for new forms of data management and sharing within the healthcare management network. The research investigates data management practices by parents of children with Type 1 diabetes as they are enabled by a Personal Health Record to become stewards of their own medical information. The underlying assumption of this and similar technologies is that they would support patient-provided collaboration and reduce the information gap between clinical encounters. Drawing on a qualitative research design, the authors analyze data management and sharing practices among patients and healthcare providers before and after the introduction of a digital logbook for diabetes management in the pediatric department of a hospital in northern Italy. The paper reveals how patients interpreted their new roles in terms of restricting access to their information, rather than facilitating its dissemination, to preserve their own competence and independent management of the information regarding their ≪PersonalGt; diseases
“Your Mother Has Been on the Street for Too Long... That's Why You Were Born”: Gender Stereotypes and Gendered Slurs in Cyberbullying Role Playing,
No full textLow-intensity epistemic war Medical communities and the development of legitimate knowledge in times of radical uncertainty
No full textThe Covid-19 pandemic offers an unprecedented opportunity to investigate
knowledge-making practices and associated epistemic conflicts. In addition to
the conflict between the scientific community and social groups that opposed
controversial positions, we argue that the pandemic has been the backdrop
of a less visible ‘epistemic war’ within the medical field, as the radical uncertainty
paved the way to challenge the postulated universality of the hierarchy
of evidence underlying Evidence-Based Medicine. Given this background, the
study focused on the emergence of several physicians’ networks providing
home treatment in the early stages of SARS-CoV-2 infection in Italy. Such
communities of practices produced and shared knowledge and, in some cases,
sought external legitimacy from the scientific community, policymakers
and public opinion, thus acting as an epistemic community and coming into
conflict with dominant epistemic agencies. In this ‘low-intensity epistemic war’,
disputants intended to reaffirm or challenge the balance between the parties
and not to annihilate the other side. By focusing on different epistemologies
and practices in contemporary medicine, this study offers a more articulated
and nuanced framework in which the claim of what is ‘true’ is shaped in a
broader set of professional relations, ongoing scientific debates, and epistemic
and political institutions
Rendere visibile il cyberbullismo. La roleplaying simulation online come metodo per studiare le interazioni prevaricanti in rete
No full textLa roleplaying simulation online. Costruire uno spazio digitale “coraggioso” per analizzare le interazioni in rete
No full textCOVID-19 Pandemic and New Cardiology Telemonitoring Organization: How to Cast the Others
No full text"Look! this is the future of cardiology": institutional work and the making of telemedicine in healthcare
Full text linkThis paper seeks to offer a critical perspective on the lack of widespread adoption of telemonitoring. The paper proposes a reconstruction of the processes that led from the first experimental adoption to the final codification of the service as a clinical service, showing the complex ecology of actors, knowledge, practices that are necessary to incardinate new services into the institutional fabric. Adopting a qualitative research design, organizational processes are investigated through the conceptual lens of 'institutional work', defined as the creative and rationally oriented activity of 'culturally competent' actors aimed at adapting to dynamic conditions through which institutions are created, reproduced and destroyed. The work aims to show how different actors, using the resources at their disposal, act to modify healthcare institutions by redefining their role in a scenario characterized by an increasing use of ICT tools in healthcare. The fieldwork confirms how the institutionalization of change requires continuous "tuning" and its transformation into everyday operational practices. At the same time, the work makes it possible to show why these processes are difficult to replicate even within the same organization, arguing that in these healthcare contexts in which institutional work is successful, particular practices prevail in connecting discursive frameworks, limited implementation strategies and economic demands
Going Beyond Counting First Authors in Author Co-citation Analysis
Full text linkThe present study examines one of the fundamental aspects of author co-citation analysis (ACA) - the way co-citation
counts are defined. Co-citation counting provides the data on which all subsequent statistical analyses and mappings
are based, and we compare ACA results based on two different types of co-citation counting - the traditional type that
only counts the first one among a cited work's authors on the one hand and a non-traditional type that takes into
account the first 5 authors of a cited work on the other hand. Results indicate that the picture produced through this non-traditional author co-citation counting contains more coherent author groups and is therefore considerably clearer. However, this picture represents fewer specialties in the research field being studied than that produced through the traditional first-author co-citation counting when the same number of top-ranked authors is selected and analyzed. Reasons for these effects are discussed
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