1,720,961 research outputs found
Adolescents\u27 embodied experiences of living with chronic kidney disease
No full textIntroduction: Chronic Kidney Disease (CKD) is an enduring and debilitating condition which can have significant physical, psychological and social consequences for anyone experiencing this disease. Navigating CKD in adolescence is particularly challenging; young people are simultaneously inhabiting bodies that are transforming through pubertal processes as well as trying to manage bodies that have been greatly changed by both disease and medical technologies. Inevitably, managing these processes of unpredictable body alteration has a profound influence on how adolescents experience, perceive and use their bodies in the world. However, there is limited research that examines the embodied experiences and perspectives of adolescents living with CKD. The aim of this study is to explore adolescents’ embodied experiences of living with chronic kidney disease
Methods: This study employs a narrative inquiry research design incorporating arts-based methodology. Data were gathered using visual body maps (i.e. life-size human body images) and unstructured interviews. Five adolescents (10-17 years) living with CKD participated in the study, which took place over a period of 18 months in both hospital and home settings. The visual and oral narratives of the adolescents were analysed using Riesman\u27s (2008) approach to narrative analysis.
Findings: The findings reveal that adolescents experience many bodily changes in living with CKD including disfigurement, scarring, leaking bodily fluids and delays in puberty. The bodily changes negatively affect the adolescents’ perceptions of their bodies and create heightened awareness of their fragile and ill bodies. Adolescents also present a positive attitude and spirit of perseverance in order to endure their illness. A nuanced finding is a disrupted sense of embodied self and identity arising from adolescents’ encounters with medical treatments and technology. The findings also reveal adolescents’ experiences of invisibility and exclusion from medical encounters. Adolescents highlight the need for HCPs to acknowledge them as knowledgeable agents in their illness trajectory.
Conclusions: Adolescent participants articulated rich visual and oral narratives regarding their experiences of living with CKD in their bodies at a time of anticipated pubertal change. Embodied experiences are meaningful, and expression of body knowledge by patients provides valuable insights for healthcare practitioners. From a clinical perspective, a multifaceted and holistic adolescent-centred psychosocial care approach is needed to support adolescents living with CKD
I share therefore I am: a narrative inquiry of young adults experience of personal disclosure on Facebook
Full text linkThe growing popularity of Facebook has prompted much interest in the concept of online self-disclosure. Prior studies have primarily examined this concept from a quantitative perspective, often focusing on how the frequency and pattern of online disclosures relate to personality typologies. This study is the first qualitative exploration of users’ perspectives on their experience of personal self-disclosure on Facebook. The aim of the study was to identify the factors that motivate participants to self-disclose online, the functions that this serves and the impact it has on participants. It involved using a psychotherapeutic analytical framework to conduct a content analysis of the Facebook accounts of 57 Irish third-level students (aged between 18 and 25 years) over a six-month period. Five of these participants, who were subsequently identified as engaging in personal online self-disclosure, were invited to participate in a one-to-one interview. Riessman’s (2010) Narrative Analysis Framework was used to analyse both the online Facebook status updates and the interview transcripts of these five participants, which formed the data for the study. The study findings add new insights to our understanding of the interpersonal and intrapersonal dynamics of online personal self-disclosure. They suggest that the motivating factors can be divided into internal and external motivators. Internal motivators include a desire to entertain, educate or inspire one’s Facebook audience. External motivating factors involve Facebook’s role in encouraging and shaping users’ self-disclosures, which in turn can influence new cultural norms. The findings suggest that online personal self-disclosure may function as an opportunity for users to express their preferred identities and may also be used for processing, managing and expressing difficult emotions and in turn address a users’ psychological need for recognition and validation. The findings also suggest that engagement in online personal self-disclosure often involves intense psychological rumination and feelings of online vulnerability, which may impact users’ psychological wellbeing by triggering experiences of anxiety and preoccupation. As these findings suggest that online personal self-disclosure can be experienced as a catalyst for psychological distress and also act as a mechanism for managing distressing feelings has implications for psychotherapy theory and practice
Making an exhibition of ourselves : using narrative and arts-based inquiry with student nurses
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Going Beyond Counting First Authors in Author Co-citation Analysis
Full text linkThe present study examines one of the fundamental aspects of author co-citation analysis (ACA) - the way co-citation
counts are defined. Co-citation counting provides the data on which all subsequent statistical analyses and mappings
are based, and we compare ACA results based on two different types of co-citation counting - the traditional type that
only counts the first one among a cited work's authors on the one hand and a non-traditional type that takes into
account the first 5 authors of a cited work on the other hand. Results indicate that the picture produced through this non-traditional author co-citation counting contains more coherent author groups and is therefore considerably clearer. However, this picture represents fewer specialties in the research field being studied than that produced through the traditional first-author co-citation counting when the same number of top-ranked authors is selected and analyzed. Reasons for these effects are discussed
Variations on the Author
Full text link“Variations on the Author” discusses two of Eduardo Coutinho’s recent films (Um Dia na Vida, from 2010, and Últimas Conversas, posthumously released in 2015) and their contribution to the general question of documentary authorship. The director’s filmography is characterized by a consistent yet self-effacing form of authorial self-inscription: Coutinho often features as an interviewer that rather than express opinions propels discourses; an interviewer that is good at listening. This mode of self-inscription characterizes him as an author who is not expressive but who is nonetheless markedly present on the screen. In Um Dia na Vida, however, Coutinho is completely absent form the image, while Últimas Conversas, on the contrary, includes a confessional prologue that moves the director from the margins to the center of his films. This article examines the ways in which these works stand out in the filmography of a director who offers new insights into the notion of cinematic authorship
Appropriate Similarity Measures for Author Cocitation Analysis
Full text linkWe provide a number of new insights into the methodological discussion about author cocitation analysis. We first argue that the use of the Pearson correlation for measuring the similarity between authors’ cocitation profiles is not very satisfactory. We then discuss what kind of similarity measures may be used as an alternative to the Pearson correlation. We consider three similarity measures in particular. One is the well-known cosine. The other two similarity measures have not been used before in the bibliometric literature. Finally, we show by means of an example that our findings have a high practical relevance.information science;Pearson correlation;cosine;similarity measure;author cocitation analysis
Interpreting and responding to expressions of mental pain: the inner and outer dialogues of the mental health nurse
Full text linkThe experience and expression of mental pain can be interpreted in various ways by the mental health nurse and the client during therapeutic interaction. This chapter explores how meanings of mental distress are configured through dialogue between and within the mental health nurse and the person in care. Here, the authors follow Bahktin’s (1981) thesis that meaning making is a dialogical activity, arrived at through engagement with one’s own internal voices and available dialogues and discouses in the surrounding context. Thus the nurses’s understanding or sense making of expressions of mental pain emerges from the interaction between inner (personal, embodied) and outer (professional / therapeutic, social) dialogues. These internal and external ‘voices’ inevitably influence the nurse’s engagement with the client; where these are unquestioned and congruent, the nurse enters into therapeutic engagement with a sense of clarity and purpose and when these dialogues are at variance, the nurse encounters confusion as s / he struggles to find a meaningful interpretation of events so that s / he can engage purposefully with the person in care. The authors ague that while congruent dialogues may facilitate spontaneous knowing and acting, unquestioned interpretations can become habituated knowledge constructions, employing and sustaining professional monologues that dominate the communication process and suppress possible alternative voicings of mental distress. In this chapter we are interested in troubling dialogues in mental health interactions and interventions. We suggest that when inner / outer voices that are perhaps conflictual and somewhat confusing, are met with open curiosity, this approach can promote opportunities for new and transformational dialogue. Further, using vignettes from teaching and research contexts, we offer two interlinked strategies for purposefully engaging with contending dialogues and developing communication about mental pain, thereby enhancing the therapeutic relationship between the nurse and person in care
Dispelling the Myths Behind First-author Citation Counts
Full text linkWe conducted a full-scale evaluative citation analysis study of scholars in the XML research field to explore just how different from each other author rankings resulting from different citation counting methods actually are, and to demonstrate the capability of emerging data and tools on the Web in supporting more realistic citation counting methods. Our results contest some common arguments for the continued
use of first-author citation counts in the evaluation of scholars, such as high correlations between author rankings by first-author citation counts and other citation
counting methods, and high costs of using more realistic citation counting methods that are not well-supported by the ISI databases. It is argued that increasingly available digital full text research papers make it possible for citation analysis studies to go beyond what the ISI databases have directly supported and to employ more
sophisticated methods
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