Sarah Lawrence College
Not a member yet
1285 research outputs found
Sort by
The World Is Strangely Still
No full textABSTRACT
Coleman, Joseph: The World Is Strangely Still
MFA, SLC, Creative Writing, 1st May 2022
Thesis Advisor: Marie Howe
The World Is Strangely Still: A poetry collection and MFA thesis written by Joseph Coleman ‘22, that explores what it\u27s like to live in the hypersonic hurtling world of the 21st century, sink inside that world, and find a living world still there
Script Concordance Testing in Genetic Counseling Training: A Pilot Study
Get PDFClinical decision-making has been successfully measured by script concordance testing in various healthcare training programs; it has never been used in genetic counseling education. The aim of this pilot study was to assess script concordance testing in the field of genetic counseling as an objective measure of clinical reasoning in trainees. The script concordance test was administered to 22 second year genetic counseling students in the Joan H. Marks Graduate Program in Human Genetics at Sarah Lawrence College. 12 genetic counselors served on a panel to provide expert judgment responses, and a scoring grid was developed using the Aggregate Scores Method. The utility of the tool was measured using Cronbach’s alpha coefficient, and scores of students and the panel were compared using Hedge’s g. Results revealed statistically significant differences between the scores of panelists and students and good reliability. Concordance and discordance in clinical reasoning was compared across case categories where anchored cases demonstrated the highest overall degree of discordance and ethics cases demonstrated the highest overall degree of concordance. Script concordance testing can be used to measure clinical decision-making skills in genetic counseling trainees in a way that is reliable, standardized, and easy to use
An Assessment of the Sexual and Mental Health Needs of Transition Age Foster Youth in New York City
Get PDFYoung adults age 18 to 21 who are transitioning out or “aging out” of foster care are an extremely vulnerable group who lack typical family support and preparation for independent adulthood. All transition age foster youth have been exposed to trauma and likely have had multiple adverse childhood experiences. This population is understood to have significant mental and sexual health risks. Foster care service agencies in New York City provide mental and sexual (reproductive) health care to foster youth as mandated by the state of New York. This needs assessment seeks to better understand whether those services meet the mental and sexual health needs of transition age foster youth in New York City. Interviews were conducted with five professionals currently employed by foster care service organizations and/or with direct experience working with foster youth. Several themes emerged from these interviews that highlight important areas of need for the sexual and mental health of transition age foster youth in New York City
Imagined Hearths: Representations of the Family in Medieval Popular Romance and their Codices
No full textMedieval household miscellanies, belonging to people of bourgeois, gentry, or mercantile status, reveal a vision of the family unit in the late Middle Ages. Popular romances contained within these household miscellanies tell stories of noble men and noble women who embark on adventures and ultimately achieve an ideal happy ending. The fulfillment of the hero’s journey in medieval popular romance implies the redemption of his family unit and a return to stability. Due to the nature of varying performances of traditional familial roles, medieval romances reveal more than one redemption narrative, including the overcoming of or the return to family members, and the fulfillment of the family unit’s needs. This thesis aims to discuss the presence and significance of eritage along the hero’s journey and the challenges he must face to reclaim it
Missing Heritability in Congenital Disorders of Glycosylation (CDG) IIn: A Case Report
Get PDFCongenital disorders of glycosylation (CDGs) are a rare group of genetic metabolic disorders characterized by defective glycoprotein biosynthesis. Given the prevalence of glycosylation pathways throughout the body, CDGs are considered multi-system disorders with a wide spectrum of clinical features. In this report, we present a patient with a clinical and biochemical diagnosis of SLC39A8-CDG but with only one identifiable coding variant in SLC39A8. A second heterozygous intronic variant of uncertain significance was identified by Whole Genome Sequencing (WGS). In comparison to previously reported cases of SLC39A8-CDG, our proband has a mild presentation with less severe developmental delay, motor disability and brain abnormalities. To date, we are aware of two other cases (not reported here) where the patients are biochemically diagnosed with CDG IIn but, similarly, WES was only able to identify one coding variant. This raises the possibility that missing heritability/noncoding variants could be prevalent in this condition and it may be necessary to conduct further genome research to explore the role of noncoding variants in this metabolic disorder
Restrictions on Abortion Affect Genetic Counseling Practice: Genetic Counselors in Abortion Unfriendly States Reflect on Current and Impending Challenges
Get PDFGenetic counselors (GCs) play an important role in providing and coordinating care for patients considering abortion care secondary to fetal anomaly and/or genetic diagnosis. Restrictive legislation affecting abortion access in the United States has increased in recent years. Only a few studies have analyzed the effects of restrictive legislation on GCs. This study aimed to understand how prenatal GCs’ practice is impacted by restrictive legislation and how GCs are preparing for more restrictive legislation. Thirty-four qualitative interviews were conducted with GCs practicing in Texas, as well as states categorized as “leans hostile,” “hostile,” and “very hostile” by the Guttmacher Institute. Our findings revealed that prenatal GCs adapted patient discussions, witnessed timing affect access to abortion, and noted excess stress related to legislation and patient coaching. Many participants shared that their institutions were more of a barrier than a resource regarding abortion care. Collectively, the traditional role of the prenatal GC has been altered in response to restrictive legislation. GCs are conflicted on how prenatal testing will be utilized if abortion legislation becomes more restrictive. In Texas, the uncertainty of the “aiding and abetting” language of Senate Bill Eight has impacted the way GCs are able to counsel their patients. Overwhelmingly, participants shared that resources providing updated information on legislation would be helpful to GCs, and resources funding abortion care would be helpful for patients. Further restrictive legislation may irreversibly change how reproductive medicine and prenatal genetic counseling are practiced, resulting in further reproductive inequities across the US
