1,720,968 research outputs found
Growing up with a chronic disease: identity, autonomy and compliance in adolescents and young adults affected by hemophilia
No full textIntroduction: An extensive medical literature (Petrini & Seuser, 2009) regarding adolescents with chronic illness shows that during adolescence there is an abandonment of treatment regimens and a reduced adherence to medical prescriptions.
The aim of the research was to understand the phenomenon of the reduction of compliance in adolescents and young adults with chronic illness, particularly hemophilia, in regard to the
representations of illness, the identity and the normalization processes.
Methods: The research involved 20 adolescents and young adults suffering from a chronic hemorrhagic illness and 15 adolescents and young adults affected by diabetes. We administered semi-structured interview to all the participants. The interviews were analyzed using the Thematic Analysis of Elementary Context from T-Lab software (Lancia, 2004, Reinert, 1995).
Results: In our hypothesis, from a psychosocial point of view, the reduction of compliance is related to different representations of the illness and such representations highlight how hemophilia is included in the process of construction of the Self, specifically referring to the increasing autonomy from the family and the socialization with peers.
Discussion/Conclusion: The results suggest different themes that organize the affective and cognitive representations of both chronic diseases. In respect to haemophilia, the recourse to a therapeutic regime like prophylaxis looks like more associated to an integration of the illness in the Self and in the daily life, while the therapy on demand is more associated to a representation of the Hemophilia as external to the Self and concerning only the body. Furthermore, different ranges of age are linked to different kinds of representation: Hemophilia is considered by the adolescents like a body’s break, while it is considered by young adults as a mystery for which researching
causes in the family history. In respect to diabetes, the
analysis are still in progress
TECNICHE DEL DNA RICOMBINANTE APPLICATE ALLO STUDIO DELLA MALATTIA DI VON WILLEBRAND DI TIPO III E DELL'EMOFILIA A
No full textGoing Beyond Counting First Authors in Author Co-citation Analysis
Full text linkThe present study examines one of the fundamental aspects of author co-citation analysis (ACA) - the way co-citation
counts are defined. Co-citation counting provides the data on which all subsequent statistical analyses and mappings
are based, and we compare ACA results based on two different types of co-citation counting - the traditional type that
only counts the first one among a cited work's authors on the one hand and a non-traditional type that takes into
account the first 5 authors of a cited work on the other hand. Results indicate that the picture produced through this non-traditional author co-citation counting contains more coherent author groups and is therefore considerably clearer. However, this picture represents fewer specialties in the research field being studied than that produced through the traditional first-author co-citation counting when the same number of top-ranked authors is selected and analyzed. Reasons for these effects are discussed
SOCIAL REPRESENTATIONS OF HAEMOPHILIA IN ADOLESCENTS AND YOUNG ADULTS: A PSYCHOSOCIAL PERPECTIVE ON COMPLIANCE
No full textBackground. This paper is intended as an exploration of the Social Representations of haemophilia, and the normalization process in adolescents and young adults affected by congenital hemorrhagic diseases. An extensive medical literature (Petrini & Seuser, 2009) regarding adolescents with chronic illness shows that during adolescence there is an abandonment of treatment regimens and reduced adherence to medical prescriptions. The purpose of the research was to understand the phenomenon reported in the scientific literature of the reduction of compliance in adolescence in regard to the social representation of haemophilia. In our hypothesis, such representations highlight how haemophilia is included in the process of construction of the Self, specifically referring to the increasing autonomy from the family and the socialization with peers.
Materials and methods. The research involved 20 adolescents and young adults suffering from congenital hemorrhagic diseases. We administered semi-structured interview to all the participants. The interviews were analyzed using the Thematic Analysis of Elementary Context from T-Lab software (Lancia, 2004), with the aim of exploring the lexical worlds (Reinert, 1995).
Results and Conclusions. The results suggest different themes that organize the affective and cognitive signification process of haemophilia. The recourse to a therapeutic regime like prophylaxis looks like more associated to an integration of the illness in the Self and in the daily life, while the therapy on demand is more associated to a representation of the haemophilia as external to the Self and concerning only the body. Furthermore, different ranges of age are linked to different kinds of representation: haemophilia is considered by the adolescents like a body's break, while it is considered by young adults as a mystery for which researching causes in the family history
Variations on the Author
Full text link“Variations on the Author” discusses two of Eduardo Coutinho’s recent films (Um Dia na Vida, from 2010, and Últimas Conversas, posthumously released in 2015) and their contribution to the general question of documentary authorship. The director’s filmography is characterized by a consistent yet self-effacing form of authorial self-inscription: Coutinho often features as an interviewer that rather than express opinions propels discourses; an interviewer that is good at listening. This mode of self-inscription characterizes him as an author who is not expressive but who is nonetheless markedly present on the screen. In Um Dia na Vida, however, Coutinho is completely absent form the image, while Últimas Conversas, on the contrary, includes a confessional prologue that moves the director from the margins to the center of his films. This article examines the ways in which these works stand out in the filmography of a director who offers new insights into the notion of cinematic authorship
Appropriate Similarity Measures for Author Cocitation Analysis
Full text linkWe provide a number of new insights into the methodological discussion about author cocitation analysis. We first argue that the use of the Pearson correlation for measuring the similarity between authors’ cocitation profiles is not very satisfactory. We then discuss what kind of similarity measures may be used as an alternative to the Pearson correlation. We consider three similarity measures in particular. One is the well-known cosine. The other two similarity measures have not been used before in the bibliometric literature. Finally, we show by means of an example that our findings have a high practical relevance.information science;Pearson correlation;cosine;similarity measure;author cocitation analysis
Dispelling the Myths Behind First-author Citation Counts
Full text linkWe conducted a full-scale evaluative citation analysis study of scholars in the XML research field to explore just how different from each other author rankings resulting from different citation counting methods actually are, and to demonstrate the capability of emerging data and tools on the Web in supporting more realistic citation counting methods. Our results contest some common arguments for the continued
use of first-author citation counts in the evaluation of scholars, such as high correlations between author rankings by first-author citation counts and other citation
counting methods, and high costs of using more realistic citation counting methods that are not well-supported by the ISI databases. It is argued that increasingly available digital full text research papers make it possible for citation analysis studies to go beyond what the ISI databases have directly supported and to employ more
sophisticated methods
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