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Make It Count
No full textMake It Count is an exhibition of observations of, and responses to, the environment and shifting ecology of Orford Ness by University of Suffolk Fine Art students and researchers curated by Jane Watt and SE Barnet. It is the first public exhibition in the new Power House project.
Orford Ness is the largest shingle spit in Europe. From the First World War onwards, it was used as a military testing site but it’s now home to an abundance of wildlife, including several species of nesting and wading birds, hares, Chinese Water Deer and rare vegetated shingle.
The fifteen artists in this exhibition spent time on Orford Ness in February 2024 to experience and respond to the landscape up close. They studied data from species counting alongside observing activities including drawing, painting and photographing. Make It Count documents a selection of their findings through a range of media including drawing, painting, sculpture, analogue photography and text
'I do not know if I will have the energy to come to placement tomorrow’: fast-tracking racially minoritised students to failure in social work education
Get PDFWe build upon previous work that explored the evidence base of ‘failure to fail’ on practice placements across professions. We found a lack of convincing evidence of ‘fail to fail’ within assessed practice learning placements and could not ascertain the extent of this issue. The literature was stronger about why it ‘might’ or ‘could’ be difficult to fail students on placement. We concluded that if there was a reluctance to fail students, that hesitancy was not shown when failing racially minoritised students. Using critical race theory, we noted instead, fast tacking to failure. Data were re-examined from two previous studies that focused on the experiences of Black African social work students in England. We identified two ways in which practice educators operationalised fast tracking to failure. Firstly, the speed at which negative judgments were made about students’ abilities, and related to this, asking personal and insensitive questions, and secondly, the speed of decision about placement failure. We argue that the debate needs to move away from fail to fail and instead, focus on who is being fast tracked to failure, and how racism and other discrimination is addressed forcefully in social work policy, practice and education
Jacob D. Green and Britain's nineteenth-century black abolitionist network
No full textJacob D. Green’s speaking career in England (1863-66) is an exploration of how an independent, self-financed Black speaker became a networked abolitionist building on the achievements of other expatriate African American activists like Moses Roper and James Watkins. Born enslaved in Maryland, Green made serial escapes from enslavement in Kentucky and elsewhere in the United States, sojourning in Toronto before arriving in Lancashire at about age forty-eight with evidently few funds. Green appealed to cotton and woollen mill town residents to oppose enslavement and the Confederate States of America from where most of North-West England’s cotton originated. He initially lectured under the sponsorship of nonconformist ministers in Yorkshire and built a network that included ministers in the United Methodist Free Church, Congregational Union, capitalists, and tradespeople. Nonconformist sponsorship led to an 1864 move to Heckmondwike in the centre of his lecture circuit. He connected with those who sponsored other Black abolitionists, burgeoning his network by speaking in West Yorkshire towns and cities that had hosted African American orators before. As a networked abolitionist, he earned income from speaking and publishing an autobiography and may have died in England in 1866
Symptomatic vitreous opacities: exploring the mismatch between clinical observation of vitreous alterations and self-reported symptoms
Get PDFObjectives: To assess the mismatch between the clinical observation of vitreous alterations and self-reported symptoms in young patients complaining of symptomatic vitreous opacities (SVO). Methods: The ophthalmic medical records of young patients presenting primarily with SVO were retrospectively evaluated. Symptoms severity was assessed using a questionnaire. The status of the vitreous body was examined with indirect ophthalmoscopy at the slit-lamp and classified according to an ad hoc severity scale. Results: Sixty eyes of thirty otherwise healthy patients (median age: 32.5 (IQR: 29.0–37.0) years old) complaining of SVO (median duration: 38 months; interquartile range: 18–84 months) were enrolled. SVO was rated as severe by 50% of participants, affecting all the activities explored in the questionnaire. Twenty-three patients (76.6%) reported SVO-related depression and/or anxiety, for which eleven patients (36.6%) were or had been using medication. Fifty-eight eyes (96.6%) showed no evidence of (or minimal) vitreous opacity, while two eyes (3.3%) were found to have significant vitreous opacity. No significant inter-gender differences (p > 0.05) and no significant differences (p > 0.05) were found between the severity of vitreous opacity and patients’ reported symptoms nor with their psychological status and medication use. Conclusions: Severe discomfort related to the perception of vitreous floaters exists in young patients whose vitreous gel examination is unremarkable or shows only minor alterations. We believe this discrepancy can be explained by optical anisotropy; significant forward-scattering of light, which results in floater symptoms; and reduced back reflection, which limits the clinical observation
What’s the story? the contribution of formulation to coaching practice in complex times.
Get PDFThe ways in which a coach conceptualises the needs of a client is central to the way the coaching journey unfolds. In other forms of applied psychology interventions are designed and delivered through the aid of a formulation which is widely recognised as a core competence for professional psychologists. Formulation can be understood as a unique form of storytelling and is a process through which a coach and client make sense of the client’s aims and needs, identify the factors of influence, and use this conceptualisation to design a way forward. Although historically, the relevance of formulation to coaching has been underexplored, it is now gaining recognition as a distinct capability and one which may have particular value in contexts of complexity - the terrain that many coaches increasingly inhabit. Exploring formulation from the perspective of different disciplines, including the performing arts, as well as recent and current work within coaching, this article, based on a keynote presentation for the Division of Coaching Psychology’s annual conference in June 2023, considers how embedding formulation in our coaching might enable us to enhance our practice, co-construct more effective stories about our clients’ needs and contribute in new and ever more creative ways to meet the needs of our clients in a rapidly changing world
Conducting co-creation for public health in low and middle-income countries: a systematic review and key informant perspectives on implementation barriers and facilitators
Get PDFBackground: There has been an increase in the use of co-creation for public health because of its claimed potential to increase an intervention’s impact, spark change and co-create knowledge. Still, little is reported on its use in low-and-middle-income countries (LMICs). This study offers a comprehensive overview of co-creation used in public-health-related interventions, including the interventions’ characteristics, and reported implementation barriers and facilitators. Methods: We conducted a systematic review within the Scopus and PubMed databases, a Google Scholar search, and a manual search in two grey literature databases related to participatory research. We further conducted eight interviews with first authors, randomly selected from included studies, to validate and enrich the systematic review findings. Results: Through our review, we identified a total of twenty-two studies conducted in twenty-four LMIC countries. Majority of the interventions were designed directly within the LMIC setting. Aside from one, all studies were published between 2019 and 2023. Most studies adopted a co-creation approach, while some reported on the use of co-production, co-design, and co-development, combined either with community-based participatory research, participatory action research or citizen science. Among the most reported implementation barriers, we found the challenge of understanding and accounting for systemic conditions, such as the individual’s socioeconomic status and concerns related to funding constraints and length of the process. Several studies described the importance of creating a safe space, relying on local resources, and involving existing stakeholders in the process from the development stage throughout, including future and potential implementors. High relevance was also given to the performance of a contextual and/or needs assessment and careful tailoring of strategies and methods. Conclusion: This study provides a systematic overview of previously conducted studies and of reported implementation barriers and facilitators. It identifies implementation barriers such as the setting’s systemic conditions, the socioeconomic status and funding constrains along with facilitators such as the involvement of local stakeholders and future implementors throughout, the tailoring of the process to the population of interest and participants and contextual assessment. By incorporating review and interview findings, the study aims to provide practical insights and recommendations for guiding future research and policy
Long-term outcome of children with newly diagnosed pulmonary arterial hypertension: results from the global TOPP registry
Get PDFBackground and aims The Tracking Outcomes and Practice in Pediatric Pulmonary Hypertension (TOPP) registry is a global network established to gain insights into the disease course and long-term outcomes of paediatric pulmonary arterial hypertension (PAH). Previously published cohorts in paediatric PAH are obscured by survival bias due to the inclusion of both prevalent (previously diagnosed) and incident (newly diagnosed) patients. The current study aims to describe long-term outcome and its predictors in paediatric PAH, exclusively of newly diagnosed patients. Methods and results Five hundred thirty-one children with confirmed pulmonary hypertension, aged ≥3 months and <18 years, were enrolled in the real-world TOPP registry at 33 centres in 20 countries, from 2008 to 2015. Of these, 242 children with newly diagnosed PAH with at least one follow-up visit were included in the current outcome analyses. During long-term follow-up, 42 (17.4%) children died, 9 (3.7%) underwent lung transplantation, 3 (1.2%) atrial septostomy, and 9 (3.7%) Potts shunt palliation (event rates: 6.2, 1.3, 0.4, and 1.4 events per 100 person-years, respectively). One-, three-, and five-year survival free from adverse outcome was 83.9%, 75.2%, and 71.8%, respectively. Overall, children with open (unrepaired or residual) cardiac shunts had the best survival rates. Younger age, worse World Health Organization functional class, and higher pulmonary vascular resistance index were identified as independent predictors of long-term adverse outcome. Younger age, higher mean right atrial pressure, and lower systemic venous oxygen saturation were specifically identified as independent predictors of early adverse outcome (within 12 months after enrolment). Conclusion This comprehensive analysis of survival from time of diagnosis in a large exclusive cohort of children newly diagnosed with PAH describes current-era outcome and its predictors
Ethical development of AI-enabled Open Educational Resources (OER)
Get PDFThis presentation focuses on the need to equip educators with a critical perspective to understand how AI comprises ethical issues such as algorithmic discrimination so they anticipate and respond to issues related to the collection, processing and use of AI in the development of OER. This exploratory research focuses on the need to equip educators with a critical perspective to understand how AI comprises ethical issues such as algorithmic discrimination so they anticipate and respond to issues related to the collection, processing and use of AI in the development of OER
Application of a modified clinical classification for pulmonary arterial hypertension associated with congenital heart disease in children: emphasis on atrial septal defects and transposition of the great arteries. An analysis from the TOPP registry
Get PDFAims: A proportion of patients with pulmonary arterial hypertension associated with congenital heart disease (PAH-CHD) do not fit in the current classification. We aimed to analyse the applicability of an adapted clinical classification of PAH-CHD to pediatric patients using the TOPP-1 registry (Tracking Outcomes and Practice in Pediatric Pulmonary Hypertension) and focus on atrial septal defects (ASD) and transposition of the great arteries (TGA). Methods and results: Hemodynamic and clinical data of all patients with PAH-CHD in the TOPP cohort were reviewed. Patients were classified according to predefined ABCDE categories (A: Eisenmenger syndrome, B: left-to-right shunt, C: coincidental defects, including all ASDs, D: corrected CHD, E: TGA), or as complex CHD (group 5), by 2 independent investigators. In case of disagreement, a third reviewer could either settle a final decision, or the patient was deemed not classifiable. Survival curves were calculated for each group and compared to idiopathic PAH patients of the registry. A total of 223 out of 531 patients in the registry had PAH-CHD, and 193 were categorized to the following groups: A 39(20%), B 27(14%), C 62(32%) including 43 ASDs, D 58(30%), E 7(4%), whereas 6 patients were categorized as group 5, and 10 patients were unable to be classified. No survival difference could be demonstrated between the groups. Conclusions: This modified classification seems to be more applicable to pediatric PAH-CHD patients than the previous classification, but some patients with PAH-CHD who never had a shunt remain unclassifiable. The role of ASD in pediatric PH should be reconsidered
Tackling physical inactivity and inequalities: implementing a whole systems approach to transform community provision for disabled people and people with long-term health conditions
Get PDFBackground
Physical inactivity is a global public health priority. There are known health and well-being consequences of being inactive, and the benefits of being physically active are well established. However, there are persistent inequalities when it comes to how physically active people are, with disabled people, people living with long-term health conditions, and people residing in areas of socio-economic deprivation being particularly affected. Methods such as whole system approaches (WSAs), which are dynamic, multifaceted, and engage all relevant stakeholders, have gained momentum as an approach to address such complex public health problems. However, evidence relating to the implementation of WSAs to address physical inactivity is lacking. The aim of the Prevention and Enablement Model (PEM) was to take a whole system approach in Essex to encourage and support disabled people and/or individuals living with long-term health conditions to be more active, happier, and to live more independently.
Methods
The aim of this study was to explore the enablers, challenges, and reflections associated with the process of designing and implementing the PEM. Semi-structured interviews (n = 12) were used to collect data from people involved in the PEM’s design, implementation and/or delivery. Data was analysed using Braun and Clarke’s reflexive thematic analysis.
Results
Four themes were identified: (1) Working collaboratively: Specific enablers of time and space were identified as important in the planning and implementation of a WSA (2) Leadership and planning: Distributed and flexible leadership was identified as central to successful implementation (3) Re-orientating practice: Highlighted the transformative potential of a whole system approach and how it contrasts with conventional work practices, and (4) Reflection and learning: Informing ongoing refinements and further implementation of successful system change.
Conclusions
These findings highlight the challenge and complexity of implementing a WSA that involves diverse stakeholders from across adult social care, the NHS, and the third sector. Several important enablers are identified, such as leadership and planning, and the challenges and discomfort that can arise whilst changing systems. Ongoing efforts are required to ensure that different elements of the system collaborate effectively to address inequalities in physical activity participation, through the implementation of a WSA