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“No official help is available” - experience of parents and children with congenital heart disease during COVID-19
Get PDFPurpose of the studyThe purpose was to explore the experience, information, support needs and decision-making of parents with congenital heart disease (CHD) during the COVID-19 crisis. Study designOn-line survey designSettingAn on-line survey with open/closed questions to explore the experiences of parents of children, as well as children and young people (CYP) with CHD during the COVID-19 crisisPatientsParents of children with CHD and CYPResults 184 parents and 36 CYP completed the survey. Parents worry about the virus (86.4%) vs. CYP (69.4%), whilst (89%) parents are vigilant for symptoms of the virus vs. CYP(69.4%). A thematic analysis of the qualitative comments covered 34 subthemes, forming eight-overarching themes: Virus 1)risk of infection, 2)information, guidance and advice, 3)change in health care provision, and 4)fears and anxieties; Lockdown and isolation 5)psychological and social impact, 6)keeping safe under lockdown, 7)provisions and dependence on others, 8)employment and income.Conclusions Parents and CYP were worried about the virus, although CYP less so. Parents and children however, were frustrated with the lack of specific and paediatric focused information and guidance, expressing disappointment with the adult centric information available. Parents also felt alone, especially with their concerns around the implications of cardiac service suspension and the implication for their child’s health. In order to better support children and their families, resources need to be developed to address families’ and CYP concerns for their health during this pandemic.<br/
The Salesian Martyrs of Auschwitz
No full textThe Salesian Martyrs of AuschwitzThis book tells the story of 22 Polish Catholic priests who were sent to Auschwitz under Nazi persecution of the Church in Poland. They were all members of the Salesians of Don Bosco (an Italian order of priests founded to work with young people). The first Salesians arrived in Poland at the end of the 19th Century to begin their work there, taking over a derelict church in the small town of Oświęcim. They could not have known the significance of that place. 40 years later the Salesians had communities, parishes and schools throughout Poland. When the Nazis invaded in 1939, they occupied the town of Oświęcim and renamed it ‘Auschwitz’. Among the many priests who would be imprisoned in the camp there would be 22 from the Salesian family, several of whom had been pupils or teachers in the town before the war. Only 6 of the Salesians survived the war. This story tells the story of all 22 of the Salesians who were imprisoned in Auschwitz and reminds us of the wider story of the persecution of Polish Catholics in Poland under the Nazis
Destination Marketing Organisations: The Need for a Child-centred Approach to Diaspora Tourism
Get PDFThere is sufficient evidence in academic scholarship that points to the important role diaspora tourism plays for the economies of homeland communities and countries. Given previous research shows a decreased level of attachment to the homeland in the second generation of immigrants, this research seeks to explore the effects of childhood experiences on adult behaviours and outcomes in relation to diaspora tourism. The research reveals the important role played by families in transmitting knowledge, memories, traditions and other cultural practices to diaspora children. Destination Marketing Organisations (DMOs), however, are neglecting to engage this lucrative market partly because communication strategies are aimed at adults of the diaspora and not at children. Based on these findings, we propose DMOs take a child-centred approach by actively engaging diaspora children to devise tourism marketing strategies that are child-friendly
Current landscape of nutrition within prehabilitation oncology research: A scoping review.
No full textBackground: Prehabilitation aims to improve functional capacity prior to cancer treatment to achieve better psychosocial and clinical outcomes. Prehabilitation interventions vary considerably in design and delivery. In order to identify gaps in knowledge and facilitate the design of future studies, we undertook a scoping review of prehabilitation studies to map the range of work on prehabilitation being carried out in any cancer type and with a particular focus on diet or nutrition interventions. Objectives: Firstly, to describe the type of prehabilitation programs currently being conducted. Secondly, to describe the extent to which prehabilitation studies involved aspects of nutrition, including assessment, interventions, implementation, and outcomes. Eligibility Criteria: Any study of quantitative or qualitative design that employed a formal prehabilitation program before cancer treatment (“prehabilitation” listed in keywords, title, or abstract). Sources of Evidence: Search was conducted in July 2020 using MEDLINE, PubMed, EMBASE, EMCARE, CINAHL, and AMED. Charting Methods: Quantitative data were reported as frequencies. Qualitative nutrition data were charted using a framework analysis that reflects the Nutrition Care Process Model: assessment, intervention, and monitoring/evaluation of the nutrition intervention. Results: Five hundred fifty unique articles were identified: 110 studies met inclusion criteria of a formal prehabilitation study in oncology. prehabilitation studies were mostly cohort studies (41%) or randomized-controlled trials (38%) of multimodal (49%), or exercise-only (44%) interventions that were applied before surgery (94%). Nutrition assessment was inconsistently applied across these studies, and often conducted without validated tools (46%). Of the 110 studies, 37 (34%) included a nutrition treatment component. Half of these studies provided the goal for the nutrition component of their prehabilitation program; of these goals, less than half referenced accepted nutrition guidelines in surgery or oncology. Nutrition interventions largely consisted of counseling with dietary supplementation. The nutrition intervention was indiscernible in 24% of studies. Two-thirds of studies did not monitor the nutrition intervention nor evaluate nutrition outcomes. Conclusion: Prehabilitation literature lacks standardized and validated nutritional assessment, is frequently conducted without evidence-based nutrition interventions, and is typically implemented without monitoring the nutrition intervention or evaluating the intervention's contribution to outcomes. We suggest that the development of a core outcome set could improve the quality of the studies, enable pooling of evidence, and address some of the research gaps identified
‘Wavell, Arthur Goodall (1785-1860)’
No full textBiography of the general Arthur Goodall Wavell (1785-1860
The Health & Wellbeing of Children in the Early Years
No full textContributing author to chapter on 0-1 year
“Where are all the men?” Working-class male students and care-based degrees
Get PDFThis article draws on data from a small qualitative study of men on care-based degree pathways in one university in England. There is little research that specifically considers the experiences of working-class men on these courses. The article explores aspects of men’s experiences and responses to so-called ‘active learning’. It considers knowledge in care-pathway pedagogy and how students on these programmes are enabled to draw on both disciplinary and practice-knowledge. The article argues that active learning must go beyond a dominant preoccupation with self-development to initiate students into disciplinary knowledge appropriately recontextualised for their practice careers. Classed and gendered classrooms are an example of where this might occur. Implications for access and participation and for teaching and learning on care pathways are identified
Criminal Justice Practitioners’ Perceptions of Eyewitnesses with Anxiety and Depression
Get PDFIn the UK, witnesses with a mental health disorder are considered ‘vulnerable’ by the Criminal Justice System and consequently eligible for support within the Achieving Best Evidence guidance (recommendations produced in England and Wales to assist criminal justice practitioners in supporting vulnerable, intimidated, and significant witnesses during the criminal justice process). However, it is unclear how the evidence and credibility of such witnesses, especially those with anxiety and depression, are perceived by criminal justice practitioners. The present study aimed to explore how practitioners in England and Wales perceive witnesses with anxiety and depression, and the current guidance and training on mental health. One hundred and five practitioners including police officers (32), court staff (60), and registered intermediaries (13) completed an online questionnaire which examined their personal perceptions of, and attitudes towards, witnesses with anxiety and depression as well as the level and effectiveness of current guidance and training. Based on previous literature, it was anticipated that practitioners may hold biased perceptions of witnesses with anxiety and depression, and current guidance and training on mental health may be insufficient. The findings revealed that practitioners frequently encountered such witnesses and prior knowledge of mental health issues influenced their perceptions with many reporting that such knowledge caused them to question the reliability of their evidence. Additionally, practitioners perceived the Achieving Best Evidence guidance including the use of special measures to be appropriate. However, they perceived that training around mental health required improvement. The implications of these findings are discussed