160,511 research outputs found
N07 When the body tires, the mind resists:resilience as a buffer against fatigue-insights into quality of life in Crohn's disease
No full textBackground: Fatigue is one of the most burdensome and under-recognised symptoms in Crohn’s disease (CD), often persisting even in remission and profoundly affecting physical, psychological, and social functioning (Radford et al., 2021; Regueiro et al., 2023). As fatigue is only partially explained by disease activity, psychological resources such as resilience may play a crucial protective role . Resilience, defined as the ability to adapt and recover from adversity, may help mitigate the negative impact of chronic illness on health-related quality of life (HRQoL) (Jin et al., 2023). This study aimed to explore the relationships between fatigue, resilience, and HRQoL in adults living with CD.Methods: A cross-sectional survey was conducted among 50 adults with a confirmed diagnosis of CD. Three validated instruments were used: WHOQOL-BREF to assess HRQoL, the Inflammatory Bowel Disease Fatigue Scale (IBD-F) to measure fatigue, and the Resilience Scale (RS-14) to evaluate psychological resilience. Descriptive statistics and non-parametric correlations (Spearman’s rho) were performed to explore associations between variables.Results: Fatigue showed a strong negative correlation with both HRQoL and resilience. Patients reporting higher levels of fatigue experienced lower satisfaction with life, poorer psychological and social functioning, and greater difficulties in coping with daily stressors. Conversely, higher resilience scores were positively associated with HRQoL, suggesting that resilience may buffer the adverse effects of fatigue.Conclusion: Fatigue is a key determinant of reduced QoL in CD, while resilience appears to be an important adaptive resource supporting psychological well-being and daily functioning. Incorporating resilience-building interventions and psychosocial assessment into routine nursing practice could enhance patient well-being and complement medical treatment in IBD care.References:Jin, Y., Bhattarai, M., Kuo, W. C., & Bratzke, L. C. (2023). Relationship between resilience and self‐care in people with chronic conditions: A systematic review and meta‐analysis. Journal of Clinical Nursing, 32(9-10), 2041-2055. https://doi.org/10.1111/jocn.16258Radford, S. J., McGing, J., Czuber-Dochan, W., & Moran, G. (2021). Systematic review: the impact of inflammatory bowel disease-related fatigue on health-related quality of life. Frontline gastroenterology, 12(1), 11-21. 10.1136/flgastro-2019-101355Regueiro, M., Hunter, T., Lukanova, R., Shan, M., Wild, R., Knight, H., Bannikoppa, P., & Naegeli, A. N. (2023). Burden of fatigue among patients with ulcerative colitis and Crohn’s disease: results from a global survey of patients and gastroenterologists. Advances in therapy, 40(2), 474-488. 10.1007/s12325-022-02364-
N40 Stress after an ulcerative colitis diagnosis:examining factors alleviating or exacerbating stress in ulcerative colitis using Interpretative Phenomenological Analysis
No full textBackground: Stress significantly affects disease flares and quality of life in people with ulcerative colitis (UC), with over 25% experiencing symptoms of anxiety or depression irrespective of disease activity.1–3 However, there is limited research on the specific stressors introduced by a UC diagnosis. This study aimed to explore how stress is experienced following diagnosis and identify contributing factors.Methods: Ten UK-based patients diagnosed with UC within the past six years (seven within the last year) participated in semi-structured online interviews exploring stress and coping during their first post-diagnosis year. Participants (7 female and 3 male; aged 16–76) were predominantly white (n=9). All had elevated scores on Cohen’s Perceived Stress Scale prior to interview.4 The interviews were video-recorded and analysed using Interpretative Phenomenological Analysis to capture both shared and divergent aspects of their unique lived experiences.5Results: Analysis revealed a complex and evolving relationship between stress, resilience, and UC, captured in four themes:I. Rethinking health - Health became effortful and unpredictable, shaped by a tension between personal experience and others’ interpretationsII. Rethinking identity - A lifelong diagnosis disrupted self-identity, social roles, and life plans, often leading to feelings of body estrangementIII. Adapting life - Participants were compelled to adjust their behaviour and daily routines, acquire new knowledge and skills, and rely more on othersIV. Dealing with complex emotions - Emotional and physical health were closely linked, with stress and worry heightening distress but also motivating efforts to conserve emotional energy and seek positive experiencesIllustrative quotations for each theme are provided in Table 1.Conclusion: These findings enhance understanding of the stressors introduced by a UC diagnosis and the process by which individuals respond. While participants developed personal resilience to stressors, the role of others (including healthcare professionals) was pivotal in either alleviating or exacerbating stress. There is a pressing need to improve emotional and practical support for people newly diagnosed with UC and their close networks. Crucially, the collective knowledge and lived experience of people with UC should be actively harnessed, not only to guide and support those newly diagnosed, but also to inform and improve clinical practice and wider support services.References:Black J, Sweeney L, Yuan Y, Singh H, Norton C, Czuber-Dochan W. Systematic review: the role of psychological stress in inflammatory bowel disease. Aliment Pharmacol Ther. 2022;56(8):1235-1249. doi:10.1111/apt.172022.Luo H, Sun Y, Li Y, et al. Perceived stress and inappropriate coping behaviors associated with poorer quality of life and prognosis in patients with ulcerative colitis. J Psychosom Res. 2018;113:66-71. doi:10.1016/j.jpsychores.2018.07.0133.Barberio B, Zamani M, Black CJ, Savarino EV, Ford AC. Prevalence of symptoms of anxiety and depression in patients with inflammatory bowel disease: a systematic review and meta-analysis. Lancet Gastroenterol Hepatol. 2021;6(5):359-370. doi:10.1016/S2468-1253(21)00014-54.Cohen S, Kamarck T, Mermelstein R. A Global Measure of Perceived Stress. J Health Soc Behav. 1983;24(4):385-396. doi:10.2307/21364045.Smith JA, Flowers P, Larkin M. Interpretative Phenomenological Analysis: Theory, Method and Research. SAGE; 2022
Prof. Th. W. Adorno and the author Hans Erich Nossack.
No full textProf. Th. W. Adorno and the author Hans Erich Nossack at a reception of Insel Verlag, Buchmesse Frankfurt 1966LB
Review article: description and management of fatigue in inflammatory bowel disease
No full textBackgroundFatigue is a common and leading concern for patients with inflammatory bowel disease (IBD). It is managed inadequately in IBD, and there is little evidence to support interventions.AimTo examine patients’ experience of and factors contributing to IBD-fatigue, and to appraise its management by patients and healthcare professionals.MethodsSeven electronic databases were searched. Subject headings and free-text searching were used, with no time limit set. Reference lists of retrieved papers were searched manually.ResultsTwenty-eight papers were reviewed. Researchers used terms including ‘fatigue’, ‘low energy’, ‘tiredness’, ‘decline in vitality and vigour’ and ‘reduced energy and vitality’. Different definitions were used to conceptualise fatigue. None of the reviewed studies asked patients to describe the experience of fatigue in their own words. Numerous physical, psychological and situational factors associated with fatigue were identified. Three small randomised control trials reported a favourable effect of infliximab and adalimumab on fatigue. One intervention study reported benefit from a stress management programme and one from solution-focused therapy.ConclusionsInconsistent use of terminology, lack of data from patients’ perspective on inflammatory bowel disease-fatigue and lack of evidence to support its management contribute to fatigue being largely ignored or overlooked by healthcare professionals. Future research should explore the experience of IBD-fatigue from the individual patient perspective. Further studies are required to fully explore the factors associated with fatigue and to develop patient-centred interventions to reduce fatigue
Nowe spojrzenie na planowanie architektury mieszkaniowej w afryce subsaharyjskiej
No full textThe author shares his reflections on state of art in housing and urban planning, deficiencies, expectations and possibilities in the Sahel region of Africa. He notices, that the housing problem in Africa is one of the challenges, which should be solved in order to recover life dignity of African people and secure their rights to traditional family life in acceptable conditions. The paper describes the studies on the typical dispersed urban structures and the need to foster this type of settlement structure and proposals of introduction of new on light steel frame housing system in the area of Sahel, combining the traditional way of building houses with modern technology. The particularly analysed case, is the housing problem in the Republic of Chad. The author presents the basic discussion on this topic and his architectural proposals. Unfortunately, the gap between the needs and the financial feasibility of housing construction in this area, makes this project already at the starting point extremely difficult to be realized without external subventions.Problem mieszkaniowy w Afryce jest jednym z wyzwań, które należy rozwiązać, aby Afrykanie mogli odzyskać godność życiową i zabezpieczyć swoje prawa do tradycyjnego życia rodzinnego w akceptowalnych warunkach. W artykule opisano badania nad typowymi rozproszonymi strukturami miejskimi i potrzebą wspierania tego typu struktur osadniczych oraz propozycji wprowadzenia nowego systemu konstrukcji domów, opartym na lekkim szkielecie stalowym, łączącym tradycyjny sposób budowania domów z nowoczesną technologią. Przypadkiem szczególnie analizowanym jest problem mieszkaniowy w Republice Czadu. Autor przedstawia podstawową dyskusję na ten temat i swoje propozycje architektoniczne. Niestety luka między potrzebami mieszkaniowymi w Czadzie a finansową wykonalnością budownictwa mieszkaniowego w tym obszarze sprawia, że projekt ten, już w punkcie wyjścia, jest niezwykle trudny do realizacji bez uzyskania zewnętrznych dotacji
Letter: Validated fatigue questionnaires in inflammatory bowel diseases - authors' reply
No full textSeeing the world anew : the radical vision of Martin Waldseemüller's 1507 & 1516 world maps /
No full text9781929154470 (ISBN). 192915447X (ISBN). First edition 2012. Accompanied by 2 foldeds map in front and back pockets: 1507 map -- 1516 map.; Includes bibliographical references: pages 98-107.; Maps from pockets also available online http://nla.gov.au/nla.map-vn6254227; Original version of the 1507 map: Universalis cosmographiae secundum Ptholomaei traditionem et Americi Vespucii alioru que lustrationes. [St. Dié, France? : s.n., 1507]; Original version of the 1516 map: Carta marina, navigatoria Portugallen, navigationes atque tocius cogniti orbis terre marisque formam naturamq[u]e situs et terminos nostris temporibus recognitos et ab antiquorum traditione differentes eciam quor[um] vetusti non meminerunt auctores hec generaliter indicat / consumatum est in oppido S. Deodati compositione et digestione Martini Waldseemuller Ilacomili. [St. Dié, France? : s.n., 1516]. Prologue: In a Renaissance Vision, a Glimpse of the Modern / John W. Hessler -- "An island surrounded on all sides by sea" : The World Map, 1507 / John W. Hessler -- "Land of Cuba, part of Asia" : The Carta marina, 1516 / Chet Van Duzer -- Epilogue: A Renaissance That Resonates Still / John W. Hessler -- Notes -- Afterword / Ralph E. Ehrenberg -- About the authors -- Acknowledgments -- The Maps: The 1507 World Map, 12 sheets, with commentary -- Composite: front pocket -- The 1516 Carta marina, 13 sheets, with commentary -- Composite: back pocket
Klimat społeczny w szkole inkluzyjnej
No full textAuthor presented in this paper theoretical approach to the building of social climate in an inclusive school. The publication indicatessome tendencies and directions of changes to improve the functioning of these institutions and to implement the idea of inclusive education.Autorka przedstawiła w artykule teoretyczne ujęcie zagadnienia związanego z budowaniem klimatu społecznego w szkole inkluzyjnej. W publikacji ukazano pewne dążenia i kierunki zmian, jakich należy dokonywać w masowych szkołach, aby poprawić jakość funkcjonowania tych placówek, tak by kierowały się one ideą edukacji włączającej
Ewolucja programowa FDP w polityce wschodniej w latach 1949-1969 w świetle nowych zasobów Archiwum Niemieckiego Liberalizmu
No full textZasadniczym celem artykułu jest analiza działalności programowej FDP w polityce wschodniej Republiki Federalnej Niemiec w latach 1949-1969. Autor wykorzystał nowe zasoby Archiwum Niemieckiego Liberalizmu w Gummersbach, co umożliwiło przedstawienie nowej oceny wpływu FDP na politykę wschodnią Republiki Federalnej Niemiec.The main goal of the article is to analyze the FDP's program activities in the eastern policy of the Federal Republic of Germany in the years 1949-1969. Of great importance here is the fact that the author used in this work new archives from the Archives of German Liberalism in Gummersbach. This enabled him to present a new assessment of the FDP's impact on the eastern policy of the Federal Republic of Germany
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