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Patient-Reported Barriers & Outcomes of Cardiovascular Genetic Counseling in Diverse Populations of New York City
Get PDFHereditary cardiomyopathies and cardiac arrhythmias can be inherited in an autosomal dominant pattern, which puts a patient with a positive genetic test result at a 50% chance to pass this variant onto any children. Our pilot study with Montefiore Medical Center aims to understand how confident patients feel about their cardiology genetic test results and how participants can share information with relevant family members and healthcare professionals. This study attempts to qualify the physical and emotional barriers patients face and understand the psychosocial burden they face following their results session. For our study, 43 participants were contacted via phone call or in-person after result disclosure sessions, and a total of 16 surveys were completed for a 37.2% response rate excluding one individual who did not complete the survey. Our results found a statistical significance for Genetic Counseling Outcome Scale scores between patients who did report a known referral indication and those who did not know or remember their indication (p=0.0016). While the assessment of physical barriers and emotional barriers was not overwhelming, there was a minority of participants who did report such hurdles, such as anxiety about the condition in their family and worry about the lack of a genetic cure. To better understand the diverse populations and socioeconomic landscape of the Bronx, future studies should include a version of the survey accessible in Spanish and a larger sample size. To assess statistical significance, this survey should be administered through pre-genetic counseling sessions and post-result disclosure sessions to determine any improvements in patients\u27 understanding. Lastly, physical and emotional barriers are not isolated to cardiology; this study should be replicated and expanded to include other genetics specialties
Ride The Cyclone, The Musical: A Modern Morality Play
Get PDFThroughout the 15th and 16th centuries morality plays were used by Christianity to teach their moral values to the community. Focused on the life of an individual human being, an “everyman” that represented all of mankind, morality plays followed the everyman’s innocence, fall, and penitential redemption. Using spectacle, dramatization, comedy, and satire, morality plays preached of the mortal inevitability of sin and the spiritual importance of repentance.
Utilizing the most well known morality play, Everyman, as a lens, I will be examining and analyzing the 2008 Ride The Cyclone as a modern day morality play that is reflective of our modern world. Through my analysis and comparison of plot and structure, moral values, and character analysis, I will prove that the character of choir member Ocean O’Connell Rosenberg is a modern day everyman plagued by the selfishness and pride that is rampant in our society, who can only be saved by witnessing the vices and the virtues of those around her, and identify the musical’s message and moral as a call for humanity in a time when we seem to have lost it entirely
Honoring the Spirit: A Model for Observing, Witnessing, and Celebrating Spirituality and Religion in Dance/Movement Therapy
Get PDFResearch has shown that people of color are less likely to seek out therapy for mental health care. Instead, they, specifically members of spiritual Black communities, have relied on turning to leaders in religious communities or spiritual practices. There is a stigma around mental health care amongst Black communities. These stigmas are deeply rooted in the racial disparities in the mental health field and the historical oppression of our spiritual practices or rituals throughout the African diaspora. My intention is to help bridge the gap between religious/spiritual Black communities and mental health care by offering a model for observing, witnessing, and celebrating one\u27s relationship to their religion and/or spirituality. Dance/movement therapy serves as the ideal modality for the integration of spirituality into the therapeutic setting. Given our unique training, dance/movement therapists are able to highlight and interact with spiritual elements on a body level as it arises in movement. In the end, the goal is to create an informed space where individuals can feel seen, on both a physical and spiritual level, while celebrating and honoring their experience. Keywords: spirituality, religion, dance/movement therapy, healing, black communitie
Destabilize (Achtung) Baby: performance text, phenomenon, and writing as a condition for radicalizing an historically bourgeois artform
Get PDFThe author seeks to define the preconditions for creating performance text that has the possibility to not only create exciting compelling performance; but also has the affordance to radically change the way in which dramatic theatre is produced. In creating their own dramaturgy, Jeremy Kadetsky draws inspiration from the post-structural linguistic writings of Jacques Derrida and Julia Kristeva; the queer theory espoused by Jack Halberstam and Sarah Ahmed; and the written and realized work of contemporary American playwrights Suzan-Lori Parks, Sibyl Kempson, and Agnes Borinsky. Ultimately, they find a working criteria for writing in a way that promotes fecundity, jouissance, and revolution that acknowledges the positive and negative violence of writing and language in the creative, social, and political spheres
Trans Cyborg Theatre: Digital Technology & Media in Performance
Get PDFTrans cyborg artists use digital technology to expand their identity beyond the confines of their physical form, to carve out a new space for themselves within a cis-heteronotmative theatrical society, and to protect themselves and their communities from danger. Through the use of trans cyborg figures, trans cyborg theatre artists challenge traditional notions of gender, subjectivity, and narrative in the present mediatized world by integrating digital technology and the human body on stage. This disruption of the gender binary creates a new form of theatre, trans cyborg theatre, that emphasizes the co-presence of the performer and digital technology.
There is a small but mighty community of trans artists working within cyborg theatre who merge their bodies with digital technology in performance in a myriad of different ways. From Lu Yang’s DOKU (2023), a massive avatar created though motion capture technology, to Evan Silver’s identity blurring projections on their body in Creep, to micha cárdena’s Local Autonomy Networks (Autonets) that creates autonomous safety networks for women, people of color and members of the LGBTQIA+ community through electronic clothing, trans artists are using body integrated digital technology to create trans cyborg theatre
Justice and the Limitations of Revenge in Othello
Get PDFWilliam Shakespeare\u27s Othello is a tragedy that delves into the intertwined themes of justice and revenge. The play\u27s characters ultimately serve as a cautionary tale about the dangers of pursuing vigilante justice and the importance of impartial, evidence-based decision-making in administering justice. In this essay, I will explore the limitations and consequences of the pursuit of wild justice and why justice can only be achieved publically
Legal Implications of Documentation in the Electronic Medical Record for Prenatal Genetic Counselors Post-Roe V. Wade
Get PDFPrenatal genetic counselors play an important role in coordinating abortion services for patients. The overturning of Roe v. Wade in 2022 led to new restrictions on abortion which have raised questions about GC\u27s documentation practices in the electronic health record (EHR). The purpose of this study is to understand what impact current abortion restrictions have had on GC documentation practice, and what the current level of concern is regarding the potential impact of EHR information on patients and clinicians. An eleven-question survey containing multiple choice, likert scale, and open-ended questions was distributed to prenatal genetic counselors through the National Society of Genetic Counselors and social media. Data from 120 participants were analyzed. Participants were grouped as practicing in one of three types of states based on existing state laws governing abortion: protective, intermediate, and restrictive. Most participants, 83.9%, reported that concerns about what goes into the medical record have been discussed in their workplaces, and 50% noted changes in practice since June 2022. In response to open-ended questions, a number of our participants suggested that healthcare providers are turning to the use of vague or coded language for documentation of information related to abortion care. Many participants also noted that patients have changed their behaviors, and show increased reluctance to discuss abortion (58.7%) or share information related to their current pregnancy (53.4%). Among GC’s answering this survey, 96% were very or somewhat interested in legal guidance to determine if pregnancy-related information in the medical record could create legal jeopardy for them and their patients. Participants from intermediate states were significantly more likely than those from protective (p=0.0094) or restrictive (p=0.0056) states to express an interest in legal guidance
Our Accumulation Addiction: The Harm of Overconsumption and Rehabilitation Treatments for our Minds and the Environment
Get PDFIn the same way an addict rationalizes using their substance, environmental degradation has been framed as an unfortunate side effect of our inevitable progress towards a predetermined future. These tendencies are justified using a constructed narrative built on cultural techniques and global systems of oppression, conditioning our minds to be in a constant state of desire. By framing consumerism as an addiction, this analysis questions the source of our unbridled dysregulated desire, investigates potential harm reduction addiction interventions and applies them on a global scale as a treatment for our consumption craving. This path away from consumption dependency engages the difficulties of living simply, our fear of scarcity, and a critical long-term approach to pleasure in an attempt to imagine a future in which we consciously rehabilitate our relationship with the environment by healing our bodies and minds.https://digitalcommons.slc.edu/undergrad_selectedworks/1014/thumbnail.jp
Quiet Life, Small Harvest
No full textQuiet Life, Small Harvest is a curated collection of the poems I have written at Sarah Lawrence in manuscript format. These pieces were completed under the guidance of Matthea Harvey, Rosebud Ben-Oni, Marie Howe, Sally Wen Mao, and Jay Deshpande