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Experiences of being a relative to a person receiving palliative care in the end of life : A literature based study
No full textBackground – Most likely, nurses will be in contact with patients and their relatives in palliative care at the end of life at some point in their careers. Studies have shown that relatives (family members or close friends) play a crucial role in palliative care, and that communication is a key factor in providing support for relatives. For optimal care provision, it is essential for nurses to consider and comprehend the experiences of relatives involved in palliative care at the end of life. Aim – The aim of the study was to describe the experiences of being relative to a person receiving palliative care in the end of life. Method – For this study a literature-based study grounded in analysis of qualitative researchwas used (Friberg, 2017). The qualitative method aims to create an understanding of individual’s experiences, perceptions, and needs. Nine scientific studies where analyzed. Results – Three themes where found; 1) The importance of communication and cooperation, 2) Respect and understanding, 3) Emotional challenges. Relatives express a need for clear and accessible information to alleviate stress and enhance their ability to support their loved ones effectively. Active involvement in care decisions and a person-centered approach were underscored as pivotal. Conclusion – The study underscores the significance of tailored information dissemination, active involvement of relatives in care decisions, and a person-centered approach to honor the dignity of patients in end-of-life care. Addressing these aspects can significantly improve the end-of-life experience for patients and their relatives.Syftet med denna studie var att beskriva erfarenheter av att vara närstående till en person som erhöll palliativ vård i livets slutskede. Närstående påverkas betydligt av situationen då livets slutskede hos deras anhörige väcker många olika känslor och upplevelser. Efter noggrann granskning och analys av nio vetenskapliga artiklar framkom att närstående önskade att få detaljerad information och ville vara mer involverade i vårdbeslut som tas för deras anhörige. När närstående fick vara delaktiga i vården ökade deras välbefinnande. Resultatet tydliggjorde även vikten av att bevara patientens integritet genom att individanpassa vården för att säkerställa en lugn och fridfull palliativ vård i livets slutskede. Närstående uttryckte en önskan om att undvika onödigt lidande för sin anhörige. Närstående menade att detta kunde uppnås genom att deras anhörige fick smärtlindring vid behov. Dessutom efterfrågade närstående stöd från sjuksköterskan, vilket visade sig vara av stor betydelse för att hantera denna känsliga period i livet. Diskussionen belyser sjuksköterskans centrala roll i att möta närståendes behov. Detta inkluderar att patientens integritet beaktas genom att ge en respektfull vård. Diskussionen framhåller närståendes behov av stöd och sjuksköterskans roll i att tillhandahålla känslomässigt stöd och lindra lidande. Genom att bättre förstå och tillgodose närståendes behov kan sjuksköterskan skapa en mer stödjande och empatisk vårdmiljö för både patienten och deras närstående under livets slutskede
Experiences of being a relative to a person receiving palliative care in the end of life : A literature based study
No full textBackground – Most likely, nurses will be in contact with patients and their relatives in palliative care at the end of life at some point in their careers. Studies have shown that relatives (family members or close friends) play a crucial role in palliative care, and that communication is a key factor in providing support for relatives. For optimal care provision, it is essential for nurses to consider and comprehend the experiences of relatives involved in palliative care at the end of life. Aim – The aim of the study was to describe the experiences of being relative to a person receiving palliative care in the end of life. Method – For this study a literature-based study grounded in analysis of qualitative researchwas used (Friberg, 2017). The qualitative method aims to create an understanding of individual’s experiences, perceptions, and needs. Nine scientific studies where analyzed. Results – Three themes where found; 1) The importance of communication and cooperation, 2) Respect and understanding, 3) Emotional challenges. Relatives express a need for clear and accessible information to alleviate stress and enhance their ability to support their loved ones effectively. Active involvement in care decisions and a person-centered approach were underscored as pivotal. Conclusion – The study underscores the significance of tailored information dissemination, active involvement of relatives in care decisions, and a person-centered approach to honor the dignity of patients in end-of-life care. Addressing these aspects can significantly improve the end-of-life experience for patients and their relatives.Syftet med denna studie var att beskriva erfarenheter av att vara närstående till en person som erhöll palliativ vård i livets slutskede. Närstående påverkas betydligt av situationen då livets slutskede hos deras anhörige väcker många olika känslor och upplevelser. Efter noggrann granskning och analys av nio vetenskapliga artiklar framkom att närstående önskade att få detaljerad information och ville vara mer involverade i vårdbeslut som tas för deras anhörige. När närstående fick vara delaktiga i vården ökade deras välbefinnande. Resultatet tydliggjorde även vikten av att bevara patientens integritet genom att individanpassa vården för att säkerställa en lugn och fridfull palliativ vård i livets slutskede. Närstående uttryckte en önskan om att undvika onödigt lidande för sin anhörige. Närstående menade att detta kunde uppnås genom att deras anhörige fick smärtlindring vid behov. Dessutom efterfrågade närstående stöd från sjuksköterskan, vilket visade sig vara av stor betydelse för att hantera denna känsliga period i livet. Diskussionen belyser sjuksköterskans centrala roll i att möta närståendes behov. Detta inkluderar att patientens integritet beaktas genom att ge en respektfull vård. Diskussionen framhåller närståendes behov av stöd och sjuksköterskans roll i att tillhandahålla känslomässigt stöd och lindra lidande. Genom att bättre förstå och tillgodose närståendes behov kan sjuksköterskan skapa en mer stödjande och empatisk vårdmiljö för både patienten och deras närstående under livets slutskede
Going Beyond Counting First Authors in Author Co-citation Analysis
Get PDFThe present study examines one of the fundamental aspects of author co-citation analysis (ACA) - the way co-citation
counts are defined. Co-citation counting provides the data on which all subsequent statistical analyses and mappings
are based, and we compare ACA results based on two different types of co-citation counting - the traditional type that
only counts the first one among a cited work's authors on the one hand and a non-traditional type that takes into
account the first 5 authors of a cited work on the other hand. Results indicate that the picture produced through this non-traditional author co-citation counting contains more coherent author groups and is therefore considerably clearer. However, this picture represents fewer specialties in the research field being studied than that produced through the traditional first-author co-citation counting when the same number of top-ranked authors is selected and analyzed. Reasons for these effects are discussed
Variations on the Author
Get PDF“Variations on the Author” discusses two of Eduardo Coutinho’s recent films (Um Dia na Vida, from 2010, and Últimas Conversas, posthumously released in 2015) and their contribution to the general question of documentary authorship. The director’s filmography is characterized by a consistent yet self-effacing form of authorial self-inscription: Coutinho often features as an interviewer that rather than express opinions propels discourses; an interviewer that is good at listening. This mode of self-inscription characterizes him as an author who is not expressive but who is nonetheless markedly present on the screen. In Um Dia na Vida, however, Coutinho is completely absent form the image, while Últimas Conversas, on the contrary, includes a confessional prologue that moves the director from the margins to the center of his films. This article examines the ways in which these works stand out in the filmography of a director who offers new insights into the notion of cinematic authorship
Appropriate Similarity Measures for Author Cocitation Analysis
Get PDFWe provide a number of new insights into the methodological discussion about author cocitation analysis. We first argue that the use of the Pearson correlation for measuring the similarity between authors’ cocitation profiles is not very satisfactory. We then discuss what kind of similarity measures may be used as an alternative to the Pearson correlation. We consider three similarity measures in particular. One is the well-known cosine. The other two similarity measures have not been used before in the bibliometric literature. Finally, we show by means of an example that our findings have a high practical relevance.information science;Pearson correlation;cosine;similarity measure;author cocitation analysis
Dispelling the Myths Behind First-author Citation Counts
Get PDFWe conducted a full-scale evaluative citation analysis study of scholars in the XML research field to explore just how different from each other author rankings resulting from different citation counting methods actually are, and to demonstrate the capability of emerging data and tools on the Web in supporting more realistic citation counting methods. Our results contest some common arguments for the continued
use of first-author citation counts in the evaluation of scholars, such as high correlations between author rankings by first-author citation counts and other citation
counting methods, and high costs of using more realistic citation counting methods that are not well-supported by the ISI databases. It is argued that increasingly available digital full text research papers make it possible for citation analysis studies to go beyond what the ISI databases have directly supported and to employ more
sophisticated methods
koamabayili/VECTRON-author-checklist: VECTRON author checklist
No full textWe have done our best to complete the author checklist relating to the use of animals in the hut study. Note that the objective for the hut study was to evaluate the IRS treatment applications for residual efficacy against Anopheles mosquitoes, including the local An. coluzzii mosquito population. Cows were only used to attract mosquitoes into the huts and no tests were carried out directly on the cows. The author checklist is intended for use with studies where experiments are carried out on animals, which is why we have had such difficulty in completing this for the hut study, as many of the questions do not relate to how the cows were used
Author-wise bibliometric analysis based on entropy.
No full textAuthor-wise bibliometric analysis based on entropy.</p
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