1,720,955 research outputs found
“That kind of changes things”: a meta-synthesis of the lived experiences of people with chronic heart disease
No full textAbstract Aims To explore the lived experiences of people with chronic heart disease (PCHD). Design Systematic meta-synthesis. Methods Following preregistration on PROSPERO, a systematic literature search was conducted in PubMed, PsycInfo, PsycArticles, and PSYNDEX between February 2023 and March 2024. Articles were assessed for eligibility based on predefined criteria and evaluated for methodological quality using a modified CASP tool. The results of the included primary studies were weighted according to their methodological quality and synthesized using Interpretative Phenomenological Analysis. The reporting adheres to PRISMA and ENTREQ guidelines. Results The analysis of 43 articles revealed an overarching theme: “The broken flow of life.” This theme illustrates the disruption of normalcy, as perceived by patients through distinct dimensions. These dimensions are represented by the four subthemes: (1) I no longer feel safe in my body, (2) Suddenly, I have less of a future, (3) My identity feels shattered, and (4) My disease strains my relationships. Conclusions The findings suggest that PCHD perceive their condition as a profound disruption of normalcy, affecting bodily, relational, and psychological dimensions that extend beyond established HRQOL measures. Implications The findings have direct implications for the assessment of HRQOL in medicine. To adequately evaluate holistic treatments, a deeper understanding of how the disease affects life planning and future perspectives is essential. Consequently, established HRQOL measures may need to be extended both in content and temporal scope to capture these broader impacts
"Shortly Afterwards I Was Practically Dead"-Temporal Experiences of Middle-Aged Individuals With Heart Disease: An Interpretative Phenomenological Analysis
No full textChanges in the experience of time have originally been described in mental disorders within the framework of the phenomenological psychopathology of the lived time. Both phenomenological and qualitative empirical studies have shown that physical illnesses, such as cancer or chronic pain, can be accompanied by a change in experienced temporality. Likewise, the sudden onset of severe heart disease in early and middle age represents a biographical break for the patient and can lead to numerous changes in the experience of time. In our qualitative study, a purposive sample of sixteen patients aged 30-59 years was included. Of these, four patients had sudden cardiac arrest, seven had myocardial infarction, and five had other severe cardiac diseases. Phenomenological semi-structured interviews were conducted and analyzed using interpretative phenomenological analysis. Patients reported that their temporality changed after serious heart disease. The experience of the participants can be summarized in five themes: "Heart disease as a biographical turning point," "The clock can stop any moment," "Feeling prematurely aged by heart disease," "Other people's time is not my time," and "Just living in the moment." From a psychocardiological perspective, a temporal analysis of severe heart disease can help caregivers understand and support patients better. Further studies should be conducted on cardiac patients with a lower disease burden, sex-specific issues, and young cardiac patients with congenital heart disease
Working towards a new normal: a meta-synthesis of patient-reported aspects of a good life with heart disease
No full textAbstract Aims This meta-synthesis challenges the medical notion of health-related quality of life (HRQOL) by identifying aspects of the more holistic philosophical concept of the good life from the perspective of patients with heart disease. Design Systematic meta-synthesis. Methods Following preregistration on PROSPERO, a systematic literature search was conducted in PubMed, PsycInfo, PsycArticles, and PSYNDEX from February 2023 to March 2024. Studies focusing on the experiences of adults living with heart disease were included based on predefined criteria. Articles were assessed for methodological quality using a modified CASP tool, and data synthesis followed Interpretative Phenomenological Analysis. Reporting adheres to PRISMA and ENTREQ guidelines. Results Forty-three articles were included, revealing the overarching theme of “Working towards a new normal,” with four sub-themes: (1) Feeling safe in my own body again, (2) Important relationships provide security and meaning, (3) Taking my life into my own hands again and (4) Living more consciously. Conclusions While HRQOL is a valuable and widely used concept, it primarily captures quality of life from a functional perspective. Qualitative studies on individuals with heart disease reveal the additional aspects of coherence, connectedness, and self-determination that align more closely with the concept of a good life. Implications To enhance care and counseling for patients with heart disease, the concept of HRQOL should be broadened to incorporate preferences, interests, and needs regarding life planning, aligned with the notion of a good life
Going Beyond Counting First Authors in Author Co-citation Analysis
Full text linkThe present study examines one of the fundamental aspects of author co-citation analysis (ACA) - the way co-citation
counts are defined. Co-citation counting provides the data on which all subsequent statistical analyses and mappings
are based, and we compare ACA results based on two different types of co-citation counting - the traditional type that
only counts the first one among a cited work's authors on the one hand and a non-traditional type that takes into
account the first 5 authors of a cited work on the other hand. Results indicate that the picture produced through this non-traditional author co-citation counting contains more coherent author groups and is therefore considerably clearer. However, this picture represents fewer specialties in the research field being studied than that produced through the traditional first-author co-citation counting when the same number of top-ranked authors is selected and analyzed. Reasons for these effects are discussed
Variations on the Author
Full text link“Variations on the Author” discusses two of Eduardo Coutinho’s recent films (Um Dia na Vida, from 2010, and Últimas Conversas, posthumously released in 2015) and their contribution to the general question of documentary authorship. The director’s filmography is characterized by a consistent yet self-effacing form of authorial self-inscription: Coutinho often features as an interviewer that rather than express opinions propels discourses; an interviewer that is good at listening. This mode of self-inscription characterizes him as an author who is not expressive but who is nonetheless markedly present on the screen. In Um Dia na Vida, however, Coutinho is completely absent form the image, while Últimas Conversas, on the contrary, includes a confessional prologue that moves the director from the margins to the center of his films. This article examines the ways in which these works stand out in the filmography of a director who offers new insights into the notion of cinematic authorship
Appropriate Similarity Measures for Author Cocitation Analysis
Full text linkWe provide a number of new insights into the methodological discussion about author cocitation analysis. We first argue that the use of the Pearson correlation for measuring the similarity between authors’ cocitation profiles is not very satisfactory. We then discuss what kind of similarity measures may be used as an alternative to the Pearson correlation. We consider three similarity measures in particular. One is the well-known cosine. The other two similarity measures have not been used before in the bibliometric literature. Finally, we show by means of an example that our findings have a high practical relevance.information science;Pearson correlation;cosine;similarity measure;author cocitation analysis
Dispelling the Myths Behind First-author Citation Counts
Full text linkWe conducted a full-scale evaluative citation analysis study of scholars in the XML research field to explore just how different from each other author rankings resulting from different citation counting methods actually are, and to demonstrate the capability of emerging data and tools on the Web in supporting more realistic citation counting methods. Our results contest some common arguments for the continued
use of first-author citation counts in the evaluation of scholars, such as high correlations between author rankings by first-author citation counts and other citation
counting methods, and high costs of using more realistic citation counting methods that are not well-supported by the ISI databases. It is argued that increasingly available digital full text research papers make it possible for citation analysis studies to go beyond what the ISI databases have directly supported and to employ more
sophisticated methods
koamabayili/VECTRON-author-checklist: VECTRON author checklist
No full textWe have done our best to complete the author checklist relating to the use of animals in the hut study. Note that the objective for the hut study was to evaluate the IRS treatment applications for residual efficacy against Anopheles mosquitoes, including the local An. coluzzii mosquito population. Cows were only used to attract mosquitoes into the huts and no tests were carried out directly on the cows. The author checklist is intended for use with studies where experiments are carried out on animals, which is why we have had such difficulty in completing this for the hut study, as many of the questions do not relate to how the cows were used
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