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Mark Sekuur verlangt terug naar witte winters en jaren waarin het warmterecord niet werd verbroken
Development and validation of the PACPN:Parents’ Attitudes Towards Crying Pediatricians and pediatric Nurses questionnaire
Crying by healthcare professionals in the medical setting is a common but understudied phenomenon. We aimed to develop a questionnaire which measures the attitudes of parent towards crying pediatricians and pediatric nurses. We assessed reliability and validity in a group of parents of children who are living with, have died from or survived a life-limiting or life-threatening-condition. The development of the PACPN was based on modification of an existing questionnaire and expert input. In a cross-sectional-design, we assessed reliability and validity for both pediatricians and pediatric nurses. Dimensionality was assessed using principal component analysis (PCA). Cronbach’s alphas were calculated for each subscale. For construct validity, participants were asked to rate an additional question regarding the goal to measure parents’ attitudes towards crying pediatricians/pediatric nurses. We hypothesized that a higher score would have a strong positive correlation with the total score of the PACPN. At the end of the questionnaire, participants were asked to rate and comment the completeness. The developed 25-item questionnaire was completed by 116 parents. The PCA revealed two dimensions: (1) family’s circumstances; (2) personal circumstances of the pediatrician/pediatric nurse. Internal consistency was good (pediatricians,.81–.93; pediatric nurses,.83–.93). The hypothesis regarding construct validity was confirmed (Spearman’s rho =.71–.75). The completeness score was 7.7 (min–max 1–10, SD = 1.51). Conclusion: The PACPN showed good internal consistency and some degree of construct validity. We assume that by adding some items with nuance to the situation and the degree of crying the completeness of the questionnaire will improve. (Table presented.
More than meets the eye: phenomenological insights into the functioning of people with lipoedema
Purpose: The aim of this study was to explore the functioning of people with lipoedema from their perspective. Methods: This was a qualitative study following a phenomenological perspective using individual in-depth interviews with a convenience sample of 13 Dutch people with lipoedema. The data were analysed by using an interpretative phenomenological approach. Results: Two overarching group experiential themes (GETs) were identified: (1) “physical complaints are only a part of their problems”, and (2) “longing for improved appearance and functioning”. The GETs were composed of the following subordinate GETs: “disproportionate functioning of the lower body”, “navigating daily life with lipoedema”, “coping with uncertainty”, “the toll of shame and stigmatization”, “consequences of a very negative self-image”, “desire for change and improved appearance and functioning”, and “an ongoing journey of acceptance”. Conclusions: Participants experience that physical complaints affect daily activities, but with adequate adaptability, participation issues are relatively limited. Instead, shame about their appearance and (fear of) stigmatization mainly leads to social avoidance. Additionally, participants long for freedom to do what they want, wear what they want, and desire a different appearance. Therefore, the experienced level of acceptance of the condition is context- and situation-dependent and not straightforward, which is complicated by the burden of knowing that the condition is chronic
Guest Editorial:Communicating in turbulent times
Introductie van een Speciale Editie met papers geselecteerd van het Euprera congres in Praag 202
Enablers and Barriers of Compassionate Care From a Nurses' Perspective:A Scoping Review
Aims and objectives: To identify and synthesise empirical evidence on the perspectives of nurses regarding factors that enable and/or obstruct the delivery of compassionate care.Methodological design and justification: A scoping review was chosen for its capacity to perform a broad exploration of the available literature.Ethical issues: This scoping review raises no ethical issues.Research methods: This review includes studies that report enablers and barriers of compassionate care. Both qualitative and quantitative designs were included. The quality of each study was assessed using the Mixed Method Appraisal Tool (MMAT). A narrative synthesis was employed to summarise the results.Instruments: A search was conducted in the electronic databases of MEDLINE and CINAHL (1975-2021).Outcome measures: Barriers and enablers to compassionate care from nurses' perspectives.Results: Fifteen empirical studies were included in this review. Four themes of enablers and barriers to compassionate care emerged: (1) personal characteristics, (2) professional characteristics, (3) patient-related factors, and (4) workplace-related factors. Main facilitators were a strong motivation to deliver compassionate care, the managements' support of compassion as a nursing value and operating in a healthy team culture. Main barriers were the absence of education and/or role models for compassionate care, heavy workloads, and the managements' prioritisation of task-centred care.Study limitations: This study is limited by the inclusion of qualitative studies with small samples and the absence of data from Northern Europe and North America.Conclusions: The findings indicate that policymakers, healthcare leaders, and nursing management play an important role in nurses' ability to provide compassionate care. Through leadership that centralises compassion as a core nursing value, nurses receive greater support in prioritising compassion in patient care. This support is further enhanced by ensuring adequate staffing and manageable schedules, offering comprehensive training in compassionate care skills, and providing resources to support nurses' wellbeing.Aims and Objectives: To identify and synthesise empirical evidence on the perspectives of nurses regarding factors that enable and/or obstruct the delivery of compassionate care. Methodological Design and Justification: A scoping review was chosen for its capacity to perform a broad exploration of the available literature. Ethical Issues: This scoping review raises no ethical issues. Research Methods: This review includes studies that report enablers and barriers of compassionate care. Both qualitative and quantitative designs were included. The quality of each study was assessed using the Mixed Method Appraisal Tool (MMAT). A narrative synthesis was employed to summarise the results. Instruments: A search was conducted in the electronic databases of MEDLINE and CINAHL (1975–2021). Outcome Measures: Barriers and enablers to compassionate care from nurses' perspectives. Results: Fifteen empirical studies were included in this review. Four themes of enablers and barriers to compassionate care emerged: (1) personal characteristics, (2) professional characteristics, (3) patient-related factors, and (4) workplace-related factors. Main facilitators were a strong motivation to deliver compassionate care, the managements' support of compassion as a nursing value and operating in a healthy team culture. Main barriers were the absence of education and/or role models for compassionate care, heavy workloads, and the managements' prioritisation of task-centred care. Study Limitations: This study is limited by the inclusion of qualitative studies with small samples and the absence of data from Northern Europe and North America. Conclusions: The findings indicate that policymakers, healthcare leaders, and nursing management play an important role in nurses' ability to provide compassionate care. Through leadership that centralises compassion as a core nursing value, nurses receive greater support in prioritising compassion in patient care. This support is further enhanced by ensuring adequate staffing and manageable schedules, offering comprehensive training in compassionate care skills, and providing resources to support nurses' wellbeing. Trial Registration: PROSPERO: CRD42022324955 https://www.crd.york.ac.uk/PROSPERO/display_record.php?RecordID=324955
Ongekende mogelijkheden!:Regionale opgaven voor het onbenutte arbeidspotentieel in een krappe arbeidsmarkt
Lokale energie initiatieven door de ogen van Groningers:Eerste bewonersonderzoek in het kader van het Programma Energieparticipatie - 2025
Met het Programma Energieparticipatie (PEP) streven de Groninger Energiekoepel, Grunneger Power en de Natuur- en Milieufederatie Groningen ernaar om een lokale energietransitie te creëren waarbij de bewoners van de provincie Groningen eigenaar zijn van en regie hebben over de energievoorziening. In het bewonersonderzoek (2024-2025), uitgevoerd door de Hanze Groningen, is onderzocht of bewoners betrokken zijn bij een LEI, of ze op de hoogte zijn van het bestaan van een LEI, en waarom bewoners wel of niet betrokken willen worden bij een LEI. In dit rapport worden de resultaten van het bewonersonderzoek beschreven. Op basis van de resultaten worden er aanbevelingen gedaan aan LEIs, zodat zij hun achterban kunnen vergroten. In de bijlage zijn de resultaten per gemeente weergegeven in infographics
Kennisclips over Autisme en Talentontwikkeling
Bij autisme spelen twee kernkwetsbaarheden een rol: Moeite met sociale interactie en communicatie Beperkte en herhalende gedragingen, interesses of aanpakkenOm deze leerlingen talentgericht te begeleiden in de klas, zijn er drie sleutelprincipes: ▪️ Ruimte bieden – zie het unieke perspectief van het kind▪️ Structuur geven – creëer voorspelbaarheid en veiligheid▪️ Flexibel ondersteunen – sluit aan op individuele behoeften en mogelijkhedenDeze kennisclips brengen deze aanpakken helder in beeld aan de hand van drie ervaringen van leerlingen en hun leerkracht. Ze zijn compact, praktisch en direct inzetbaar in jouw onderwijs- of hulpverleningspraktijk