1,720,989 research outputs found
Exploring the Relationship Between the Social Determinants of Health and Health Inequities in Pediatric Ophthalmology
Full text linkBackground: There is limited evidence on the impact of social determinants of health (SDH) on pediatric ophthalmology outcomes, specifically Rare Pediatric Eye Cancers (R-PECs) in Canada.
Objective: To characterize the availability of SDH data in the electronic health record (EHR) of pediatric ophthalmology patients and to examine the association of SDH with attendance at medical visits. We also examined the association of R-PEC patient SDH with (i) medical visit attendance, (ii) emergency visits, (iii) care plan delay, (iv) age and stage at diagnosis, and (v) clinical outcomes.
Methods: This retrospective cohort study between 1-June-2018 and 6-October-2023 included pediatric ophthalmology patients managed at The Hospital for Sick Children. Pearson Chi-squared analysis and multivariable and binomial regression with adjusted odds ratios (aOR) and 95% confidence intervals (CI) were performed (significance was set at p<0.05).
Results: Coverage of SDH within EHRs was highly variable and there was a significant quantity of missing data. Our findings suggest that SDH can influence medical visit attendance, disease classification, and clinical outcomes.
Conclusion: Addressing unfavorable SDH could serve to improve medical visit attendance, age and stage at diagnosis, final visual outcome and reduce, emergency room visits and delay of care among pediatric ophthalmology patients.M.Sc
Patient-Oriented Biobanking for Pediatric Ocular Oncology: Development of a Patient Advocate Committee and Evaluation of Participant Consent Preferences in the Kids Eye Biobank
Full text linkBiobanks collect and store resources (e.g., biospecimens, images, and clinical data) for use in future research. Through centralizing data, biobanks establish robust data sets. This is valuable for advancing research in the field of pediatric ophthalmology, as many childhood eye and vision conditions, including cancer, are rare and challenging to investigate. Patient engagement in research can improve the relevance and impact of research being conducted. However, there is limited evidence on effective engagement methods in a pediatric biobank setting. This research sought to establish patient-oriented biobanking practices in the Kids Eye Biobank—a pediatric ophthalmology biobank with a dedicated rare pediatric eye cancer collection. The first aim of this was to develop a patient advocate committee in the Kids Eye Biobank. Further, the Kids Eye Biobank uses a broad informed consent model through which participants make decisions regarding how their resources can be shared and used. The second aim was to characterize the consent preferences of Kids Eye Biobank participants.M.Sc
Developing a Patient-reported Outcome Measure for Retinoblastoma
Full text linkBackground: Patient-reported outcome measures (PROMs) are self-report instruments measuring health outcomes from the patient perspective. A retinoblastoma PROM could provide important insight into patient outcomes.
Objectives: Characterize PROMs currently used in retinoblastoma, pediatric ophthalmology, and pediatric oncology; explore retinoblastoma survivor and parent views on treatment outcomes.
Methods: A scoping review identified and analyzed relevant PROMs. Results informed a qualitative study to determine parent and survivor opinions on treatment outcomes.
Results: One retinoblastoma-specific, 56 pediatric ophthalmology, and 86 pediatric oncology PROMs were identified and considered for their application to retinoblastoma. Seventeen retinoblastoma survivors and 9 parents, participated in discussions. A need for a PROM measuring psychosocial impact, daily functioning, cosmetic outcomes, and retinoblastoma education was identified.
Conclusion: Existing PROMs can be modified for application to retinoblastoma, there are also additional retinoblastoma-specific domains to consider. Next steps include dissemination of results to experts and patients in research to plan further development.M.Sc
Going Beyond Counting First Authors in Author Co-citation Analysis
Full text linkThe present study examines one of the fundamental aspects of author co-citation analysis (ACA) - the way co-citation
counts are defined. Co-citation counting provides the data on which all subsequent statistical analyses and mappings
are based, and we compare ACA results based on two different types of co-citation counting - the traditional type that
only counts the first one among a cited work's authors on the one hand and a non-traditional type that takes into
account the first 5 authors of a cited work on the other hand. Results indicate that the picture produced through this non-traditional author co-citation counting contains more coherent author groups and is therefore considerably clearer. However, this picture represents fewer specialties in the research field being studied than that produced through the traditional first-author co-citation counting when the same number of top-ranked authors is selected and analyzed. Reasons for these effects are discussed
Variations on the Author
Full text link“Variations on the Author” discusses two of Eduardo Coutinho’s recent films (Um Dia na Vida, from 2010, and Últimas Conversas, posthumously released in 2015) and their contribution to the general question of documentary authorship. The director’s filmography is characterized by a consistent yet self-effacing form of authorial self-inscription: Coutinho often features as an interviewer that rather than express opinions propels discourses; an interviewer that is good at listening. This mode of self-inscription characterizes him as an author who is not expressive but who is nonetheless markedly present on the screen. In Um Dia na Vida, however, Coutinho is completely absent form the image, while Últimas Conversas, on the contrary, includes a confessional prologue that moves the director from the margins to the center of his films. This article examines the ways in which these works stand out in the filmography of a director who offers new insights into the notion of cinematic authorship
Appropriate Similarity Measures for Author Cocitation Analysis
Full text linkWe provide a number of new insights into the methodological discussion about author cocitation analysis. We first argue that the use of the Pearson correlation for measuring the similarity between authors’ cocitation profiles is not very satisfactory. We then discuss what kind of similarity measures may be used as an alternative to the Pearson correlation. We consider three similarity measures in particular. One is the well-known cosine. The other two similarity measures have not been used before in the bibliometric literature. Finally, we show by means of an example that our findings have a high practical relevance.information science;Pearson correlation;cosine;similarity measure;author cocitation analysis
Dispelling the Myths Behind First-author Citation Counts
Full text linkWe conducted a full-scale evaluative citation analysis study of scholars in the XML research field to explore just how different from each other author rankings resulting from different citation counting methods actually are, and to demonstrate the capability of emerging data and tools on the Web in supporting more realistic citation counting methods. Our results contest some common arguments for the continued
use of first-author citation counts in the evaluation of scholars, such as high correlations between author rankings by first-author citation counts and other citation
counting methods, and high costs of using more realistic citation counting methods that are not well-supported by the ISI databases. It is argued that increasingly available digital full text research papers make it possible for citation analysis studies to go beyond what the ISI databases have directly supported and to employ more
sophisticated methods
koamabayili/VECTRON-author-checklist: VECTRON author checklist
No full textWe have done our best to complete the author checklist relating to the use of animals in the hut study. Note that the objective for the hut study was to evaluate the IRS treatment applications for residual efficacy against Anopheles mosquitoes, including the local An. coluzzii mosquito population. Cows were only used to attract mosquitoes into the huts and no tests were carried out directly on the cows. The author checklist is intended for use with studies where experiments are carried out on animals, which is why we have had such difficulty in completing this for the hut study, as many of the questions do not relate to how the cows were used
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