Sarah Lawrence College
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Utilization and Perceived Value of Genetic Counselors Within U.S. Hemophilia Treatment Centers
Get PDFRapid advancement of molecular genetics has transformed the diagnosis, treatment, and management of individuals with hereditary bleeding disorders. To provide effective, up-to-date genetic counseling, navigate the complexity of these conditions, and select appropriate molecular testing, genetics expertise is required. This study assessed the provision of genetic counseling services, the involvement of genetic counselors (GCs), and the perceived value of GCs within hemophilia treatment centers (HTCs) in the United States. A survey was emailed to 396 HTC providers. 115 responses were received, representing 68 of 149 U.S. HTCs (45.6% HTC participation rate). Responses were stratified by level of GC engagement. Although GCs have extensive training in genetics, genomics, and counseling skills, nearly one-third (34.9%) of respondents reported that a GC is not involved with the HTC nor are referrals made. 98% of GC-engaged HTC respondents and 95% of GC-referrals agreed that “GCs have a unique skill set that is highly valuable to an HTC clinic” compared to only 62% of non-GC-engaged respondents (p= .001). Additionally, many respondents noted positive implications of integrating a GC within their HTCs, stating that GCs are “ideal for optimal patient care.” These results highlight the value of a GC within an HTC. This signifies the need to reassess the role of GCs among HTCs to reduce inconsistencies in the provision of genetic counseling and increase healthcare equity
Sensory Processing Disorder and Solutions: An Overview of How to Help Children Living with SPD
Get PDFThe purpose of this thesis is to offer children with Sensory Processing Disorder and their families solutions to everyday sensory processing challenges. Interviews conducted with occupational therapists offer insight into treatment. Ways in which supports in the home, in occupational therapy, play, and other areas of children’s lives can help children living with SPD are researched and discussed. The goal is to help children better regulate their sensory processing and feel empowered in the process
Supporting Low Income Parents in the Early Years: Group and Dyadic Intervention Programs for Mothers and Babies
Get PDFThe study of infant mental health has developed significantly over the last three decades. Now there is greater knowledge that the early years of life are vital for social and emotional development across the lifespan (Brazelton, 1990; Zeanah et al, 2000). It has become widely accepted that the parent child bond is now understood to be highly predictive for healthy childhood development. So, as a result, it is critical to understand the development of Attachment Theory, and the ways in which it has guided our foundational knowledge of the importance of the early years, and the interactions between caregivers and infants. For some parents, forming a secure attachment with their infant proves difficult. Early intervention programs in both group and individual dyadic settings can help to promote healthy attachment between caregiver and infant. My social work internship placement provided me with an opportunity to explore attachment work in the context of group work as well as infant-dyadic coaching. I also had the opportunity to design and carry out some coaching with individual mother and baby pairs. This thesis will address forms of promoting healthy attachment between caregiver and infant in both group and individual dyadic settings. A prenatal and parent and baby group will be discussed to highlight group work interventions. Three case studies from my internship at Henry Street Settlement Parent Center will be used to illustrate a dyadic intervention model
Work On What Has Been Spoiled
No full textThis thesis includes a selection from WORK ON WHAT HAS BEEN SPOILED, a lyric essay collection that was shortlisted for the Graywolf Press Nonfiction Prize in 2018. Named for a hexagram of the I Ching, WORK ON WHAT HAS BEEN SPOILED offers an obsessive and unbridled exploration of the meaning of guilt, particularly feminine guilt, and its possible expiation. The collection mixes lyric essays, zuihitsu, memoir, cultural criticism, and literary allusion to create a hydra of highly associative, sometimes grotesque, meditations on my own layered ambivalence about being a woman named for the birthplace of guilt—and the potential of working towards a lost paradise of self-forgiveness
Cemetery Study
No full textNo to camp. No to quirks. No to whimsy. No to self-indulgence. No to solipsism No to saccharinity. No symmetry. No to a-symmetry. No to capital. No to the collective. No stylization. No to consistency. No to contradiction. No to summer. No to winter. No to linearity. No to performer-spectator relationship. No to ivory towers. No to clever. No to nuance.
Yes to fluxus, art as a collapse of consciousness. I’ll do the thesis at least 3 more times tonight. When I do the dishes. When I walk, with nowhere to go. When I sit, and think about nothing. This thesis will happen in every moment in between those, too.
Outside my window, massive trees are soaked in the sunlight and wind. The sky above them is growing dark, and restless. It’s going to rain. When it does, I will stand outside and get wet
