1,720,962 research outputs found
The lived experience of LGBTQ persons living with multiple sclerosis (MS): A critical analysis
Get PDFMultiple sclerosis (MS) is a neurological, autoimmune condition which affects the nervous system creating a number of physiological and psychosocial issues. Simultaneously, there is an expanding body of research in lesbian, gay, bisexual, trans and queer (LGBTQ) populations which indicates health inequalities due to heteronormativity. In spite this, research exploring chronic illness, neurological conditions and MS within LGBTQ contexts remains limited. Therefore, this study aims to explore the lived experience of LGBTQ people living with MS and it asks ‘How do LGBTQ individuals make sense of MS and what are its effects in their everyday lives?’
The research employed an innovate theoretical and methodological framework and it was posited within a critical health psychology (CHP) epistemological paradigm. A multi-method approach was undertaken employing verbal and visual data in the form of phenomenological interviews and participant-authored photographs. Twenty-eight LGBTQ individuals from a number of countries took part. Thirteen were cisgender lesbian, bisexual, and queer (LBQ) women, ten were cisgender gay and bisexual (GB) men, and five trans individuals. All data collected from the three groups were analysed separately using Interpretative Phenomenological Analysis (IPA).
Three themes from each group were created. For the LBQ women group the themes are ‘changed double identity’, ‘threefold stigmatisation’, and ‘seeking relatedness and acceptance’; for the GB men group the themes are ‘complex integration of MS and gay identities, ‘stigma and estrangement’, and ‘salutogenic strategies’; and for the trans individuals group the themes are ‘doubly medicalised’, ‘multiply queerbodied’, and ‘searching for salutogenesis’. Considering the findings from the three groups holistically it was revealed that from the moment of confirmed MS diagnosis the LGBTQ individuals appear to progress to an individual transformation of the self. Subsequently, after this corporeal stage, the LGBTQ persons living with MS typically progress to a social exposure stage whereby they experience the enhanced force of multiple stigmas and incidents of discrimination. Finally, this mostly leads to the reaction and resistance phase whereby the individuals mobilise salutogenic resources in order to mitigate the losses of MS and the compromised aspects of the LGBTQ identities. These different phases and stages are revisited and retouched in a dynamic manner and in a non-linear way, echoing the fluidity and episodic nature of MS.
How the groups react and experience MS differently is also considered. The findings have academic and real-world impact through recommendations for advocacy, policy change, future research and healthcare. The focus of the research on public engagement and impact is demonstrated through the activities that were designed and delivered as integral part of the study
"It's Like a Double Whammy!": A Photo-Phenomenological Analysis of the Experiences of Lesbian, Gay, Bisexual, and Queer People Living With Multiple Sclerosis.
No full textMultiple sclerosis (MS) is a neurological, autoimmune condition which affects the nervous system, creating several physiological and psychosocial issues. Simultaneously, there is an expanding body of research on lesbian, gay, bisexual, and queer (LGBQ) populations which indicates health inequalities due to heteronormativity. Despite this, research exploring chronic illness, neurological conditions, and MS within LGBQ contexts remains limited. Therefore, we aimed to investigate the experience of LGBQ people living with MS. We undertook a culturally responsive multi-method approach, employing verbal and visual data through phenomenological interviews and participant-authored photographs. Twenty-three LGBQ individuals from several countries took part. All data collected from the three groups were analyzed separately using interpretative phenomenological analysis (IPA). We created three interrelated themes: (a) , (b) , and (c) . It was revealed that from the moment of confirmed MS diagnosis, LGBQ individuals in this study appear to progress to an individual transformation of the self. Subsequently, the LGBQ persons living with MS typically experience an amended social exposure whereby they experience the enhanced force of multiple stigmas and incidents of discrimination. However, participants noted reaction and resistance against both the attack of MS on their identity and against the multiple discriminations. These different phases and stages are revisited and retouched dynamically and non-linearly, echoing the fluidity and episodic nature of MS. The findings have academic and real-world impact through recommendations for advocacy, policy change, future research, and healthcare
Going Beyond Counting First Authors in Author Co-citation Analysis
Get PDFThe present study examines one of the fundamental aspects of author co-citation analysis (ACA) - the way co-citation
counts are defined. Co-citation counting provides the data on which all subsequent statistical analyses and mappings
are based, and we compare ACA results based on two different types of co-citation counting - the traditional type that
only counts the first one among a cited work's authors on the one hand and a non-traditional type that takes into
account the first 5 authors of a cited work on the other hand. Results indicate that the picture produced through this non-traditional author co-citation counting contains more coherent author groups and is therefore considerably clearer. However, this picture represents fewer specialties in the research field being studied than that produced through the traditional first-author co-citation counting when the same number of top-ranked authors is selected and analyzed. Reasons for these effects are discussed
Variations on the Author
Get PDF“Variations on the Author” discusses two of Eduardo Coutinho’s recent films (Um Dia na Vida, from 2010, and Últimas Conversas, posthumously released in 2015) and their contribution to the general question of documentary authorship. The director’s filmography is characterized by a consistent yet self-effacing form of authorial self-inscription: Coutinho often features as an interviewer that rather than express opinions propels discourses; an interviewer that is good at listening. This mode of self-inscription characterizes him as an author who is not expressive but who is nonetheless markedly present on the screen. In Um Dia na Vida, however, Coutinho is completely absent form the image, while Últimas Conversas, on the contrary, includes a confessional prologue that moves the director from the margins to the center of his films. This article examines the ways in which these works stand out in the filmography of a director who offers new insights into the notion of cinematic authorship
Appropriate Similarity Measures for Author Cocitation Analysis
Get PDFWe provide a number of new insights into the methodological discussion about author cocitation analysis. We first argue that the use of the Pearson correlation for measuring the similarity between authors’ cocitation profiles is not very satisfactory. We then discuss what kind of similarity measures may be used as an alternative to the Pearson correlation. We consider three similarity measures in particular. One is the well-known cosine. The other two similarity measures have not been used before in the bibliometric literature. Finally, we show by means of an example that our findings have a high practical relevance.information science;Pearson correlation;cosine;similarity measure;author cocitation analysis
Dispelling the Myths Behind First-author Citation Counts
Get PDFWe conducted a full-scale evaluative citation analysis study of scholars in the XML research field to explore just how different from each other author rankings resulting from different citation counting methods actually are, and to demonstrate the capability of emerging data and tools on the Web in supporting more realistic citation counting methods. Our results contest some common arguments for the continued
use of first-author citation counts in the evaluation of scholars, such as high correlations between author rankings by first-author citation counts and other citation
counting methods, and high costs of using more realistic citation counting methods that are not well-supported by the ISI databases. It is argued that increasingly available digital full text research papers make it possible for citation analysis studies to go beyond what the ISI databases have directly supported and to employ more
sophisticated methods
koamabayili/VECTRON-author-checklist: VECTRON author checklist
No full textWe have done our best to complete the author checklist relating to the use of animals in the hut study. Note that the objective for the hut study was to evaluate the IRS treatment applications for residual efficacy against Anopheles mosquitoes, including the local An. coluzzii mosquito population. Cows were only used to attract mosquitoes into the huts and no tests were carried out directly on the cows. The author checklist is intended for use with studies where experiments are carried out on animals, which is why we have had such difficulty in completing this for the hut study, as many of the questions do not relate to how the cows were used
Author-wise bibliometric analysis based on entropy.
No full textAuthor-wise bibliometric analysis based on entropy.</p
- …
