13 research outputs found
Communication, Somali culture and decision-making about the human papillomavirus (HPV) Vaccine
No full textSocial and Behavioral Sciences; Social Work; Law: 3rd Place (The Ohio State University Edward F. Hayes Graduate Research Forum)The current study uses a multiple goals theoretical perspective to explore how Somali immigrant families in the United States make decisions regarding whether to vaccinate their children against human papillomavirus (HPV). A focus was placed on the communication goals of parents in HPV vaccine discussions with their child and health care provider. 16 semi-structured interviews were audiotaped, transcribed, and analyzed using a grounded theory approach. Key themes were the implications of the vaccine for early sexual activity, confusion between HPV and human immunodeficiency virus (HIV), the perception that the HPV vaccine is unnecessary, uncertainty about the vaccine’s efficacy and side effects, avoidance of parent-child communication about the vaccine, and a preference for framing the vaccine as a health promotion behavior. Framing the threat of HPV in the context of initiation of sexual activity, uncertainty regarding vaccine efficacy, and anticipated regret account for the inconsistency in HPV vaccine uptake among Somali parents. Health care providers should consider talking about HPV as a distal versus an immediate threat and HPV vaccine uptake as a health-promotion rather than a sexually transmitted infection (STI) prevention behavior.A one-year embargo was granted for this item
Identity-based motivation in HPV vaccine decision-making: Role of healthcare provider trust, communication and response efficacy
No full textPedagogical pivots to promote inclusion in a summer bridge program
No full textIn this essay we talk about how an exchange between a local resident and program faculty caused said faculty to shift their focus for the rest of the experential learning trip. As instructors for a bridge program targetting indivdiuals from historically marginalized communities, we use collaborative teaching to promote interdisciplinary thinking. The comprehensive collaboration style is a pedagologial endeavor we can only pursue during this Summer Bridge Program. We reflect on the value of our ability to pivot while teaching in the environment. We link it to our collaborative pedagogy and and its usefulness to teach inclusivity by challenging prior notions of historical memory.  
The Conceptualization of Self-Identity among Residents of Appalachia Ohio
No full textSocial identity and its association to culture, place, and health is an important, but understudied, area of research. One social group that illustrates this connection between place and identity is people living in Appalachia. This exploratory mixed-method study investigates the appropriateness of the self-concept of Ohio Appalachian adults with cancer as “Appalachian,” the context associated with that identity and its association with community identification, rural identity, Appalachian Regional Commission (ARC) status, demographic data, and clinical trial (CT) enrollment. Forty-nine adults with cancer residing in Appalachia were recruited. Participants were cancer patients who (1) were offered a randomized clinical cancer trial; and (2) lived in or were treated in one of the thirty-two rural Appalachian counties in Ohio. Forty-seven percent of participants identified themselves as Appalachian and were reluctant to self-identify as Appalachian because of negative stereotypes or uncertainty about the term. Furthermore, many participants endorsed their residence within Appalachia but not their own identity. Future studies should utilize a culturally grounded approach and community-based methodology to explore how residents of Appalachian communities define their community and self-identification in order to improve health in the region
Age Differences in Cancer Treatment Decision Making and Social Support
No full textObjective: The aim of this study was to examine the decision-making (DM) styles of younger (18-39 years), middle-aged (40-59 years), and older (≥60 years) cancer survivors, the type and role of social support, and patient satisfaction with cancer treatment DM.
Method: Adult cancer survivors (N = 604) were surveyed using Qualtrics online software.
Results: Older adults reported significantly lower influence of support on DM than younger adults. The most common DM style for the age groups was collaborative DM with their doctors. Younger age was a significant predictor of independent (p \u3c .05), collaborative with family (p \u3c .001), delegated to doctor (p \u3c .01), delegated to family (p \u3c .001), and demanding (p \u3c .001) DM styles.
Discussion: Despite having lower received social support in cancer treatment DM, older adults were more satisfied with their DM than younger and middleaged adults. Health care workers should be aware of different DM styles and influence of social networks to help facilitate optimal patient DM and satisfaction
Community Engagement as a Process and an Outcome of Developing Culturally Grounded Health Communication Interventions: An Example from the DECIDE Project
No full textCommunity engagement is a process often used in developing effective health communication interventions, especially in traditionally underserved cultural contexts. While the potentially positive outcomes of community engagement are well established, the communication processes that result in engagement with cultural groups are less apparent. The focus on the outcomes of engagement at the expense of describing how engagement occurs makes it difficult for methods to be improved upon and replicated by future studies. The purpose of the current manuscript is to illustrate the process of achieving community engagement through the development of a culturally grounded health communication intervention. We offer practical suggestions for implementing community engagement principles, as well as the benefits and challenges inherent in this approach to research. Key points are illustrated using examples from the DECIDE Project, a culturally grounded intervention for improving communication about clinical trials in the medically underserved Appalachian region
Communal land and the attitudes of the Bafokeng on benefits from mineral rights
No full textThis study examines the benefits received by the Royal Bafokeng Nation of northwestern South Africa from mining on their traditional lands, and the attitudes of community members towards those benefits. Key to this discussion is the role of communal land ownership. The author surveyed 493 members of this community to determine if they were satisfied with services provided by the Royal Bafokeng Administration (RBA). The research found that, in a context of severe inequality, widespread unemployment, negative impacts from nearby mines and migrant labour, centralisation of benefits to Phokeng, and perceptions of mismanagement and corruption, there was widespread dissatisfaction among the Bafokeng. Addressing these issues, especially the lack of jobs, could mitigate current negative perceptions about services delivered by the RBA
Comprehension of Randomization and Uncertainty in Cancer Clinical Trials Decision Making Among Rural, Appalachian Patients
No full textComprehension of randomization is a vital, but understudied, component of informed consent to participate incancer randomized clinical trials(RCTs). Thisstudy examines patient comprehension of the randomization process as well as sources of ongoing uncertainty that may inhibit a patient’s ability to provide informed consent to participate in RCTs. Cancer patients living in rural Appalachia who were offeredanopportunitytoparticipateinacancertreatmentRCT completed in-depth interviews and a brief survey. No systematic differences in randomization comprehension between patients who consented and those who declined participation in a cancer RCT were detected. Comprehension is conceptually distinct from uncertainty, with patients who had both high and low comprehension experiencing randomization-related uncertainty. Uncertainty about randomization was found to have cognitive and affective dimensions. Not all patients enrolling in RCTs have a sufficient understanding of the randomization process to provide informed consent. Healthcare providers need to be aware of the different types of randomization-related uncertainty. Efforts to improve informed consent to participate in RCTs should focus on having patients teach back their understanding of randomization.This practice could yield valuable information about the patient’s cognitive and affective understanding of randomization as well as opportunities to correct misperceptions. Education about RCTs should reflect patient expectations of individualized care by explaining how all treatments being compared are appropriate to the specifics of a patient’s disease
