2 research outputs found

    Palliative Care 2024 Legislative Priorities / presented by Douglas Neal, MPH, Palliative Care Program Manager, Kansas Department of Health and Environment.

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    January 17, 2024. Presentation before the Kansas Legislature, Senate Public Health and Welfare Committee, presented by Douglas Neal, MPH, Palliative Care Program Manager, Kansas Department of Health and Environment. Committee name and presentation date taken from Kansas Legislature website."Palliative care is comprehensive, interdisciplinary care for patients living with serious, potentially life-threatening or life-limiting conditions, with the goal of improving quality of life for both the patient and family. This approach to care prevents and relieves suffering through the early identification, assessment and treatment of pain and other problems, whether physical, psychosocial or spiritual. Palliative care is delivered based on needs, not prognosis. It is appropriate at any age or any stage of an illness and can be delivered along with curative treatment."Definition of Palliative Care Serious Illness Defined for a Population Health Approach Palliative Care Council Representation Palliative Care Ensures Value National Workforce Shortage Kansas Workforce Shortage (board/specialty certified) Kansas Workforce Shortage (of adults with illness or disability) Kansas Professional Workforce Shortage and Immediate Needs The Council Identified Four Priority Areas in the 5-Year State Plan Priority 2: Education and Health Care Workforce Training Education and Health Care Workforce Training Recommendations Project ECHO [Extension for Community Health Care Outcomes] The Request Gratitude for Legislative Suppor

    Adult palliative day-care services : an investigation of the factors influencing access to services using the case of a cancer network in the United Kingdom

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    Background: Literature indicates underutilization of Palliative Care Services in the UK, with possible inequalities of access. These trends in underutilization are seen in Adult-Palliative Day-Care (APDC), a Specialist Palliative Care Service delivered in the outpatient setting. However, gaps in knowledge remain regarding if underutilization in APDC is real, and the identity and nature of the factors which determine access. Aim: The overall research question was “What are the factors which act to determine access to APDC?”. Five sub-questions for exploration in the context of access were formulated relating to the: perceived health care needs of users; the benefits of using APDC, and understandings of the role of APDC as a palliative care service. Methods: The study site was a cancer network in the Midlands of England which covered rural and urban areas. It contained 5 APDC units, 3 Primary Care Trusts, and 3 Acute Care Trusts. Fifty semistructured in-depth interviews were conducted with: 19 providers of APDC; 13 health professional referrers; 11 palliative care patients who had used the service; and 7 of their carers. The reasons for non-attendance for 149 patients who were referred to day-care but did not attend were also analysed. Thematic analysis with constant comparison and content analysis were used to analyse transcripts and document data respectively. Results: Eighteen determinants of access were identified arising out of the characteristics of the: potential service user (2), the health service or organization (9), and from interactions between potential service users, the family, the wider society, and the health service (7). The study found that utilization measures in APDC may not be accurately representing service use, as APDC units maybe functioning at their maximum capacity while current calculation methods report underutilization. Conclusion: New insights into accessing APDC are presented which and may have applications for future policy and research
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