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Figure 1 from: Kamusheva M, Milushewa P (2021) Rare disease patients' needs: an up-to-date analysis and future directions. Pharmacia 68(4): 763-770. https://doi.org/10.3897/pharmacia.68.e73240
No full textFigure 1 Rare disease – future aspects
Going Beyond Counting First Authors in Author Co-citation Analysis
Get PDFThe present study examines one of the fundamental aspects of author co-citation analysis (ACA) - the way co-citation
counts are defined. Co-citation counting provides the data on which all subsequent statistical analyses and mappings
are based, and we compare ACA results based on two different types of co-citation counting - the traditional type that
only counts the first one among a cited work's authors on the one hand and a non-traditional type that takes into
account the first 5 authors of a cited work on the other hand. Results indicate that the picture produced through this non-traditional author co-citation counting contains more coherent author groups and is therefore considerably clearer. However, this picture represents fewer specialties in the research field being studied than that produced through the traditional first-author co-citation counting when the same number of top-ranked authors is selected and analyzed. Reasons for these effects are discussed
Variations on the Author
Get PDF“Variations on the Author” discusses two of Eduardo Coutinho’s recent films (Um Dia na Vida, from 2010, and Últimas Conversas, posthumously released in 2015) and their contribution to the general question of documentary authorship. The director’s filmography is characterized by a consistent yet self-effacing form of authorial self-inscription: Coutinho often features as an interviewer that rather than express opinions propels discourses; an interviewer that is good at listening. This mode of self-inscription characterizes him as an author who is not expressive but who is nonetheless markedly present on the screen. In Um Dia na Vida, however, Coutinho is completely absent form the image, while Últimas Conversas, on the contrary, includes a confessional prologue that moves the director from the margins to the center of his films. This article examines the ways in which these works stand out in the filmography of a director who offers new insights into the notion of cinematic authorship
Appropriate Similarity Measures for Author Cocitation Analysis
Get PDFWe provide a number of new insights into the methodological discussion about author cocitation analysis. We first argue that the use of the Pearson correlation for measuring the similarity between authors’ cocitation profiles is not very satisfactory. We then discuss what kind of similarity measures may be used as an alternative to the Pearson correlation. We consider three similarity measures in particular. One is the well-known cosine. The other two similarity measures have not been used before in the bibliometric literature. Finally, we show by means of an example that our findings have a high practical relevance.information science;Pearson correlation;cosine;similarity measure;author cocitation analysis
Rare disease patients’ needs: an up-to-date analysis and future directions
No full textThe interest to rare diseases has increased in the recent decades. Legislation seeks to facilitate patients’ access to innovative and effective treatment and to define incentives for pharmaceutical and biotechnology companies to develop new medicines for rare diseases.The current review presents the current knowledge and adopted solutions in the field of rare diseases and discusses the future issues and unmet needs that should be resolved for affected patients and their families. Along with the positive trends in the field of rare diseases, there are still issues related to diagnosis and inequal care for some patients groups that should be solved over the next decade. The innovative digital health methods, which have been improved continuously in the recent years, implementation of improved versions of patient-centered policy plans and programs and investment in advanced therapies could move forward the rare diseases to new horizons giving them the opportunity to overcome the main barriers and challenges in the whole journey of the patients – from diagnosis through treatment to follow-up
Analysis of medicinal product shortages in Bulgarian hospital settings in 2023: addressing procedures and unmet needs
No full textObjective: This study aims to examine the national landscape of medicine shortages in Bulgaria, with an emphasis on the supply and procurement of medicines requested by hospital facilities due to their absence from the domestic market. Materials and methods: A mixed-method approach was employed, combining regulatory and real-world data analysis. European and national legislation governing the supply of unavailable medicines in Bulgaria, including the Medicinal Products in Human Medicine Act and Ordinance No. 10, were reviewed. Data on unavailable medicinal products imported into Bulgaria in 2023 were obtained from the Bulgarian Drug Agency. These data were categorized into therapeutic classes, dosage forms, and regulatory pathways, with additional analysis of price regulation and World Health Organization Essential Medicines List status. Results: In 2023, Bulgaria imported 165 INNs that were unavailable through the standard supply chain and reimbursement system due to their absence from the local market. Of these, 35% were procured under the regulatory framework established by Article 266a of the Medicinal Products in Human Medicine Act. These imports comprised 1,996 deliveries to hospital facilities nationwide. The analysis identified significant shortages in key therapeutic areas, including oncology, cardiovascular care, and critical care. The imported products were predominantly opioid analgesics, anticoagulants, anticancer medications, and diagnostic tools. Notably, several of these medicines are listed in the World Health Organization Essential Medicines List, underscoring their critical importance in addressing unmet healthcare needs. Conclusion: Medicine shortages in Bulgaria present substantial challenges to healthcare delivery, further complicated by complex regulatory, economic, and market dynamics. Legislative mechanisms could not ensure the availability of some essential medicines. This study highlights the need for comprehensive national strategies to address shortages effectively, drawing on best practices from other European Union Member States. Future research should focus on expanding the assessment of shortages to enhance healthcare resilience and ensure continuous access to essential treatments
Dispelling the Myths Behind First-author Citation Counts
Get PDFWe conducted a full-scale evaluative citation analysis study of scholars in the XML research field to explore just how different from each other author rankings resulting from different citation counting methods actually are, and to demonstrate the capability of emerging data and tools on the Web in supporting more realistic citation counting methods. Our results contest some common arguments for the continued
use of first-author citation counts in the evaluation of scholars, such as high correlations between author rankings by first-author citation counts and other citation
counting methods, and high costs of using more realistic citation counting methods that are not well-supported by the ISI databases. It is argued that increasingly available digital full text research papers make it possible for citation analysis studies to go beyond what the ISI databases have directly supported and to employ more
sophisticated methods
koamabayili/VECTRON-author-checklist: VECTRON author checklist
No full textWe have done our best to complete the author checklist relating to the use of animals in the hut study. Note that the objective for the hut study was to evaluate the IRS treatment applications for residual efficacy against Anopheles mosquitoes, including the local An. coluzzii mosquito population. Cows were only used to attract mosquitoes into the huts and no tests were carried out directly on the cows. The author checklist is intended for use with studies where experiments are carried out on animals, which is why we have had such difficulty in completing this for the hut study, as many of the questions do not relate to how the cows were used
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