6,445 research outputs found
Oral History Interview with Robert Cook-Deegan
No full textThis interview with Bob Cook-Deegan, MD, is part of “Moral Histories: Voices and Stories from the Founding Figures of Bioethics,” an oral history project of the Johns Hopkins Berman Institute of Bioethics. Prof. Cook-Deegan is a professor in the School for the Future of Innovation in Society and the Consortium for Science, Policy, and Outcomes at Arizona State University. He was the founding director of the Center for Genome Ethics, Law, and Policy at Duke University’s Institute for Genome Sciences and Policy. He served at the Office of Technology Assessment of the United States Congress where he contributed to major reports on emerging biomedical technologies and their societal impacts. He is the author of The Gene Wars: Science, Politics, and the Human Genome, a comprehensive account of the struggle to launch the Human Genome Project. His areas of expertise include genomics, genetic policy, Open Science, health technology, and public policy.
Bob Cook-Deegan recounts his childhood in Denver as the son of a physician. He discusses his early academic career, his undergraduate years at Harvard, his time at the University of Colorado Medical School, and his decision to pursue medical research. He also talks about becoming a father and maintaining a work-life balance with his two children and wife, Kathryn. Cook Deegan shares his experience researching Alzheimer’s disease, as well as his rotation at the National Institutes of Health. Dr. Cook-Deegan details his work at the Office of Technology Assessment (OTA), including reports on aging, biotech, and the Human Genome Project, and offers an account of its eventual demise due to political changes. Other topics include the history of the Bermuda Principles, the role of political administrations on health policy, the current turn to Open Science, and Cook-Deegan's own relationship to collecting oral histories. He concludes the conversation with a reflection on the Trump administration’s recent decision to cut funding for many science-funding agencies
Oral History Interview with Robert Cook-Deegan
No full textThis interview with Bob Cook-Deegan, MD, is part of “Moral Histories: Voices and Stories from the Founding Figures of Bioethics,” an oral history project of the Johns Hopkins Berman Institute of Bioethics. Prof. Cook-Deegan is a professor in the School for the Future of Innovation in Society and the Consortium for Science, Policy, and Outcomes at Arizona State University. He was the founding director of the Center for Genome Ethics, Law, and Policy at Duke University’s Institute for Genome Sciences and Policy. He served at the Office of Technology Assessment of the United States Congress where he contributed to major reports on emerging biomedical technologies and their societal impacts. He is the author of The Gene Wars: Science, Politics, and the Human Genome, a comprehensive account of the struggle to launch the Human Genome Project. His areas of expertise include genomics, genetic policy, Open Science, health technology, and public policy.
Bob Cook-Deegan recounts his childhood in Denver as the son of a physician. He discusses his early academic career, his undergraduate years at Harvard, his time at the University of Colorado Medical School, and his decision to pursue medical research. He also talks about becoming a father and maintaining a work-life balance with his two children and wife, Kathryn. Cook Deegan shares his experience researching Alzheimer’s disease, as well as his rotation at the National Institutes of Health. Dr. Cook-Deegan details his work at the Office of Technology Assessment (OTA), including reports on aging, biotech, and the Human Genome Project, and offers an account of its eventual demise due to political changes. Other topics include the history of the Bermuda Principles, the role of political administrations on health policy, the current turn to Open Science, and Cook-Deegan's own relationship to collecting oral histories. He concludes the conversation with a reflection on the Trump administration’s recent decision to cut funding for many science-funding agencies
Where Participatory Approaches Meet Pragmatism in Funded (Health) Research: The Challenge of Finding Meaningful Spaces
No full textThe term participatory research is now widely used as a way of categorising research that has moved beyond researching "on" to researching "with" participants. This paper draws attention to some confusions that lie behind such categorisation and the potential impact of those confusions on qualitative participatory research in practice. It illuminates some of the negative effects of "fitting in" to spaces devised by other types of research and highlights the importance of forging spaces for presenting participatory research designs that suit a discursive approach and that allow the quality and impact of such research to be recognised. The main contention is that the adoption of a variety of approaches and purposes is part of the strength of participatory research but that to date the paradigm has not been sufficiently articulated. Clarifying the unifying features of the participatory paradigm and shaping appropriate ways for critique could support the embedding of participatory research into research environments, funding schemes and administration in a way that better reflects the nature and purpose of authentic involvement
Morris Cook
No full textMorris Cook is the son of Mark N. and Amy Cook and stepson of Ada Rasmussen Cook
FIT Authors Talks: "The Miracles" with Amy Lemmon
No full textProfessor and Chair of English and Communication Studies Amy Lemmon reads from and talks about her book The Miracles.With lyricism and grace, Amy Lemmon gives us a worldview to live by. The all-too-familiar “wear of sorrow’s rub” is presented alongside the world’s miracles, including the author’s two children. Fearlessly bridging the gap between tradition and artistic innovation, the author moves us forward with her into the unknown, to entertain new relationships with herself, her children, and the world
Morris Cook
No full textMorris Cook is pictured his senior year at Uintah High School. He is the son of Mark N. and Amy Cook, and stepmother Ada Rasmussen Cook
American Women Writers: Amy M. Clark
No full textA 2011 conversation with the author Amy M. Clark about her life and the inspiration for her work
Dr. Amy Howard – Faculty Author Interview
No full textAmy Howard, executive director of the Bonner Center for Civic Engagement and associated faculty in American studies, discusses her new book, More Than Shelter: Activism and Community in San Francisco Public Housing, published recently by the University of Minnesota Press. Her research and book looks closely at three public housing projects in San Francisco and brings to light the dramatic measures tenants have taken to create communities that mattered to them
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