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National rare diseases registry in Spain: pilot study of the Spanish Rare Diseases Registries Research Network (SpainRDR)
Get PDFPoster publicado en: Orphanet Journal of Rare Diseases 2014, 9(Suppl 1):P5The development of a national Rare Diseases (RD) registry in Spain was launched in 2012 with the project SpainRDR, supported by the International Rare Diseases Research
Consortium (IRDiRC). includes two different
strategies: patient registries addressed to patient outcome
research and population-based registries addressed to epidemiologic research, health and social planning [1]. The pilot study aims to detect the difficulties of eveloping the national and population-based RD registryOn behalf SpainRDR group. Financial agency: Instituto de Salud Carlos III -
International Rare Diseases Research Consortium (IRDiRC). Grant no. IR11-
RDR.7th European Conference on Rare Diseases and Orphan Product
Las TIC en un hospital
No full textConsejería de Sanidad. Gobierno del Principado de AsturiasSalud Digital, una realida
El discurso histórico en el museo arqueológico de Asturias: algunas reflexiones en clave de género
Get PDFFundación para el Fomento en Asturias de la Investigación Científica Aplicada y la TecnologíaI Congreso de Xénero, Museos e Art
Las medidas provisionales en los procedimientos administrativos sancionadores: aplicación en el ámbito de la legislación medioambiental
No full textConcepto y bases reguladoras de la colocación de trabajadores: Estudio de conjunto tras las últimas reformas de la legislación laboral española
No full text
Emergency and Disaster Reports
No full textAfghanistan has a long history of conflicts and because of this reason much of the
Attention given to the country related to the scope of disasters has been focused
mainly on the humanitarian emergencies affecting the country for decades.
However, other types of disasters such as natural or technological disasters have
received less attention.
This monographic issue of the journal contains an analysis of the profile of natural
And technological disasters in the country so that it contributes to a more complete
Understanding of its overall disaster risk
Emergency and Disaster Reports
No full textEs un nº monográfico.This monographic issue is about Nepal and its disaster risk profile. Nepal’s fragile geology and steep topography make it the 20th top most disaster prone country in
The world. Nepal is a part of the Himalayan-Ganga system with the system extending about 160-200 kilometers from north to south spanning six geological
And climatic belts varying in altitude from about 8000 to just about 60 metres above mean sea level in eastern Nepal. About 83 per cent of Nepal lies within
The mountainous region of the country, while the remaining 17 per cent falls
In the northern part of the Ganga Basin plain.
As a country Nepal is ranked fourth, eleventh and the thirty in terms of relative
Vulnerability to climate change, earthquake and flood hazards respectively. It
Is highly prone to high magnitudes of natural hazards such as flood, landslide,
earthquake, fire, hailstone, windstorm, thunderbolt, cloudburst, drought, Glacier
lake outburst flood (GLOF), avalanches and epidemics
Coste de producción del arándano en Asturias
No full textEl cultivo del arándano ha experimentado
un importante crecimiento en
Asturias en los últimos 10 años, pasando
de apenas 5 ha y unas 5 explotaciones
profesionales a las casi 100 ha actuales
repartidas entre unos 70 productores, y
son también muchas las personas que se
interesan por este cultivo actualmente,
bien como ocupación principal o como
actividad complementaria de renta.
Los aspectos económicos, y en particular
el desembolso (la inversión) a realizar
para la puesta en marcha de la explotación,
junto con las cuestiones relativas a
la comercialización, constituyen las primeras
cuestiones a analiz