1,721,067 research outputs found
sj-pdf-1-pmj-10.1177_02692163241234797 – Supplemental material for What are the anticipated benefits, risks, barriers and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key stakeholders
No full textSupplemental material, sj-pdf-1-pmj-10.1177_02692163241234797 for What are the anticipated benefits, risks, barriers and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key stakeholders by Hannah May Scott, Lucy Coombes, Debbie Braybrook, Daney Harðardóttir, Anna Roach, Katherine Bristowe, Myra Bluebond-Langner, Lorna K Fraser, Julia Downing, Bobbie Farsides, Fliss EM Murtagh, Clare Ellis-Smith and Richard Harding in Palliative Medicine</p
The embryo as moral work object: PGD/IVF staff views and experiences
No full textCopyright @ 2008 the authors. This article is available in accordance with the Creative Commons Deed, Attribution 2.5, see http://creativecommons.org/licenses/by-nc-nd/2.5/deed.en_CA.We report on one aspect of a study that explored the views and experiences of practitioners and scientists on social, ethical and clinical dilemmas encountered when working in the field of preimplantation genetic diagnosis (PGD) for serious genetic disorders. The study produced an ethnography based on observation, interviews and ethics discussion groups with staff from two PGD/IVF Units in the UK. We focus here on staff perceptions of work with embryos that entails disposing of ‘affected’ or ‘spare’ embryos or using them for research. A variety of views were expressed on the ‘embryo question’ in contrast to polarised media debates. We argue that the prevailing policy acceptance of destroying affected embryos, and allowing research on embryos up to 14 days leaves some staff with rarely reported, ambivalent feelings. Staff views are under-researched in this area and we focus on how they may reconcile their personal moral views with the ethical framework in their field. Staff construct embryos in a variety of ways as ‘moral work objects’. This allows them to shift attention between micro-level and overarching institutional work goals, building on Casper's concept of ‘work objects’ and focusing on negotiation of the social order in a morally contested field.The Wellcome Trust Biomedical Ethics Programme, who funded the projects‘Facilitating choice, framing choice: the experience of staff working in pre-implantation genetic diagnosis’ (no: 074935), and ‘Ethical Frameworks for Embryo Donation:the views and practices of IVF/PGD staff’ (no: 081414)
The informational needs of prospective parents: an ethical perspective
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What is good medical ethics? A very personal response to a difficult question
No full textA personal reflection upon a career in medical ethics leads to four conclusions on what makes for 'good medical ethics'. Good medical ethics is practical in approach, philosophically well grounded, cross disciplinary, and while it might not be a necessary feature, the experience of the author suggests that it is the work of 'good people'
What is good medical ethics? A very personal response to a difficult question
No full textA personal reflection upon a career in medical ethics leads to four conclusions on what makes for 'good medical ethics'. Good medical ethics is practical in approach, philosophically well grounded, cross disciplinary, and while it might not be a necessary feature, the experience of the author suggests that it is the work of 'good people'
Think before you click: setting personal boundaries for the acquisition of medical information
No full textEarlier this year I had the pleasure of joining members of the British Pain Society's Philosophy Group at their annual conference in the Lake District. My subject was the experience of suffering, approached from a philosophical as opposed to medical perspective. The setting was sublime and the company excellent, but sadly, for me, the event was marred by my own ill health. There, amidst some of the country's experts in pain management, I succumbed to what was later diagnosed as trigeminal neuralgia. However, I was unaware of the existence of such a complaint, and therefore described my extreme and obvious discomfort as toothache, and responded obediently to the forthcoming drug advice – none of which worked. In the intervening months I have reflected upon this experience and wondered at how I continued to misdiagnose myself not once but twice, despite two dentists having told me in the preceding months that there was nothing wrong with my teeth. I don't condemn myself too severely, favouring, as I do, my personal tendency to play down symptoms against the background of a familial tendency to catastrophise
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