1,721,071 research outputs found
LET ME PARTICIPATE: Using shared decision-making to involve persons with dementia in care planning in long-term care
No full textContains fulltext :
209498.pdf (Publisher’s version ) (Open Access)Radboud University, 12 november 2019Promotores : Vernooij-Dassen, M.J.F.J., Koopmans, R.T.C.M., Engels, Y.M.P. Co-promotor : Chattat, R
Skills In DEmentia CARe – Building psychosocial knowledge and best practice in dementia care
No full textSiDECar is a European Erasmus+ project aimed at promoting the psychosocial knowledge in dementia care through the introduction and delivery of HE programs relevant to the labor market in dementia care. It has been receiving the support of the KA2 Strategic Partnerships for Higher Education
Storytelling e supporto alla narrazione: strumenti per il dialogo e la riscoperta inter-generazionale
No full textRiassunto: La persona con demenza (PCD) può esprimere abilità sociali (Sabat S.R. e Gladstone C.M., 2010): nel racconto della propria vita queste emergono tanto meglio, quanto più la narrazione è supportata da un familiare in grado di sostenere e aiutare il narratore a costruire con linearità cronologica il racconto. Obiettivo: Poiché i giovani sembrano coadiuvare meglio le narrazioni (Chung J.C., 2009), nel presente lavoro di ricerca ci si è focalizzati sull’acquisizione di informazioni relative al possibile effetto modulatorio che l’interazione con un familiare adulto (e.g., consorte o figli) potesse avere rispetto all’interazione con un famigliare giovane (e.g., nipoti o figli giovani) in termini di abilità sociali, identità e performance della narrazione. Metodi: I partecipanti sono stati reclutati all’interno di centri d’incontro ubicati a Bologna e Modena. In totale erano 28 tra familiari adulti, giovani e PCD suddivisi in due gruppi: interazione del PCD con il familiare giovane; interazione del PCD con il familiare adulto. I PCD hanno prima svolto un laboratorio di reminiscenza in gruppo e poi le interviste in coppia. Le interviste trascritte sono state poi analizzate attraverso una content analysis. Risultati: Sono state confermate le abilità sociali delle PCD. Sebbene non siano emerse differenze per quanto riguarda l’identità e la performance del racconto, i giovani supportavano il racconto aiutando il narratore a direzionarsi verso una narrazione efficace e a significato condiviso, evitando che questi perdesse il filo del racconto; gli adulti tendevano maggiormente a commentare e a limitare il racconto, fino ad arrivare a mettersi a narrare in prima persona l’accaduto. Conclusioni: Dallo studio emerge il ruolo attivo della PCD: in interazione con il familiare giovane, la PCD riesce meglio a farsi carico del ruolo di messaggero di conoscenze relative a culture e momenti passati
Early psychosocial intervention for family carers in Italy: Effects on behavioural problems and carer distress
No full textLe tecnologie assistive per le persone con demenza e i loro caregiver, indicazioni per future pandemie
No full textChildren and young people's experience of parental dementia: A systematic review
Full text linkObjectives: Most studies have been concerned with the experiences and needs of spouses/partners and adult children of people with dementia. In this review, children and young people's lived experience of parental dementia was investigated. Findings will inform both researchers and professionals in the area of dementia care. Design: A systematic literature search was performed in CINAHL, PsychINFO, PubMed, Scopus, and Web of Science. A rigorous screening process was followed, and a checklist for qualitative and observational studies was used to evaluate the methodological quality of the studies. Narrative synthesis of the selected articles was carried out. Results: Twenty-one studies were included and a synthesis of the literature revealed six themes. The first theme concerned the difficulties in dealing with the diagnosis which was often preceded by a long period characterized by uncertainty, confusion, family distress, and conflicts. The second theme discussed changes in family relationships in terms of the role of children and young people in supporting both parents and keeping family together. The third theme described the impact of caring on children and young people who struggled to balance caring tasks and developmental needs. The fourth theme showed consequences on children and young people's personal lives in terms of education/career and life planning. The fifth theme illustrated main adaptation models and coping strategies. The last theme discussed the need for appropriate support and services based on a “whole family” approach. Conclusions: The included studies provide the basis for knowledge and awareness about the experience of children and young people with a parent with dementia and the specific needs of support for this population
Algoritimi di calcolo per gli indici PCS e MSC del questinario sf-12
No full textIl questionario SF-12 permette di descrivere la salute di un gruppo di persone attraverso due indici sintetici calcolati su 12 domande. L’indice denominato Physical Component Summary (PCS), riguarda lo stato fisico, mentre l’indice Mental Component Summary (MCS) misura lo stato mentale. I punti di maggior forza del questionario riguardano la brevitá e la facilitá di somministrazione. Attualmente é disponibile un manuale, guida all’utilizzo, nelle cui ultime pagine é o_ertoun algoritmo di calcolo per ottenere gli indici per persona. L’algoritmo é scritto peró in modo che possa essere utilizzato solo all’interno del pacchetto statistico SAS (Littell, Milliken, Stroup, & Wolfinger, 1996). Non tutti coloro che sono interessati al calcolo degli indici hanno domestichezza con questo pacchetto statistico, ragion per cui, il presente lavoro si propone di o_rire due algoritmi alternativi e sviluppati per i pacchetti statistici SPSS (IBM, 2011) e R (RStudio Team, 2015), oltre alla possibilitá di utilizzare un foglio di calcolo in Microsoft-Excel
Assistive Technologies in Dementia Care: An Updated Analysis of the Literature
Full text linkObjectives: Technology can assist and support both people with dementia (PWD) and caregivers. Recently, technology has begun to embed remote components. Timely with respect to the pandemic, the present work reviews the most recent literature on technology in dementia contexts together with the newest studies about technological support published until October 2020. The final aim is to provide a synthesis of the timeliest evidence upon which clinical and non-clinical decision-makers can rely to make choices about technology in the case of further pandemic waves. Methods: A review of reviews was performed alongside a review of the studies run during the first pandemic wave. PsycInfo, CINAHL, and PubMed-online were the databases inspected for relevant papers published from January 2010. Results: The search identified 420 articles, 30 of which were reviews and nine of which were new studies meeting the inclusion criteria. Studies were first sorted according to the target population, then summarized thematically in a narrative synthesis. The studies targeting technologies for PWD were categorized as follows: monitoring and security purposes, sustaining daily life, and therapeutic interventions. Each category showed potential benefits. Differently, the interventions for caregivers were classified as informative, psycho-education programs, psychosocial-supportive, therapeutic, and cognitive/physical training. Benefits to mental health, skills learning, and social aspects emerged. Conclusions: The evidence shows that technology is well-accepted and can support PWD and caregivers to bypass physical and environmental problems both during regular times and during future pandemic waves. Nevertheless, the lack of a common methodological background is revealed by this analysis. Further and more standardized research is necessary to improve the implementation of technologies in everyday life while respecting the necessary personalization
Relationship dynamics among couples dealing with breast cancer: A systematic review
Full text linkMost studies have been concerned with the experiences and needs of women with breast cancer and spouses/partners separately. In this review, the relationship dynamics that characterize the couple’s experience of breast cancer treatment were investigated. Findings will inform both researchers and professionals in the area of oncology. A systematic literature search was performed in CINAHL, PsychINFO, MEDLINE, Scopus and Web of Science. A checklist for qualitative and observational studies was used to evaluate the methodological quality of the studies. Seventeen studies were included, and the synthesis of the literature revealed five domains that characterized the dyadic process: dyadic coping strategies, psychosocial support, communication, the couple’s sexual life and spirituality. The included studies provide the basis for knowledge and awareness about the experience of couples with cancer, the specific dimensions enacted during the breast cancer treatment path and the type of responses that are associated with a positive couple’s adjustment to the disease
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