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Exploring and developing doctor-parent communication for neonatal care in a designerly way
No full textThis PhD research by practice aims to explore the ways in which design can contribute to improving communication between parents and doctors and facilitate active parental involvement in neonatal care in China. The exploration is built on a cybernetic, performative, forward-looking journey based on human-centred design and co-design practice at Peking University Third Hospital Neonatal Department. My approach to the research question is based on a “research through design” approach. In China's public hospitals, most neonatal treatment does not involve parents. In my research, I analyse closed-treatment mode of neonatal care, which occurs when parents cannot access the neonatal unit to accompany their infant. For instance, in my cooperating hospital, Peking University Third Hospital, the only way parents can participate in their baby’s treatment is by talking with doctors, which is normal practice in China. From the perspective of traditional healthcare culture, neonatal development history and the science-dominated modern medical environment, the Chinese neonatal context differs significantly from that of economically advanced countries. With the development in Chinese neonatal medicine over the last forty years, diagnosis and treatment levels have improved, which has reduced the premature baby mortality rate and improved health outcomes. However, the level of participation by parents in their newborns’ care has not significantly changed overall. Despite the fact that some neonatologists in China have started addressing this problem and learning from the latest participatory model, Family Integrated Care (FICare), there is still a gap in the knowledge of how the Chinese context can be transformed from its current status to a participatory model. My PhD research differs from prior studies in that it explores an alternative model and focuses on current communication practices and the needs of doctors and parents in the Chinese context. Current medical communication research solutions have focused mainly on improving specific communication scenarios and on offering training in verbal skills for the medical profession to enhance the parental engagement experience. Despite these advances, studies concentrating on parent-doctor communication have failed to consider communication as an adaptive process – that is, a process based on a theoretical framework of second-order cybernetics that connects communication with cognitive change to enable parents to be actively involved in their infant’s care, which will ultimately benefit their infant in the long run. This process should be constructive rather than transmissive. My research has followed a recursive pattern consistent with second-order cybernetics and is carried out through practice and reflection. My fieldwork at Peking University Third Hospital over the last three years brought design into a scientific field that has not experienced design research intervention to date; it has guided the design of a new communication paradigm, which can empower the participants (doctors and parents) by using a designerly approach to understand their roles in the neonatal care and long-term healthcare of premature infants. The research has significant implications for design, medicine, and cross-professional collaboration
Who said air couldn’t hurt you?
Get PDFAQi (Air Quality Index) within London since Boris Johnson and his introduction of ULEZ in 2015 and his Boris bike scheme (TfL’s flagship cycle hire scheme Santander Cycles) has fallen. Howbeit the introduction of carbon policy’s on the surficial world of London has neglected the subterranean levels of the capital which are pivotal for the functioning of the city. This white paper stems to ask questions to local authorities and governances, to ascertain why design underground has been neglected. The people of London are consumers and stakeholders of this white paper. This anaglypta asked questions to local government and the office for the London Mayor. TfL spends on average £2Million on cleaning efforts to mitigate and reduce the impact of 25µm particulates. Moreover, this is mitigated by the corporation’s efforts to reduce localized pollution. This pollution is flushed from tunnels to concealed air passes, flushing contaminated 25µm particulates to local neighbourhoods. Monetary surplus from TfL offer profusion of capital to introduce sufficient infrastructure within the TfL network to reduce 25µm particulates and airborne contamination, which will in turn reduce the number of premature deaths
Grace and harmony (live)
No full textIn Grace and Harmony Thomasson is joined by a small group of performers for a musical theatre experiment. The work uses song and dance to describe the fantasy and sometimes awkward reality of trying to gracefully move in and out of social encounters. Having learnt the song and dance routine separately, they come together in public to perform for the first time, and do their best to move in time and sing in harmony. Performers: Federico Hewson, Anna Holmes, Jos McKain, Shade Théret, Stanley Weissoh
“They Would Plant the Rose Garden Themselves”: Femme, complicity, solidarity, and the rewiring of the sensuous
No full textThis article theorizes how femme sociality and world-making provide a counterpoint to a politics that aims for neutrality or innocence, arguing that neutrality or innocence are hallmarks of different forms of patriarchy. Instead, the authors offer embracing complicity as a concept that structures practical ethics centered in abolitionism and nondisposability. Complicity is formulated as a mode of self-understanding that guides action, evading the social hierarchies demanded by a claim to innocence, uprooting (neo)liberal attitudes that look to evade friction by doling out punishment and exclusion. The proposal to embrace complicity is followed by a proposal for solidarity based on openness. Rather than being “right” or “solving problems,” a turn to the sensuous provides a form of world-making that can hold difference—without reducing life to the single organizational forms characteristic of liberalism. As a key part of this form of solidarity, the authors show how trans femmeness emphasizes possibilities for social and sensorial transformation. Practices of care and solidarity allow one to entangle with different forms of life. Instead of reforming the structures of oppression, femme practices encourage us to unlearn and uproot institutional forms that reproduce social and material oppressions, and to take agency in (re)constructing and nourishing one's own worlds—to collectively plant the rose garden of struggle for liberation
Chernobyl exclusion zone
Get PDFphoto accompanying article Mijke van der Drift and Nat Raha 'they planted the rose garden themselves
Experience as a transformational practice
Get PDFThe field of Experiential design has gained more relevance as new technological advances change the way we register and document cultural content, audiences are becoming more active in seeking active participation, and cultural organisations are being forced to re-evaluate traditional spaces and approaches to cultural display. As educators working in this field, weare interested in the emergent conceptual spaces created by these advancements and the possible frameworks required to guide our pedagogical thinking. In this paper, we explore how experiential design has the potential to act as a catalyst for exploration and discovery. Through case studies, we explore how alternative ways of inclusivity can be achieved by challenging human-centric perspectives, and how experiential dialogues have the potential to blur the lines between performer and audience. Thus, creating dynamic spaces for exchange, exploration, and collaboration; and how cultural associations facilitate ways to become spaces of possibility where transformative experiences can unfold
Disegno podcasts: Where next? What should a product sound like?
No full textSound design is well established across music, film and media, although the field’s importance to product design and architecture has historically been overlooked. Yet given the central role that electrical devices play in our lives, how can the sounds they emit be tailored to make our everyday experiences more intuitive, friendly and integrated in our environment? In this episode of Where Next? Conversations with Map Project Office, host Oli Stratford is joined by Chloe Glews from Map, Freddie Webb from Father, Emily Candela and Joseph Zeal Henry
Workshopping the textile hand: Reimagining subjective assessment of textile materials with digital technologies
Get PDFDesigners continuously move between analog and digital spaces in order to assess sensory qualities of materials to build comprehensive references when sourcing and selecting them. Material decision making in contemporary design practice is increasingly collaborative. However, traditionally, subjective assessment of textiles has been studied at the individual level, focusing less on group workshops. This paper analyses two workshops where participants assessed sensory properties of textile materials, one individually, and one in groups, to show: 1. the difference of subjective material collection between individuals or groups. 2. improvements to the subjective assessment process, comparing physical and digital tools. 3. validation of the subjective differences among various material properties, contributing valuable insights for the assessment process in digital environments. This paper contributes references for the implementation of subjective assessments using digital platforms, ultimately improving the user experience for future designer-researcher digital tools
The lived experience of postgraduate craft students with dyspraxia
Get PDFLittle is known about how the learning difficulty dyspraxia (also known as Developmental Coordination Disorder) impacts craftspeople. This research helps to identify the struggles of adults undertaking postgraduate craft education, whilst recognising when sensory and perceptual divergences can be advantageous. It contributes to the knowledge of dyspraxia within the context of craft practice and education, informing the study of art education, practice led research and neurodivergence in higher education. The strength of the research lies in the clear and sensitive insights into the experience of living with dyspraxia. It is a mixed-method qualitative study combining autoethnography and in-depth case studies of six craftswomen. Their narratives reveal truths that are often at odds with common assumptions and general beliefs about dyspraxia. As a dyspraxic maker myself I share the interviewees’ experiences and take a sensitive approach throughout the writing. This empathetic attitude derives from lived experience and is a vital component in the authentic re-telling of their stories. It also helps to counteract the narrative of scientific evidence surrounding dyspraxia, which present it as purely a deficit. Instead, I encourage a more considered unpacking of the complex dynamics of the dyspraxic experience: the significant role that sensory experience plays – the strengths, the weaknesses and how all these issues are intertwined. I focus on both academic work in the art education context and embodied knowledge, addressing both the motor and cognitive aspects of dyspraxia. Research material is analysed using experiential thematic analysis. The themes are organised into categories: Diagnosis, Personal History and Shared Experience, the Creative Process, Sensory Experience, and Environment. Motor difficulties were revealed to have a negligible impact on manual practices, while difficulties with executive function are of serious concern, with far-reaching influence on both personal and professional lives. This knowledge can be used to better understand the dyspraxic experience and strengthen support strategies for dyspraxic students in higher education
Children of lifelessness, love for the dead, our astrolatrous communes |||, the passion: ProtoZone16: Hallucinogenesis (group show)
No full textProtoZone16: Hallucinogenesis extends an invitation to focus on the profound, unarticulated knowledge and feelings that reside within you—those depths of experience that often defy verbal expression. This process-based exhibition offers a space to heighten your awareness of its own driving forces: the subtle processes of intuition, dreams, desires, atmospheres, vibes, currents, undertones, memories, presences and hallucinations