110 research outputs found
Patient Empowerment Through Social Media
No full textFrom book Participatory Health Through Social Media. pp.10-26. edited by Shabbir Syed-Abdul, Elia Gabarron, Annie Lau
sj-docx-1-aut-10.1177_13623613241230454 – Supplemental material for Social media shaping autism perception and identity
No full textSupplemental material, sj-docx-1-aut-10.1177_13623613241230454 for Social media shaping autism perception and identity by Ingjerd Skafle, Elia Gabarron and Anders Nordahl-Hansen in Autism</p
Social media and sexual health – New arenas for information on sexually transmitted infections and promotion of healthy sexual behavior
No full textObjectives: The objectives of this thesis are to investigate the use of social media for health promotion dealing with sexually transmitted infections, their value for improving health and increasing the promotion reach, and to provide examples on how social media users retrieve information about sexually- transmitted infections from these media. I want to investigate the nature of the information in a sample of messages that are shared on social media about sexually transmitted infections, the actors involved, and the patterns of online sexual health information-seeking. Methods: The objectives were addressed in four separate studies, which used different methodologies: a scoping review, an intervention case study, and two observational studies. Results: In the review it can be seen that the evidence supporting the use of social media for sexual health promotion is still insufficient. There are few publications with strong study designs using social media for this purpose, however, promising results regarding increasing promotion reach and improving health are found. The intervention case study is an example of how online social media can be used for promoting educational sites on sexual health. In one of the observational studies it can be seen how online social media users tweet about sexually transmitted infections, and that information posted online spreads rapidly, reaching a huge number of people. The other study shows that people search for information about sexually- transmitted infections, and that searches for this information on social media appears to follow a weekly pattern. Conclusions: Although more studies of higher quality are needed before stronger claims can be made, the research literature and the results of the present investigation suggest that social media might be relevant resources for sexual health promotion and education purposes. The observation of behaviours on social media offers the possibility of identifying sexual health concerns, interests, misinformation, attitudes, or information-seeking patterns in an online community, with the possibility of using this information for subsequent health promotion purposes. The widespread acceptance of online social media, their potential for reaching a huge number of people in a very short time, and users’ interest in sexual health topics, suggest that these networks can be valuable in promoting sexual health
A temporal analysis of depression related tweets:a case study in Finland
No full textDepression is one of the most burdensome diseases in the world. A problem that depression presents, is the fact that it is connected with a high rate of unwillingness to seek professional help, and therefore many aspects of depression go unreported, affecting our understanding of it. Nowadays, individuals turn to online platforms for help and support, which creates vast amounts of data. This infodemiological study utilised data from Twitter to identify temporal patterns of behaviours related to depression in Finland. The findings of this study can be used to improve the impact of public health measures in relation to depression
Maintaining Data Quality at the hospital department level:The data work of medical secretaries
No full textThis article explores the collaborative work of maintaining data quality of a major health administrative database as it is carried out by medical secretaries in the role of ‘registration responsible medical secretaries’. The article reports on ongoing socio-technical study of local, on-the-ground data work in 5 Danish hospital departments. We argue the medical secretaries make important and skillful contributions to data quality at department level, including identifying and correcting errors, implementing changes to the coding practice, and maintenance of data input quality at the department level requiring a high level of context sensitivity.This article explores the collaborative work of maintaining data quality of a major health administrative database as it is carried out by medical secretaries in the role of ‘registration responsible medical secretaries’. The articlereports on ongoing socio-technical study of local, on-the-ground data work in 5 Danish hospital departments. We argue the medical secretaries make important and skillful contributions to data quality at department level, including identifying and correcting errors, implementing changes to the coding practice, and maintenance of data input quality at the department level requiring a high level of context sensitivity
Use of social media for sexual health promotion: a scoping review
No full textBackground: In order to prevent sexually transmitted infections (STIs), the World Health Organization recommends educating people on sexual health. With more than 2 billion active users worldwide, online social media potentially represent powerful channels for health promotion, including sexual health. Objective: To review the scientific literature on the use of online social media for sexual health promotion. Design: A search was conducted of scientific and medical databases, and grey literature was also included. The selected publications were classified according to their study designs, sexual health promotion main subject, target audience age, and social media use. Results: Fifty-one publications were included; 4 publications presenting randomized intervention studies, 39 non-randomized intervention studies, and 8 observational studies. In 29 publications (56.9%), the main subject of the sexual health promotion was ‘general’ or to increase STI testing. Thirty publications (58.8%) specifically focused on youth or young people (aged 11–29 years). Fourteen publications that used social media either as unique channels for sexual health promotion interventions or as a tool supporting the sexual health promotion reported an effect on behavior (27%), and two of those studies found a reduction in the number of positive chlamydia and gonorrhea cases linked to social media intervention. Forty-four publications (86.3%) involved Facebook in some way. Conclusions: Although billions of people worldwide actively use social media, we identified only 51 publications on the use of social media for promoting sexual health. About a quarter of the publications have identified promising results, and the evidence for positive effects of social media interventions for promoting sexual health is increasing. There is a need for more studies that explicitly discuss their theoretical framework, and that have strong research designs, in order to further increase the evidence base of the field
Proceedings of the 18th Scandinavian Conference on Health Informatics
No full textThis proceeding presents the papers presented at the 18th Scandinavian Conference on Health Informatics - SHI 2022 in Tromsø, Norway on August 22-24, 2022
Current Trends and New Approaches in Participatory Health Informatics
No full textActive participation in the care process is of paramount relevance in modern health care.[1] [2] [3] [4] It places the individual at the center of their own health journey, fostering a sense of empowerment and autonomy. When individuals are actively engaged in their care, they are more likely to make informed decisions, adhere to treatment plans, and take ownership of their well-being. This not only improves health outcomes but also enhances the overall patient experience.[5] [6] [7] Digital technologies have played a significant role in advancing the shift toward a more participatory health care paradigm, enabling all stakeholders involved in health care, such as clinicians, patients, or family members, to actively participate in health-related shared decision-making.[8] [9] Participatory health informatics (PHI) arose as a research topic around 10 years ago. It refers to the use of information technology as provided through the web, mobile phones, tablets, or wearables to increase participation of individuals in their care process. It has been applied in the context of various medical conditions requiring long-term disease management.[10] In recent years, research and development around PHI, that is, tools that support patient engagement and participation in care processes, has increased. The International Medical Informatics Association (IMIA) Working Group Participatory Health and Social Media devoted its work to this topic starting from 2017 as a consequence of the developments related to Medicine 2.0, social media, wearables, and mobile health applications.[11] Having re-badged the working group's name to “Participatory Health and Social Media” (previously just “Social Media”), this mission holds true today more than ever, while acknowledging that we have moved well beyond the narrative of Web 2.0, as participatory health technologies become more engaging and intelligent than before. Recognizing the increasing omnipresence of various participatory health enabling technologies, the scope and mission of the group is to not only bring together interested individuals but also help define and shape participatory health informatics. With this focus theme, we present current trends and new methods and approaches for placing the individual in the center of care. In addition, a first definition of PHI was developed and is made available as an essential part of this focus theme acknowledging the efforts of the working group members and researchers in this growing research field
The ethical aspects of integrating sentiment and emotion analysis in chatbots for depression intervention
No full textIntroductionDigital health interventions specifically those realized as chatbots are increasingly available for mental health. They include technologies based on artificial intelligence that assess user’s sentiment and emotions for the purpose of responding in an empathetic way, or for treatment purposes, e.g. for analyzing the expressed emotions and suggesting interventions.MethodsIn this paper, we study the ethical dimensions of integrating these technologies in chatbots for depression intervention using the digital ethics canvas and the DTx Risk Assessment Canvas.ResultsAs result, we identified some specific risks associated with the integration of sentiment and emotion analysis methods into these systems related to the difficulty to recognize correctly the expressed sentiment or emotion from statements of individuals with depressive symptoms and the appropriate system reaction including risk detection. Depending on the realization of the sentiment or emotion analysis, which might be dictionary-based or machine-learning based, additional risks occur from biased training data or misinterpretations.DiscussionWhile technology decisions during system development can be made carefully depending on the use case, other ethical risks cannot be prevented on a technical level, but by carefully integrating such chatbots into the care process allowing for supervision by health professionals. We conclude that a careful reflection is needed when integrating sentiment and emotion analysis into chatbots for depression intervention. Balancing risk factors is key to leveraging technology in mental health in a way that enhances, rather than diminishes, user autonomy and agency
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