Sarah Lawrence College
Not a member yet
1285 research outputs found
Sort by
Labels in Learning: An Exploration of the Effects of Cognitive, Intellectual, and Social Labels on Connections in the Classroom
Get PDFThis paper is a testament to the negative impacts that cognitive, intellectual, and social labels have on connections in the classroom, both by way of students’ identities as learners and access to education. Labels pervade schools and exclude children from exploring, wondering, and making due to students’ identities and educators’ perceptions of their social interactions and academic performance. Whether intentional or not, giving students labels based on their cognitive, intellectual, and social abilities and performance creates separation and allows for maltreatment of students based on who does and does not have certain labels. As educators it is essential that we move away from these harmful labels and work towards seeing students as whole children so that we can support them in learning and obtaining tools for future successes
Our Children, Their Stories: Storytelling in the Classroom
Get PDFMy Master’s Thesis is about children and their stories. It seeks to understand story creation in the classroom and connect it to the cultivation of the broader classroom community. Here, storytelling is understood in its five forms: reading stories, oral storytelling, drawing stories, writing stories, and acting out stories. What threads these forms together is classroom community. In my thesis, I focus on a concept called “the narrative classroom.” A narrative classroom makes space for both play and storytelling; it incorporates the multi-modal process of literacy into a classroom environment centering children and their stories as official knowledge. Most importantly, my thesis is a testament to the narrative classroom put into action in a public-school setting, where literacy is often decontextualized from its natural, social core
Primary Care Providers\u27 Perspectives of Precision Medicine in a Tribal Healthcare System
No full textPast research has described primary care provider’s (PCP) attitudes toward precision medicine (PM) and their perceived barriers to its integration in their clinical practice. However, no studies focus on provider-specific perspectives of PM in a tribal healthcare context. We performed a secondary analysis of semi-structured interviews with stakeholders previously conducted in 2017 at Southcentral Foundation (SCF), a tribally owned and operated healthcare system in Alaska. We focused on a subset of interviews with PCPs (n=12), defined in this study as any SCF integrated care team member in primary care. We identified categories and themes across all PCP interviews using a hybrid approach of deductive and inductive analysis. Interviewees ranged from physicians, nurse practitioners, behavioral health practitioners, nurse case managers, pharmacists, and other health providers. Six of twelve participants identified as male and five of the twelve participants self-identified as American Indian or Alaskan Native. Providers were generally positive about PM, however they wondered about limitations of PM to address the full health and wellbeing of patients, and expressed a need for increased knowledge of PM. Considerations of the context of SCF included the medical home model structure with integrated care teams, PCPs’ acknowledgment of research transgressions that cultivated mistrust within the patient population, and community-focused values at SCF. Providers identified barriers to integrating precision medicine a SCF but they also described potential methods to facilitate integration. Ultimately, participants’ enthusiasm appeared to outweigh their expressed concerns about PM at SCF. PCP experiences in a unique healthcare system influenced the challenges and facilitators they saw as needed prior to system-wide utilization of PM
Contemporary Initiatives to Enhance Racial Diversity in Genetic Counseling Programs: A Snapshot of Current Efforts
No full textGenetic counseling is a profession that has existed since 1971 and has flourished into the important field we see today. While our knowledge of genetics and its role in our health care is growing, racial diversity of genetic providers within the field is extremely limited. Despite years of diversity initiatives, the field does not represent the demographics in the communities it serves. In order to understand how to increase diversity in admissions, an overview of the literature on past and ongoing diversity initiatives in the field was performed. 8 initiatives were identified, Educational Outreach, Financial Support, Mentorship Programs, Pre-admission Summer Experience, Racial Diversity in Leadership/Faculty, DEIJ Collaboration, Racially Underrepresented Graduate Student Taskforce/Committee, and Interactive Web Resources. Surveys and interviews were created based on this analysis and sent to genetic counseling programs to assess the diversity initiatives being implemented and their areas of focus, as well as gains, if any, in the percentage of students with underrepresented identities being realized. 53 out of 55 genetic counseling programs responded to the surveys and 11 program representatives were interviewed. Based on our study, 53 of the 55 programs have implemented at least one initiative to increase diversity. The survey results range between 8 and 1.5 points, with 8 being implementation of all the DEIJ initiatives listed and 1 implementing only 1. The average number of initiatives currently implemented was between 3 and 4. Participation in career fairs was by far the most recorded outreach effort followed closely by undergraduate outreach
Return of Results from Genetic Research: A Study Of Nephrologists
No full textResearch has shown that 10%-37% of patients with chronic kidney disease have an underlying genetic cause. Genetic research in nephrology is important because it often translates into appropriate clinical care for patients, making return of individual research-based genetic test results an ethical responsibility. We surveyed 201 pediatric and adult nephrologists working in the United States to investigate their perspectives regarding the kinds of genetic test results that should be returned from research studies and potential barriers and facilitators to returning these results. Most nephrologists thought all diagnostic results, secondary findings, and risk variants should be returned to both adult and pediatric research participants, while few thought variants of uncertain significance and polygenic risk scores should be returned. A major barrier anticipated by nephrologists concerned the financial obstacles of clinical confirmation of research-based genetic results. Factors that nephrologists felt would facilitate return of results included having educational resources on genetic kidney disease, a list of experts to refer patients to after they receive results, and clear guidelines for clinical care after returning genetic results. The findings of this study can inform best practices for return of results to participants in nephrology research
Exploring Parental Attitudes on Autism Genetic Testing After Receiving Non-Pathogenic Results
Get PDFWhole exome sequencing (WES) is quickly moving toward becoming a first-tier test for autism spectrum disorder (ASD); however, the diagnostic yield of these tests can be quite low. Many parents will not receive a molecular diagnosis to explain the underlying cause of their child’s autism, so it is important to understand how these parents view genetic testing: both regarding satisfaction with genetic testing and if such results cause significant emotional distress. We surveyed 520 parents who enrolled their child with ASD in SPARK Research Match and received a null genetic finding through WES. We found that, despite not receiving a pathogenic genetic result for ASD, parents were satisfied with genetic testing, and they experienced low levels of emotional distress upon receiving results. Additionally, parents with lower understanding of the test results had significantly decreased satisfaction with testing and experienced increased emotional distress.
Keywords: autism spectrum disorder, genetic testing, exome sequencing, parents, perceptions, attitudes, utility, value, motivations, knowledge
What is known about this topic: Prior studies exploring parental attitudes towards genetic testing for ASD are generally positive, however few studies have examined how parents feel about genetic testing for autism after they have undergone the process. Even though the diagnostic yield of ASD testing can be quite low, no studies have explored parental satisfaction of going through ASD testing and not receiving a pathogenic result for their child.
What this paper adds to the topic: Our study demonstrates that parents are very satisfied with genetic testing even if their child does not receive a pathogenic result, and when they receive such results, they do not experience significant distressing emotions. Additionally, we find that parents who feel like they do not understand the test results have lower satisfaction as well as more emotional distress upon finding that their child does not have a positive genetic test result for ASD
The Autobiography of a Mary Sue
No full text“The Autobiography of a Mary Sue” is an intersection of young adult literature that combines the traditional venues of publication with the growing world of online publishing. It’s rétrospective autofiction, the coming of age story of a young fanfiction author as she struggles to come to terms with the death of her father, learning about her Korean heritage, discovering her own sexuality, making and breaking friendships, and honing her creative voice through the outlets of fanfiction and fandom critique essays.
Narrated by the older and wiser Mary Soo Lee, we will recount her high school exploits, her budding writing career, and her experiences in fandoms such as Star Wars, where being a Mary Sue is the greatest crime a person can commit.
Being a story about fandom, it references many of the largest fandoms and their great influence on today’s culture, mainly focusing on Star Wars, but also Harry Potter, Marvel, YA literature, and teen comedies. This story was also influenced by similar works about living in these online worlds and technological social spheres of influence, like Rainbow Rowell’s Fangirl and Patricia Lockwood’s No One Is Talking About This
The Shades of Night
No full textThe following MFA Writing thesis is an excerpt of the forthcoming novel The Shades of Night . The pages cover Part 1 of the novel, which was inspired by the poem Excelsior by Henry Wadsworth Longfellow. In a post-apocalyptic, neo-ice age setting, Xavier encounters the strange device, which would allow him to restore the power. But he\u27s not the only one after the device, and there are more dangers still to reveal themselves as he makes his way down to the ruins of the city
The Aftertaste
No full textTHE AFTERTASTE is a work of fiction about a chef who discovers the ability to bring spirits back from the afterlife through his food, and embarks on a journey to open a New York restaurant that serves up closure