1,721,030 research outputs found
Cultural myths, superstitions, and stigma surrounding dementia in a UK Bangladeshi community
Get PDFThe last three census data highlighted that UK Bangladeshi communities have the worst health outcomes. This includes a higher risk of type two diabetes and heart diseases; both are risk factors for developing vascular dementia. However, little is known about Bangladeshi community members’ understandings of dementia, including cultural myths. This paper focuses on the cultural myths, superstitions, and stigma surrounding dementia in an English Bangladeshi community from the direct experiences of people living with dementia, their caregivers, and the views of dementia service providers/stakeholders. This qualitative research was undertaken with three distinct participant groups using semistructured interviews (n = 25), who were recruited from community settings. The first and second participant groups explored the experiences of people with dementia (n = 10) and their family caregivers (n = 10). The third group examined stakeholders’/service providers’ views (n = 5). Interviews were recorded digitally and transcribed verbatim. Findings were reached using an interpretive approach, emphasising the sense people make in their own lives and experiences and how they frame and understand dementia. The study revealed that participants with dementia and their caregivers have “alternative” knowledge about dementia and do not necessarily understand dementia in a Westernised scientific/biomedical context. Misconceptions about dementia and belief in various myths and superstitions can lead people to go to spiritual healers or practice traditional remedies rather than to their GPs, delaying their dementia diagnosis. This paper concludes that there is a lack of awareness among the Bangladeshi participants and a need for targeted awareness about dementia to help dispel cultural myths and combat the stigma surrounding dementia within the Bangladeshi community
Intergenerational Voices: Exploring South Asian Multigenerational Living
No full textThe growing prevalence of multigenerational households presents unique opportunities and challenges for families. Cultural values, such as filial piety, play a crucial role in shaping these living arrangements, but there is limited research on the self-reported experiences of individuals within these households, particularly in South Asian communities. This thesis explores the lived experiences of South Asian families residing in multigenerational households in Canada, with a focus on how caregiving, faith, cultural transmission, and generational roles are negotiated within these shared spaces. Drawing on in-depth qualitative interviews across three generational cohorts - young adults, middle-aged adults, and older adults - this research investigates how familial responsibilities, intergenerational dynamics, and cultural values are distributed, challenged, and maintained within these households. Using a life course perspective (Hareven, 1994), the study highlights the ways in which individual transitions (e.g., caregiving, entering the workforce, aging) intersect with the family as a whole. The findings were analyzed using Braun and Clarke’s (2006) six-stage framework for thematic analysis and four key themes were identified. Participants highlighted the emotional and logistical complexities of caregiving in multigenerational homes, the dual role of faith, and the evolving expressions of identity and autonomy across generations. Findings reveal that while multigenerational living can foster emotional support and cultural continuity, it also creates challenges related to generational power dynamics, communication styles, and uneven caregiving burdens. Policy implications underscore the need for culturally sensitive support for migrant families, particularly in navigating caregiving, housing, and integration services. This research contributes to the growing literature on multigenerational living, migration, and family dynamics by offering insights into the everyday negotiations that shape shared households across generations.ThesisMaster of Arts (MA)This research explores what it’s like for South Asian families living in multigenerational households in Canada, where grandparents, parents, and children share the same home. Through interviews with individuals across three age groups, the study looks at how families manage caregiving, pass down cultural and religious values, and navigate changing roles between generations. While living together can offer emotional support and help preserve traditions, it also brings challenges, like communication difficulties and unequal caregiving responsibilities. The study uses a life course approach to show how personal life changes, such as aging or starting work, affect and are affected by the family as a whole. The findings highlight the need for policies that better support migrant families, especially in areas like housing and caregiving. Overall, this research helps us understand both the strengths and struggles of multigenerational living from the perspective of those experiencing it firsthand
Going Beyond Counting First Authors in Author Co-citation Analysis
Get PDFThe present study examines one of the fundamental aspects of author co-citation analysis (ACA) - the way co-citation
counts are defined. Co-citation counting provides the data on which all subsequent statistical analyses and mappings
are based, and we compare ACA results based on two different types of co-citation counting - the traditional type that
only counts the first one among a cited work's authors on the one hand and a non-traditional type that takes into
account the first 5 authors of a cited work on the other hand. Results indicate that the picture produced through this non-traditional author co-citation counting contains more coherent author groups and is therefore considerably clearer. However, this picture represents fewer specialties in the research field being studied than that produced through the traditional first-author co-citation counting when the same number of top-ranked authors is selected and analyzed. Reasons for these effects are discussed
Facilitating independence: The benefits of a post-diagnostic support project for people with dementia.
No full textProviding support in the form of information, advice and access to services or social events is promoted as beneficial for people newly diagnosed with dementia and their families. This paper reports on key findings from an evaluation of a post-diagnostic support pilot project in Scotland addressing local service gaps, namely information provision, emotional and practical support and maintaining community links. Twenty-seven participants (14 people newly diagnosed with dementia and 13 family carers) were interviewed at two time points: T1 shortly after joining the pilot project and T2 approximately six months later, to ascertain their views on existing services and the support offered by the pilot project. A comparative thematic analysis revealed that the project facilitated increased independence (associated with increased motivation and self-confidence) of people with dementia. The project illustrates what can be achieved if resources are targeted at providing individualised post-diagnostic support, particularly where there are service delivery gaps
Variations on the Author
Get PDF“Variations on the Author” discusses two of Eduardo Coutinho’s recent films (Um Dia na Vida, from 2010, and Últimas Conversas, posthumously released in 2015) and their contribution to the general question of documentary authorship. The director’s filmography is characterized by a consistent yet self-effacing form of authorial self-inscription: Coutinho often features as an interviewer that rather than express opinions propels discourses; an interviewer that is good at listening. This mode of self-inscription characterizes him as an author who is not expressive but who is nonetheless markedly present on the screen. In Um Dia na Vida, however, Coutinho is completely absent form the image, while Últimas Conversas, on the contrary, includes a confessional prologue that moves the director from the margins to the center of his films. This article examines the ways in which these works stand out in the filmography of a director who offers new insights into the notion of cinematic authorship
Appropriate Similarity Measures for Author Cocitation Analysis
Get PDFWe provide a number of new insights into the methodological discussion about author cocitation analysis. We first argue that the use of the Pearson correlation for measuring the similarity between authors’ cocitation profiles is not very satisfactory. We then discuss what kind of similarity measures may be used as an alternative to the Pearson correlation. We consider three similarity measures in particular. One is the well-known cosine. The other two similarity measures have not been used before in the bibliometric literature. Finally, we show by means of an example that our findings have a high practical relevance.information science;Pearson correlation;cosine;similarity measure;author cocitation analysis
A critical evaluation of the implementation process of a person-centred model of care in a new dementia specific care home
Get PDFThis thesis addresses the challenges associated with the implementation of models of person-centred care in newly operational care homes in an English context. This study critically evaluates a model of care produced in house, with academic support named in this thesis as EMBRACELIFE. The implementation of person-centred care in newly opened care settings is yet to be explored.
Data collection took place between September and November 2015. An ethnographic approach was taken to fieldwork. Semi-structured interviews and/or unstructured observations were conducted with 20 care workers and 10 people with dementia. Document analysis was also undertaken on 6 personal care plans. A letter from the care provider completed the data set. A thematic approach to data collection was undertaken, informed by principles of discourse analysis.
The finding revealed a culture of care organised around task. Overarching themes indicative of task-based practice were the care planning, activity, outdoor space, care worker perceptions, the mealtime experience, leadership and a lack of choice. The model of care was therefore not fully implemented. The research indicated the implementation process was hindered by organisational issues. These were inadequate staff training, unmet staff expectations, low staff satisfaction, a lack of a team ethos, a high agency staff presence, a lack of flexible care delivery. The newly operational status of the home had a uniquely mediating influence on these findings due to the challenge of assembling a new staff team, having a domino effect on the organisational issues described.
This thesis concludes by suggesting care providers are in need of more support if they are to overcome organisational barriers, accentuated by the challenges of opening a new care home, to achieve person-centred cultures of care in such settings
An Exploration of the Role of Neighbours in Providing Support and Care to Older People Living with Dementia in their own Homes
Get PDFPeople now live longer because of improved health and medical sciences. However, ageing if often accompanied by various health and social challenges. Research suggests that as families become more geographically dispersed, there has been a reduction in the availability of kin as primary caregivers for many older people, including those living with dementia. Therefore, there is a need for a better understanding of the complexities of the delivery of support to older adults in the community. While much research has focused on informal care provided by kin, little attention has been paid to the nature of support delivered by non-kin such as neighbours, resulting in their support being relatively overlooked. This study contends that non-kin care is not adequately understood, resulting in a gap in understanding the intricacies of informal care giving. The objective therefore is to enhance understanding of the experiences of support provision by neighbours to older adults aged 65 plus, living with dementia in their own homes and particularly in situations where family members are not available. Focusing explicitly on people living with dementia, this research adds to our understanding of the relationships between neighbours providing and receiving informal support. Drawing on the principles of person-centred care, applied to qualitative framework, I investigated the experiences of neighbour caregivers in providing care and support to older people living with dementia in their own homes. I gathered data using semi-structured interviews. Six older people living with dementia and seven neighbours with experience of supporting older people living with dementia were interviewed. The data was analysed using thematic analysis and themes identified show the existence of pre-care giving relationships; care giving motivated by compassion, community service, and friendship; varied, stressful and complex support system that sometimes leads to tensions; selfless and non-transactional relationships that emanate because of living alone and loneliness. I argue for a better understanding of the non-kin neighbour dementia support system and to incorporate our understanding into care planning in the community. These findings have implications for policy making, social work practice, and the sustainability of non-kin support relationships
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