University of Humanistic Studies OAI Repository
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Oud, ouder, oudst:Podcast - Op je gezondheid
No full textHeeft eenzaamheid effect op de gezondheid? En wat zou het hebben van het eeuwige leven betekenen voor ons welzijn
Make social inclusion truly inclusive: plea for 'difference thinking'
No full textHet dominante beleidsideaal in de gehandicaptenzorg, sociale inclusie, sluit mensen met ernstige beperkingen uit. Simon van der Weele en Femmianne Bredewold pleiten voor een verbreed inclusie-ideaal, dat de wezenlijke verschillen tussen mensen erkent – en dus daadwerkelijk inclusief is
Gespleten loyaliteit:Sociaal werkers in morele nood
No full textRede in verkorte vorm uitgesproken bij de aanvaarding vanhet ambt van hoogleraar Sociaal Werk aan de Universiteit voorHumanistiek op 17 oktober 2024
D2.2. Report on the results of the BEYOND public consultation.
No full textTo explore and integrate public and stakeholder views on research ethics, research integrity and research misconduct, BEYOND organised a bottom-up and solution-oriented public consultation on research ethics/ research integrity needs, knowledge, perspectives and real-life experiences of research misconduct and on the efficacy of RE/RI interventions. The results of the public consultation will be used for co-creation of a best practice manual, guidelines to supplement standard operating procedures, and roadmap to 2030
Distress among healthcare providers who provided end-of-life care during the COVID-19 pandemic:a longitudinal survey study (the CO-LIVE study)
No full textIntroductionThe COVID-19 pandemic had a significant impact on care at the end-of-life due to restrictions and other circumstances such as high workload and uncertainty about the disease. The objective of this study is to describe the degree of various signs experienced by healthcare providers throughout the first 18 months of the pandemic and to assess what provider’s characteristics and care circumstances related to COVID-19 are associated with distress.MethodsA longitudinal survey study among healthcare providers from different healthcare settings who provided end-of-life care during the pandemic’s first 18 months. Data of four time periods were analyzed using descriptive statistics, logistic regression analysis and Generalized Estimating Equation.ResultsOf the respondents (n=302) the majority had a nursing background (71.8%) and most worked in a hospital (30.3%). Although reported distress was highest in the first period, during the first wave of COVID-19 pandemic, healthcare providers reported signs of distress in all four time periods. Being more stressed than usual and being regularly exhausted were the most common signs of distress. Healthcare providers working in nursing homes and hospitals were more likely to experience signs of distress, compared to healthcare providers working in hospice facilities, during the whole period of 1.5 years. When HCPs were restricted in providing post-death care, they were more likely to feel more stressed than usual and find their work more often emotionally demanding.ConclusionA substantial amount of healthcare providers reported signs of distress during the first 1.5 years of the COVID-19 pandemic. A cause of distress appears to be that healthcare providers cannot provide the care they desire due the pandemic. Even though the pandemic is over, this remains an important and relevant finding, as high workload can sometimes force healthcare providers to make choices about how they provide care. Given that this can cause prolonged stress and this can lead to burnout (and HCPs leaving their current positions), it is now especially important to continue observing the long term developments of the well-being of our healthcare providers in palliative care and provide timely and adequate support where needed
How end-of-life care was limited during the first 18 months of the COVID-19 pandemic:a longitudinal survey study among healthcare providers (the CO-LIVE study)
No full textBackgroundDuring the COVID-19 pandemic, the way in which end-of-life care was provided, underwent a lot of changes and therefor different domains of end-of-life care were impacted. The aim of this study is to describe whether health care providers considered end-of-life care (in medical, nursing, psychosocial and spiritual care) limited by the pandemic through the first 18 months of the COVID-19 pandemic, and examine associations with COVID-19 related circumstances of care (e.g. visit restrictions) and health care providers’ characteristics.MethodsA longitudinal survey study among healthcare providers from different healthcare settings who provided end-of-life care during the pandemic’s first 18 months. Data of four time periods were analyzed using descriptive statistics and Generalized Estimating Equation.ResultsOf the respondents (n = 302) the majority had a nursing background (71.8%) and most worked in a hospital (30.3%). Especially in the first wave end-of-life care in all aspects was limited according to a substantial part of health care providers (between 29.7 and 57.7%). Psychosocial and spiritual care were more limited than medical and nursing care during all time periods. Care being limited according to health care providers was associated with visit restrictions, shortness of personal protective equipment or restrictions in caring for the deceased and decreased over time.ConclusionThe COVID-19 pandemic impacted different aspects of end-of-life care throughout the pandemic’s first 18 months. Over the course of the pandemic health care providers seemed to have invented ways to adjust their work in order to minimize the effect of limiting measures. More involvement of health care providers in decision-making may improve the prioritization of measures to deal with crisis situations in care. These reflections highlight priorities during crises and the role healthcare providers could play in maintaining good end-of-life care. This remains relevant in new health crises, where care may differ from what is considered good quality of care
Mastering life chances and choices; a metasynthesis of how disadvantaged young people navigate between self-identity and stigma
No full textCare-dependent people are increasingly expected to actively participate in an accelerating society. This metasynthesis provides insight into how contemporary society complicates the pathways to self-actualization for disadvantaged young people. Giddens’ concept of self-identity was used to analyze the experiences of disadvantaged young people in three participatory projects. These initiatives enable network governance where young people and professionals work together, to better match their care needs and support. Participants often feel that they need to magnify their capabilities to get opportunities for self-actualization and to magnify their disadvantages so they can be acknowledged as “care dependent”, a prerequisite to receive professional support. They call upon professionals and policymakers to recognize their multilayered self-identities and to provide a supportive environment that is adjusted to their own pace, so that they can belong and genuinely participate as their true selves
Finding consensus on well-being in education
No full textResearch on well-being and concern over the well-being of students and teachers has grown dramatically in recent years. Researchers and reformers in positive psychology and education, self-determination theory, social and emotional learning, liberal-democratic political and educational philosophy, and neo-Aristotelian theories of flourishing and character education have played formative and intersecting roles in what is now an international movement to promote the lifelong flourishing of students as an alternative to a human capital and economic growth focus for education. This article defends this flourishing-focused reorientation of education policy and practice, using a value-led and evidence-informed methodology. It sorts through the conceptual disputes and clarifies the ethical considerations that should guide efforts to advance the well-being of students and teachers, assesses key claims and arguments, and brings together compatible aspects of the leading philosophical and psychological perspectives on flourishing as an aim of education. It identifies ethically and evidentially justifiable points of consensus on well-being and flourishing in education, presents a consensus model of relationships between educational environments, learning, and flourishing, and concludes with some recommendations for educational policy and practice
Burgerschapsvorming en de oneindige crisis van de democratie
No full textPieter van Rees liet in zijn proefschrift zien dat de overheid in de decennia na WO II zo ongeveer elke twintig jaar de burgerschapsopdracht aan scholen ingrijpend wijzigde. Zijn advies: accepteer die maatschappelijke opdracht niet klakkeloos, maar houd een zekere mate van kritische distantie tot de burgerschapsopdracht zodat je zeggenschap behoudt over de inrichting van je onderwijs voor democratie