1,721,100 research outputs found
RHEUMATHOLOGIC DISEASES IN ADOLESCENCE: PSYCHOLOGICAL PROFILE OF A DIFFICULT AGE
No full textBackground: Chronic disease significantly interfere with the quality of life at every age, expecially in a period of life characterized by the need to assume a role in the society and the research of a specific identity. The personal image is often destroyed by the disease, the long term sequelae of pharmacological treatment. Adolescents are frequently obligated to quit many possibilities of experience with peers. Objectives: We realized a plurispecialistic approach to adolescents with rheumatologic diseases, with the figures of neuropsychiatric, psychologists, rheumatologists, endocrinologists, to give an answer to the complex requests of these patients. Methods: We evaluated 20 patients with rheumatologic diseases (JIA; SLE; Bechet Disease; Autoinflammatory syndromes...) and we used psychological tests as the Physique Anxiety Scale, the EAT-26, the CBCL 6-18, the CPRS and the F.R.T. (family relation test). Results: All the patients were positive almost to one or more tests, with M:F ratio of 1:1 for anxiety scale. However psychosomatic diseases were more frequent in females, as eating disorders. Difficulties in social behaviour was more frequent in males, as the risk of drugs and alcohol abuse. Conclusions: The specialist support and the psychological follow up helped our adolescents to win the difficulties of a chronic disease and gave them the chance to meet peers and share with them their troubles
Going Beyond Counting First Authors in Author Co-citation Analysis
Full text linkThe present study examines one of the fundamental aspects of author co-citation analysis (ACA) - the way co-citation
counts are defined. Co-citation counting provides the data on which all subsequent statistical analyses and mappings
are based, and we compare ACA results based on two different types of co-citation counting - the traditional type that
only counts the first one among a cited work's authors on the one hand and a non-traditional type that takes into
account the first 5 authors of a cited work on the other hand. Results indicate that the picture produced through this non-traditional author co-citation counting contains more coherent author groups and is therefore considerably clearer. However, this picture represents fewer specialties in the research field being studied than that produced through the traditional first-author co-citation counting when the same number of top-ranked authors is selected and analyzed. Reasons for these effects are discussed
SAIApp: a web application of the university of palermo dedicated to children with autoinflammatory syndromes
No full textIntroduction: The recent epidemic strongly evidenced the necessity of reorganizing physician work, patients’ access to clinics and patient support, especially for chronic diseases. In this field, a good strategy must consider the integration between department pediatricians, multidisciplinary specialists and pediatricians in private practice. Besides, adequate standards of care must be ensured especially for children affected by chronic diseases, as Autoinflammatory syndromes.
Objectives: These children need to monitor clinical manifestations, attacks-free intervals, treatment adherence and response, onset of short- and long-term complications. This surveillance is a fundamental step to guarantee the best and personalized therapeutic choice,
to update the therapeutic plan and to monitor adverse events. In this framework, a cutting-age strategy must adopt web applications, running on personal devices as tablet or smartphone.
Methods: SAIApp is a web application written in Python using the Django framework. The app’s data layer relies on a relational DBMS implemented in SQLite, while its presentation layer makes use of Bootstrap to guarantee full responsiveness even for small-screen devices.
The mobile version has been designed just as a “webapp” that is a mobile app that simply shows a frame where HTML browsing still takes place. This choice is due to the very low computational load involved in SAIApp: it does not use any sensor of the mobile device, and no particular time constraints are required for the user interaction thus allowing for the use of web GUI widgets. The application considers three main actors: the patient or her/his family, the department pediatrician, and the pediatrician in private practice that has been appointed by the patient as her/his reference physician. All of them are registered users of the application but with different roles and grants on the database. The patient can only specify her/his health status by answering a series of simple Yes/No questions about the presence of some symptoms like fever, headache, vomit, constipation, and so on. Moreover, the patient can provide a qualitative evaluation of the overall health status through an easy GUI made by a list of emoj expressing increasing levels of satisfaction. Each health status report has a timestamp, and it is the main source of information to be stored in the database.
Results: The department pediatrician acts as the administrator of the system. He registers the new users belonging to the other two groups and inserts the clinical data. The department pediatrician fills the records related to the first diagnosis, to therapy along with the results of clinical examinations. Finally, the department pediatrician owns a GUI to perform search in the patients list according to several criteria. The result can be exported as a csv file for further analysis.
Conclusion: The pediatrician in private practice supports the work of the department pediatrician as she/he can insert and search for all the clinical data, related only to her/his patients. In this way, we want virtually extend the assistance to children with Autoinflammatory syndromes and guarantee adequate standards of care
Variations on the Author
Full text link“Variations on the Author” discusses two of Eduardo Coutinho’s recent films (Um Dia na Vida, from 2010, and Últimas Conversas, posthumously released in 2015) and their contribution to the general question of documentary authorship. The director’s filmography is characterized by a consistent yet self-effacing form of authorial self-inscription: Coutinho often features as an interviewer that rather than express opinions propels discourses; an interviewer that is good at listening. This mode of self-inscription characterizes him as an author who is not expressive but who is nonetheless markedly present on the screen. In Um Dia na Vida, however, Coutinho is completely absent form the image, while Últimas Conversas, on the contrary, includes a confessional prologue that moves the director from the margins to the center of his films. This article examines the ways in which these works stand out in the filmography of a director who offers new insights into the notion of cinematic authorship
Appropriate Similarity Measures for Author Cocitation Analysis
Full text linkWe provide a number of new insights into the methodological discussion about author cocitation analysis. We first argue that the use of the Pearson correlation for measuring the similarity between authors’ cocitation profiles is not very satisfactory. We then discuss what kind of similarity measures may be used as an alternative to the Pearson correlation. We consider three similarity measures in particular. One is the well-known cosine. The other two similarity measures have not been used before in the bibliometric literature. Finally, we show by means of an example that our findings have a high practical relevance.information science;Pearson correlation;cosine;similarity measure;author cocitation analysis
Dispelling the Myths Behind First-author Citation Counts
Full text linkWe conducted a full-scale evaluative citation analysis study of scholars in the XML research field to explore just how different from each other author rankings resulting from different citation counting methods actually are, and to demonstrate the capability of emerging data and tools on the Web in supporting more realistic citation counting methods. Our results contest some common arguments for the continued
use of first-author citation counts in the evaluation of scholars, such as high correlations between author rankings by first-author citation counts and other citation
counting methods, and high costs of using more realistic citation counting methods that are not well-supported by the ISI databases. It is argued that increasingly available digital full text research papers make it possible for citation analysis studies to go beyond what the ISI databases have directly supported and to employ more
sophisticated methods
koamabayili/VECTRON-author-checklist: VECTRON author checklist
No full textWe have done our best to complete the author checklist relating to the use of animals in the hut study. Note that the objective for the hut study was to evaluate the IRS treatment applications for residual efficacy against Anopheles mosquitoes, including the local An. coluzzii mosquito population. Cows were only used to attract mosquitoes into the huts and no tests were carried out directly on the cows. The author checklist is intended for use with studies where experiments are carried out on animals, which is why we have had such difficulty in completing this for the hut study, as many of the questions do not relate to how the cows were used
VARIABILITA’ INTRA-FAMILIARE FENOTIPICA E SULLA STATURA DEFINITIVA NELL’APLOINSUFFICIENZA DEL GENE SHOX
No full textBase genetica di alcuni casi di bassa statura disarmonica, l’aploinsufficienza del gene SHOX (SHOX-D) causa differente espressione fenotipica anche in pazienti con eguale genotipo, con verosimile influenza di fattori epigenetici in grado di condizionare anche la risposta alla terapia con GH e la statura definitiva.Descriviamo il caso di un nucleo familiare (due sorelle e la madre) con SHOX-D. la statura target è 146.8 cm (-2.6SDS); madre: 146.5 cm; padre: 160 cm).ZM è stata studiata all’età di 6,8 aa per bassa statura disarmonica: statura: 103.5 cm (-3SDS); SPAN: 99 cm; (BA: 6 aa). E’ stata documentata la mutazione missenso del gene SHOX (c414G>C: p.Glu138Asp dell’esone 3) ed iniziata terapia con GH. La stessa mutazione è stata dimostrata nella madre e poi nella sorella ZS, la cui statura- alla prima valutazione clinica- non era < a -2SDS. Le bambine presentavano una secrezione di GH nella norma con normali valori di IGF-1. La terapia con GH è stata iniziata per ZS all’età di 6,8 aa (BA: 6.1 aa), quando ha presentato una riduzione della velocità di crescita staturale con una rapida maturazione ossea: statura: 113cm (-1.38SDS); SPAN: 112.5cm. Durante il follow-up, le sorelle hanno mostrato un incremento della velocità di crescita staturale, dello sviluppo puberale, un aumento significativo di BA, con un precoce raggiungimento della statura definitiva di ZM a 13,7 aa: statura: 143.1cm (-2SDS), SPAN 138,5cm, BMI 18 kg/mq; p.c.: 37.5kg (-2SDS); BA: 18 aa.; per ZS a 14,4 aa: statura: 150.8cm (- 1.8SDS), SPAN: 155cm; BMI 22 kg/mq; p.c.: 50kg (-1SDS).Questo nucleo familiare dimostra una differente espressione fenotipica di SHOX-D, con una statura definitiva della madre, senza terapia con GH, di 146,5 cm
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