1,720,975 research outputs found
Adolescent and Young Adult Rheumatology In Clinical Practice
No full textItem is not available in this repository.This concise guide takes a practical approach to adolescent and young adult (AYA) rheumatology, encompassing the needs of any healthcare professional working with young people aged 10-24 years. Each chapter contains key management points for readers to readily access disease-specific management, as well as highlighting specific AYA issues and approaches which differ from paediatric and adult practice.
Adolescent and Young Adult Rheumatology In Clinical Practice, 2nd Edition has been fully revised with the latest research and clinical findings in the field. The coverage in the book is comprehensive but concise and devised to act as a primary reference tool for AYA practice across the field of rheumatology. The book is designed for paediatric/adult rheumatologists, primary care physicians, nurses and allied health professionals to increase understanding of AYA related topics and enhance the delivery of developmentally appropriate rheumatology health care.https://doi.org/10.1007/978-3-031-82102-8pubpu
Transitional Care
No full textItem is not available in this repository.Transitional care continues to be a neglected area of practice in both adult and children’s services, with persisting confusion between the concepts of transition and transfer, often leading to unsatisfactory experiences and poorer long-term outcomes for adolescents and young adults (AYA). Unlike transfer, which is a one-off event, transitional care is a gradual, coordinated and developmentally appropriate, holistic approach, that not only prepares the young person for the eventual transfer to adult services, but attends to wider psychosocial aspects of their life, and other co-occurring transitions related to education, work, home life and other personal and culturally relevant transitions. Importantly, transitional care is person centred and responsive to the unique needs of the AYA which requires effective interpersonal skills, leadership, and flexibility on the part of the health provider, as well as robust policy and protocols. With permission, it also involves the young person’s care givers and supports them to develop their skills and knowledge in supporting AYA during this period. In practice, transitional care requires excellent multidisciplinary and multiagency teamwork, communication, and coordination, which should be planned and documented to ensure consistency with continued AYA support and skill development.
In this chapter we briefly outline key components of transitional care and how this might be implemented in a practice setting.https://doi.org/10.1007/978-3-031-82102-8_23pubpu
Going Beyond Counting First Authors in Author Co-citation Analysis
Full text linkThe present study examines one of the fundamental aspects of author co-citation analysis (ACA) - the way co-citation
counts are defined. Co-citation counting provides the data on which all subsequent statistical analyses and mappings
are based, and we compare ACA results based on two different types of co-citation counting - the traditional type that
only counts the first one among a cited work's authors on the one hand and a non-traditional type that takes into
account the first 5 authors of a cited work on the other hand. Results indicate that the picture produced through this non-traditional author co-citation counting contains more coherent author groups and is therefore considerably clearer. However, this picture represents fewer specialties in the research field being studied than that produced through the traditional first-author co-citation counting when the same number of top-ranked authors is selected and analyzed. Reasons for these effects are discussed
Variations on the Author
Full text link“Variations on the Author” discusses two of Eduardo Coutinho’s recent films (Um Dia na Vida, from 2010, and Últimas Conversas, posthumously released in 2015) and their contribution to the general question of documentary authorship. The director’s filmography is characterized by a consistent yet self-effacing form of authorial self-inscription: Coutinho often features as an interviewer that rather than express opinions propels discourses; an interviewer that is good at listening. This mode of self-inscription characterizes him as an author who is not expressive but who is nonetheless markedly present on the screen. In Um Dia na Vida, however, Coutinho is completely absent form the image, while Últimas Conversas, on the contrary, includes a confessional prologue that moves the director from the margins to the center of his films. This article examines the ways in which these works stand out in the filmography of a director who offers new insights into the notion of cinematic authorship
Childhood Onset Sjögren Disease in Adolescence and Young Adulthood
No full textChildhood-onset Sjögren’s disease (cSjD) is a rare and complex autoimmune disease with heterogeneous clinical features ranging from mild glandular symptoms to severe systemic involvement. Previously neglected due to its low prevalence—a diagnosis before 18 years of age is reported in only 1% of all Sjögren’s disease (SjD) cases —cSjD has recently gained attention from both clinicians and researchers as a clinically distinct condition affecting adolescents and young adults (AYA), which deserves early recognition and prompt management because of its potentially negative impact on quality of life (QoL) and risk of serious complications.
Compared with adult-onset disease, children and AYA have a high prevalence of recurrent parotitis and systemic or extra-glandular symptoms. Early diagnosis is critical, but the classification criteria used for adults may not be sensitive enough for AYA. In addition, a large percentage of AYA have not undergone all the necessary diagnostic tests according to adult criteria. Therefore, most cases are diagnosed based on expert opinion.
A multidisciplinary approach is the cornerstone for managing these AYA with cSjD, addressing both the glandular and extra-glandular components of the disease. Treatment combines topical and systemic therapies to manage symptoms and prevent long-term damage. Regular dental and ophthalmologic follow-up is essential. Vaccination and patient education in self-management and lifestyle changes are critical, along with psychological support.
Transitioning to adult care requires careful planning to ensure continuity and comprehensive management. Despite challenges in disease recognition and lack of evidence-based treatments, early and effective management can potentially exert a significant positive impact on the outcomes and QoL of AYAs with cSjD
Appropriate Similarity Measures for Author Cocitation Analysis
Full text linkWe provide a number of new insights into the methodological discussion about author cocitation analysis. We first argue that the use of the Pearson correlation for measuring the similarity between authors’ cocitation profiles is not very satisfactory. We then discuss what kind of similarity measures may be used as an alternative to the Pearson correlation. We consider three similarity measures in particular. One is the well-known cosine. The other two similarity measures have not been used before in the bibliometric literature. Finally, we show by means of an example that our findings have a high practical relevance.information science;Pearson correlation;cosine;similarity measure;author cocitation analysis
Systemic Lupus Erythematosus in Adolescence and Young Adulthood
No full textSystemic lupus erythematosus (SLE) is a chronic autoimmune rheumatic condition, affecting multiple organ systems, characterised by un unpredictable course, with periods of high disease activity requiring intense immunosuppressive treatment, potentially leading to damage accumulation over many years. SLE begins in childhood and adolescence in up to 20% of cases. Clinicians should consider this possible diagnosis in adolescents and young adults (AYA) presenting with multi-system manifestations associated with distinct serological markers, or new onset nephritis. Care for the AYA with childhood-onset SLE (cSLE) requires a multi-disciplinary approach, monitoring for impact of disease and therapy on AYA physical and cognitive development, as well as organ-specific function, aiming to minimise damage accrual over time and their overall co-morbidity risk
Developmentally Appropriate and Youth-Friendly Rheumatology Services
No full textPaediatric and adult healthcare services approach adolescents and young adults (AYA) differently; but whether located in adult or paediatric services, AYA healthcare should remain consistent with the key principles underpinning the practice of adolescent medicine and responsive to the changing needs of AYA. All rheumatology services should recognise AYA as a distinct patient group with unique healthcare and psychosocial needs. AYAs require treatment within their wider psychosocial context, taking into account the life changes and transitions that shape this stage of development. Flexible, person-centred developmentally appropriate healthcare, peer support and knowledge and skills training are important for this group of individuals for whom feeling “normal” is of major importance. This chapter highlights the importance of ensuring that AYA rheumatology services are both developmentally appropriate and youth-friendly; outlines the key characteristics of such services, including some examples on how to translate them into practice; and discusses some implementation and training considerations
Dispelling the Myths Behind First-author Citation Counts
Full text linkWe conducted a full-scale evaluative citation analysis study of scholars in the XML research field to explore just how different from each other author rankings resulting from different citation counting methods actually are, and to demonstrate the capability of emerging data and tools on the Web in supporting more realistic citation counting methods. Our results contest some common arguments for the continued
use of first-author citation counts in the evaluation of scholars, such as high correlations between author rankings by first-author citation counts and other citation
counting methods, and high costs of using more realistic citation counting methods that are not well-supported by the ISI databases. It is argued that increasingly available digital full text research papers make it possible for citation analysis studies to go beyond what the ISI databases have directly supported and to employ more
sophisticated methods
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